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Posts: 1,902
Reply with quote  #1 

Posted 13 hours ago in IC. #1 Stephmay16

Hi all
Im steph im new to all this forum buisness and i couldnt seem to post on the "meet and greet" forum so i hope to get some replies on here.
Im 16 years of age coming up 17, im on a health and social care course at college which i enjoy so much! I aspire to become a midwife. Ive been having utis for nearly a year now. My urine samples would sometimes come back positive for bacteria but a lot of the time negative which was always frustrating! My doctor would still give me a three day course of antibiotics which would help for a few days. Ive noticed my cystits flares up and can last a while. Im suffering with needing the toilet alot and not being able to hold my bladder for long ive also been suffering with a lot of pain which is just unbearable! Ive spoke to my doctor as all my symptoms match to IC but shes told me she thinks im too young to be suffering with IC? Im so confused now ladies but i cant cope with it for much longer. My pain can be bought on by holding my bladder, from going for a wee, from sex or from something i might drink or just comes on from out of the blue.
I hope some of you can help me out i would really appreciate it.
I wish you all well x


Posts: 1,902
Reply with quote  #2 
Hello Stephmay16
Welcome to our Forums , but so sad to see another young person with this dreadful dis-ease.

I would ask you to contact the COB Office advice line today. (do leave your contact number if on answerphone and someone WILL get back to you)it is only a small office.

Also may I suggest, you become a Member of COB, they will not only send you an informative booklet, they can also send upon request one for your Doctor.As a Member you will have access to so much more help, advice and support.

I notice cherrypie has replied, and would hope that other members may reply soon.
Do have a read through the COB website and also other threads on these forums, sadly we have to do a lot of research ourselves, so the more info you can gather, the more you can hopefully figure out some of your triggers.

It may help to keep a diary of your lifestyle foods drinks etc. as Diet in some cases can be a cause.

I am sorry I cannot give you an answer,to solve your discomfort, but as you realise we are all so different and react differently to others, making this dreadful dis-ease difficult to treat.

Do be reassured we are all here to listen and truly understand your distress, so do not feel you are on your own.

Kind regards, and do keep posting.


Posts: 1,131
Reply with quote  #3 
Welcome to these forums. You have found the right place to look for help. The Cystitis and Overactive Bladder Foundation can provide you with lots of help and advice.

Some starting points to help

1. Has your urine ever been analysed and bacteria found in it? I'm assuming you have been given 3-5 day courses of antibiotics each time which may have cleared away the infection but left you with symptoms. I suspect you have a low grade infection that has simply never cleared.

2. If the GP just dipsticks your urine ask for the sample to be sent off for analysis. Don't take antibiotics until the results come back. There is no point in putting you on an antibiotic if the bugs found are resistant to it. You might as well take smarties for all the good it will do.

3. To help yourself in the meantime, get some D Mannose powder (google it) and take 8 teaspoons a day in water when flaring or a management dose of 3-4 teaspoons. It clings to bacteria such as E. coli and flushes it from the bladder. Try not to pee after drinking it for an hour and take a glass each time you pee.

4. Do NOT drink cranberry juice. It is full of sugar which will feed bacteria and is way too acidic.

5. Look at your diet and lifestyle. Cut out caffeine, sugar, spicy food and tomatoes and citrus foods for the time being to see if this helps. Drink plain ph neutral water, nothing carbonated as carbonic acid is a bladder irritant. It sounds dull but you need to calm the inflammation in your bladder.

6. Wipe front to back always. Shower don't bath and no foam bath products in the bath or down below. And practice the bottle washing technique. A good book to get hold of is the Angela Kilmartin book about cystitis. Lots of lifestyle tips for managing this and her bottle washing technique.

7. To calm the stinging, use bicarbonate or baking soda in a glass. Much cheaper than over the counter sachets. Use 3-4 times a day to alkaline the urine. Obviously if you are own a low sodium diet, seek an alternative.

8. Finally consider joining COB. They send out a membership newsletter 3 times a year. Have a very active forum and have an advice line you can call Monday to Friday and full information packs are available on all bladder related topics plus an excellent website.


Posts: 15
Reply with quote  #4 
Thank you kate,
I am going to try and ring the helpline this afternoon once i have finished college if not i can ring tomorrow, ive eventually seen my doctor today and got myself a referal i am happy with whats being done so far. Thanks for the on going support x

Posts: 562
Reply with quote  #5 
Hello Stephmay

I have posted on the other thread where your message was also posted.

Posts: 1,902
Reply with quote  #6 
Thanks for replying Davids Mum
I will lock this thread as seems we have more replies to try and help stephmay in the other thread, and will stop confusion.

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