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inneedofhelp18

Registered: March 6, 2006
Posts: 66
Reply with quote  #1 

Hi i am really curios if anyone on the board is suffering with both conditions and if they know that it can be related to each other?????

tc

veronica

eyeswydeopen

Registered: Feb 11, 2006
Posts: 12
Reply with quote  #2 

Really?????
My thyroid gland died completly about 8 years ago. I dont produce any thyroid hormone at all. I am on 125mcgs of Thyroxine a day. How does it affect my bladder???? I didnt know there was a conection????
Lynne

Registered: Jan 22, 2004
Posts: 70
Reply with quote  #3 

Hi Veronica,

 

I have not talked with you before, and I live in the USA. First, Congratulations on your wedding! 

 

I am extremely interested in your thyroid bladder connection, as I believe that my thyroid disease is connected to all my bladder symptoms. 

 

This is very important topic! 

 

I have had a thyroid disease since I was a small child, and it is called hypothyroidism.  This disease occurs when there is too low a thyroid hormones in the body.  As a result, it causes many symptoms and I have made a list of my nearly 75 symptoms caused from having this disease.  It is my hope that soon Drs. will have the answers, and I believe that it will be the thyroid that is the cause of all the bladder misery we have been discussing on this site.

 

How does the thyroid cause this kind of bladder problems?  When I learned that I had hypothyroidism, I also learned that it had caused nerve damage thoughout my entire body.  I learned that this was all peripheral nerve damage causing the autonomic nerve damage,  sensory nerve damage and motor nerve damage.  My Dr. started giving me thyroid hormone medication to take daily.  Do you now take thyroid hormones?  Be sure you take your thyroid hormones daily to replace the hormones your body needs to feel well.  It all happens very slowly, but over time this can damage and destroy your health.

 

Thyroid disease is very common in women, and some men have it too.  It is very tragic when a little child has it and is never treated or treated incorrectly.  In my own case, I had the hypothyroidism as a small child. I was never treated, although I knew I was not well, and for years I was going to Drs. who could not diagnose my disease.  This happens very often to thyroid patients.  It seems that by the year 1973 they stopped teaching Drs. how to diagnose by symptoms and taught them to go by the thyroid blood tests.  Because of the Drs. not recognizing the symptoms and going only by the tests many are not diagnosed or treated correctly.  Some of these go on to develop many problems like constipation, migraine headaches, fatigue, sensitive to cold, many upper respiratory infections, poor wound healing, shortness of breath, weight gain or weight loss, brittle dry hair, eyebrow and eyelash loss, poor nails, dry flaky skin, callous skin on feet, dizzy spells, carpal tunnel syndrome, muscle and joint pains, easy bruising, leg cramps, painful heavy menstrual problems, infertility...I could go on for more but I will stop.

 

The good news is that when treated correctly you can return to good health.

 

Veronica, I would like you to tell us about your thyroid illness as I think this is very important in the cure of bladder symptoms.  Please come back and tell us more about your thyroid disease and treatments.

 

Veronica, here are some very excellent sites to look at and learn all about thyroid diseases and the difficulty in getting diagnosed and treated properly!

see:  http://www.bbc.co.uk/dna/actionnetwork/A9715287

 

I hope that you take the time to learn about thyroid disease and how it can cause bladder frequency and pains.  Another very good site is at

http://www.painful-bladder.org

 

My sincere warm wishes, Lynne

kathryn

Registered: Jan 24, 2006
Posts: 113
Reply with quote  #4 

Hello,

I find it really interesting about this connection with IC and thyroid as I looked up hyperthyroidism and had a lot of the symptoms. I mentioned it to my mum and found out than my Great Aunt has an overactive thyroid and that my nan also had an overactive thyroid and had to have an operation to remove part of her thyroid - then later in life (before she died) she had an underactive thyroid. I did go to the doc last year and he did blood tests to check my thyroid as my nuritionist recommended it and they came back ok. Though she recommended that I took my temperature and it was lower than they recommend 36.3C so I was taking kelp for a while.

Kathryn x

Lynne

Registered: Jan 22, 2004
Posts: 70
Reply with quote  #5 

Hi Katherine,

 

A family history of having thyroid diseases is very important as thyroid disease can be very genetic.  All thyroid diseases will end up with the patient being hypothyroid.

 

Katherine I think you may want to talk to the people on the forum at http://www.TPA-uk.org.uk  they have been helping others who may need help for their thyroid disease.  

 

Underactive thyroid disease has affected a large number in my family.  My Grandmother, Mother and her sister all have hypothyroidism.  Interestingly, my Mother and two sisters now have IC/Painful Bladder symptoms.  Now researchers at the University of Maryland are looking at our DNA, and other families too,  to try to identify a gene or genes that could be the cause.

 

In my own research I have learned that my thyroid disease affected the nerves in my body, and caused some damage over time.  This happened because nerves need oxygen and nutrients that come in the blood to keep nerves healthy.  Over a long time without thyroid hormone replacement my nerves were slowly being damaged.  Now with taking thyroid hormones my nerves have been healing, although very slowly.  The earlier the treatment with thyroid hormones the less damage and also the quicker recovery of the nerves.  Sensory nerves will fire off alot of pain signals as they heal.  The bladder and genital area, also the rectum has a large number of nerve endings that can cause much pain signals when they are damaged and then healing.  My Dr. says that my sensory nerves were damaged, these are the little nerves that are very delicate and are easily damaged.  They are the nerves that fire off pain sensations! 

 

Do take thyroid disease very seriously as it is kinda neglected, yet it can cause so much suffering when it is not diagnosed and treated!

 

I think this is a great forum.  Another favorite forum is http://www.stopthethyroidmadness.com 

 

my sincere wishes for you, Lynne

jecca

Registered: Sept 4, 2005
Posts: 46
Reply with quote  #6 
Do you really think thyroid could be linked to bladder problems? That's quite intreguing to me, because over the last 18 months when my bladder problems became 'permanent' i've lost almost 1 1/2 stone, despite doing less exercise and eating much more because i always seem to be hungry. I struggle to keep my weight over 9 stone (I'm 5ft 11"!!) even though i eat  man-portions of food! I often feel quite anxious too (subconscious stress maybe???), and have a constant urge to fidget all the time. If all this is linked to my problematic bladder, then i guess it wouldn't surprise me.
Lynne

Registered: Jan 22, 2004
Posts: 70
Reply with quote  #7 

Hi Jecca,

 

In my own case it was hypothyroidism that was the underlying cause. 

My advice for any who wonder if a thyroid disease is the cause they need to research this, and start by reading and listing symptoms.  This is very important.  The thyroid patient authority has a good symptom list for hypothyroidism.  You can search and find a list of the hyper symptoms.

 

Of course, everyone is different even with the same illness.  When you have an accurate list you have made then you can take all these to your Dr. and have the thyroid blood tests done. 

 

But I warn you in advance, these tests are not 100% accurate and many fail to show they are hypothyroid when in reality they learn over time that they have the disease.  Read about the faulty or rotten thyroid tests at http://www.thyroidtears.co.uk  and http://www.thyroideducation.com  and http://www.thyroiduk.org  

 

When I was tested I was extremely sick and yet my thyroid blood tests were borderline low.  My husband was with me and he had no symptoms at all, but he told the Dr. he felt tired too.  Surprise, Surprise, guess what????....Yes, it was my husband who had the very low thyroid.  My Dr. could not believe it, but the thyroid blood tests do not show just how sick you are, or do not show that you have a thyroid disease at all.  Some thyroid experts say that 1 in 5 have a thyroid disease.  Remember also, that all thyroid diseases will end in hypothyroidism( too little thyroid hormones).

 

My Drs. have explained that all my symptoms are a result of nerve damage and this is the cause of my bladder frequency/painful bladder.  Thyroid neuropathy affected my motor nerves, sensory nerves, and autonomic nerves and these are throughout my body.  This is the reason for constipation/IBS, shortness of breath, slow digestion of food, dry eyes, dry mouth, arithtic like pains throughout body and in joints, carpal tunnel syndrome in my hands and feet, sensitivity to cold, dry brittle hair, dry nails, dry skin, migraine headaches, slow thinking, plantar fasciitis/heel spur, nervous anxiety, depression, feelings of resentment, wanting to be solitary, no ambition, mental sluggishness, poor concentration, heavy painful menstrual periods with clots, seeing things out of corner of eyes...(well I could go on but you must make your own personal list, and take it to your Dr.).

 

Make sure that you get treated if you think you have a thyroid disease, because untreated it can slowly destroy you! 

 

Sincerely Lynne  

 

pollyana

Registered: Nov 28, 2005
Posts: 13
Reply with quote  #8 

Hi,  I hav'nt posted for a while.   I believe with me there is a conncection with my underactive thyroid and my bladder problem of about 15 years.  Nearly all the symptoms that Lynne has listed I have either got or had.  I have been taking thryroxine for about 2 years and as yet I am not on the correct dose, I am building up to the correct dosage very slowly as I react very badly to thyroxine, headache palputations and skin problems, but I  must say fingers crossed my bladder has improved, I am an only taking 50 mgs of thyroxine per day.  I also watch what I eat, no chocs or caffine wine etc. (boring).

 

I have just recently started to drink Soda Water as it contains nothing but Bicarbonate, it's a change from Hot or cold water and it mixes nicely with pineapple, my treat.

 

I know what every one means when they go to the docs or urologist and they make you feel as though you are mad, wasting their time put up with a go away, I gave up but that is what they want you to do I also paid and that is no better, it cost my husband thousands of pounds, he's brill and has put up with a lot.

 

I once asked by Endocrinologist if he thought that underactive thyroid problems could affect the bladder and he said "most certainly".  I think I have mentioned before on an earlier posting that just because your TSH and T4 levels come within the so called NHS guidelines that does'nt mean that you are not suffering from hypothyroidism, because if your thryoid is only slightly underactive it takes years for your body to become damaged, I was going into a coma before the docs would admit what my problem was. 

 

Take care everybody

 

Luv Pollyana 

pollyana

Registered: Nov 28, 2005
Posts: 13
Reply with quote  #9 

Hi,  I hav'nt posted for a while.   I believe with me there is a conncection with my underactive thyroid and my bladder problem of about 15 years.  Nearly all the symptoms that Lynne has listed I have either got or had.  I have been taking thryroxine for about 2 years and as yet I am not on the correct dose, I am building up to the correct dosage very slowly as I react very badly to thyroxine, headache palputations and skin problems, but I  must say fingers crossed my bladder has improved, I am an only taking 50 mgs of thyroxine per day.  I also watch what I eat, no chocs or caffine wine etc. (boring).

 

I have just recently started to drink Soda Water as it contains nothing but Bicarbonate, it's a change from Hot or cold water and it mixes nicely with pineapple, my treat.

 

I know what every one means when they go to the docs or urologist and they make you feel as though you are mad, wasting their time put up with a go away, I gave up but that is what they want you to do I also paid and that is no better, it cost my husband thousands of pounds, he's brill and has put up with a lot.

 

I once asked by Endocrinologist if he thought that underactive thyroid problems could affect the bladder and he said "most certainly".  I think I have mentioned before on an earlier posting that just because your TSH and T4 levels come within the so called NHS guidelines that does'nt mean that you are not suffering from hypothyroidism, because if your thryoid is only slightly underactive it takes years for your body to become damaged, I was going into a coma before the docs would admit what my problem was. 

 

Take care everybody

 

Luv Pollyana 

Lynne

Registered: Jan 22, 2004
Posts: 70
Reply with quote  #10 

Oh my! Dear Pollyanna,

 

Thankyou for taking the time to post your own experience.  This is the most important subject that women today could talk about, and this does affect women all over the world.  We can change the way we are treated and the way that hypothyroidism is treated.

 

Pollyanna, I'm wondering from what you say, that perhaps you are not on enough thyroid hormone.  From my own experience and that of others with hypothyroidism the Drs. often go by tests only and ignore all the symptoms and women end up suffering.  I'ts my opinion that you might do much better if your Drs. would change your medication to Armour thyroid hormone.  It used to be used in the UK for nearly 100 years.  Armour is a natural dessicated pig thyroid.  It seems that the story is that in the mid 1980's they decided to stop using pig thyroid in the UK.  I cannot remember why, but perhaps it was cheaper to use the newer synthetic thyroid, and to use the thyroid blood tests even thought the tests work poorly in diagnosing hypothyroidism.

 

You can get Armour thyroid hormone in the UK today.  Please go to the website  http://www.tpa-uk.org.uk  The good people on that site will help you with your thyroid problems and tell you how to get better treatment for underactive thyroid disease in the UK.  Go to that site and tell them about yourself and they know Drs. who can help.  You can feel better.  Once you are feeling better you may want to tell others.  They have presented a petition for better thyroid treatment and diagnosis.  Read about this and tell everyone about this.  There are thousands in the UK who are not well because they are not treating underactive thyroid disease or not diagnosing it correctly.

 

You are right that the lab tests give only numbers but not how you feel.  It is true that having underactive thyroid can cause bladder symptoms and it also allows women to have true bladder infections.

 

I also believe that this is what OAB/IC/PAINFUL BLADDER SYNDROME is and that millions and millions of women are suffering horribly and treated with cruel and inhumane treatments.  We can change this so women will suffer less and have good health again.

 

Yes, all those symptoms and many more are symptoms of hypothyroidism.  This happened to me and I went through over 50 years of incorrect treatment and incorrect diagnosis of my underlying disease.  Please research this before you decide if you have a thyroid disease.  Even if you do decide that you do not have an underactive thyroid disease, you will be more informed and someday you will help someone else who needs good thyroid diagnosis and good hormone treatment.

 

Pollyana, don't give up, I think you can feel better just by changing your thyroid hormones.  My sister went on Armour thyroid and in a few months her bladder symptoms were gone completely, and she never had any bladder symptoms again.  In my case I still have bladder frequency but I was much more severe to begin with.  My Dr. told me that the body has a wonderful way of healing and that one day my bladder symptoms will be gone.  I just keep taking my Armour thyroid and my nerves will heal, but slowly.

 

My warmest wishes for you Pollyana, from Lynne

inneedofhelp18

Registered: March 6, 2006
Posts: 66
Reply with quote  #11 

Well i am suprised by all the replies and i am very thankful cause right now i am feeling like a lost kid in a huge jungle...

the porblem with me is that i am on and off sick it feels like after every two three days i have strange kind of pain in a part of my body at times its my arms or legs or back and pelvic pain without any reason i am mostly tired constanly catching colds hard time swallowing suddenly i am very sensitive to cold i am mostly freezing which i didnt do few years back i used to put on very light cloths when it was freezing out side i am always depressed without reason andanxious .  since the age of 10 i havent been able to fall asleep so since the age of 15 i have been on low dose of sleeping pills, i have shaky hands a lot of times without any reason they shake and feel very weak . my periods have become irregular and lighter with clots i mean theyy have reduced by 80 90 % so its a big diffrence without any reason at the same time my bladder started to behave strangly went a year going back and forth to diffrent drs crying myself to sleep had done cystoscopy twice without any result took detrositul for 8 months without any result this was in sweden, basically at the end drs refused to see me cause they thaught i was making it up, last summer i went to india where blood test was done it didnt show clearly if i got hypothyroid but was pointing towards it and this was right after my marriage a week after maybe, i was then given parlodal 1/4 of the tbl was the dosage i took it for 2-3 weeks and my periods came on time but still very light now what i dont know if the periods came on time because i got married i wasnt sexually active before or it was just the medicine. I stopped taking the medicine because it caused headaches and the funny part is my bladder behaved for 5 months and my periods came on time as well .suddenly last month i noticed my periods much lighter then before and my bladder started to missbehave again i feel pressure all the time and strange feeling of wanting to go to the loo without frequency or urgency or pain or burning. I feel pain down there after intercourse and pain in (i am not sure what its called but maybe vaginal lips  i am very very sorry for the discription) i didnt feel all this a month or two months ago but the feeling goes away afetr na hour or two apart from that suddenly i can start feeling short of breath its a very discusting feeling this happens even when i am outside i feel there is no oxygen. apart from that last year i went up in weight dramatically from 48 kgs to 60 in 2 months, and i have been unable to go down despite excerxise and dieting.. but on the same hand i am not a very sick person if my bladder problem gets solved and my periods i am sure i can live without problem with the other symptoms that i got. sorry for such a long letter.

inneedofhelp18

Registered: March 6, 2006
Posts: 66
Reply with quote  #12 

what is the normal range of tsh t3 t4???? i will write my result tommorow...

pollyana

Registered: Nov 28, 2005
Posts: 13
Reply with quote  #13 

Hi, Veronica

 

If you search under Thyroid Ranges you will find various sites that will explain in detail TSH T4 and T3 levels, and how they are measured, I think I read somewhere that the level for TSH was going tobe reduced this should have been in 2003  (US only), but here in the UK they are trying to put the range higher, this will save money as thyroxine prescriptions in UK are free??

 

Pollyana

Lynne

Registered: Jan 22, 2004
Posts: 70
Reply with quote  #14 
Hi all of you folks who are needing help with your thyroid levels. Please read what your Dr. Skinner says on his site http://www.thyroideducation.com Please also go to the site http://www.tpa-uk.org.uk and the good folks on that site can help explain how to get tested for thyroid problems and where you can get help and please support them in getting thyroid treatments better in the UK. They need your support so that thousands who have thyroid diseases can get the propper treatments. Please help them get Armour thyroid back in the UK for treatment of hypothyroidism. It used to be available to all in the UK yet sometime in the mid 80's they stopped using it, and it is no longer paid for in the UK nationel health plan. They have lowered the tsh now in the states so that more people are now considered sick with hypothyroidism. The problem is that so many Drs. have not kept up with the change and they say that more than 50 million in the US have a thyroid disease and they still are not treated. Yes, it is true that hypothyroidism can cause bladder symptoms, and increased bladder infections or both. It may be the cause of overactive bladder in women and some men. They say that 33 million in the US have overactive bladders and many of these may recover with use of thyroid hormones. Realize that the thyroid blood tests are not 100% perfec When the thyroid tests were developed they stopped teaching Drs. how to diagnose by symptoms alone. This happened about 1973. They taught Drs. to go by the tsh test alone, and we need to change this because for many this test fails to prove how hypothyroid a person is and leaves you with all the symptoms of hypothyroidism, and when left untreated it can slowly destroy you. It was also in the early 70's when the began using the T4 only synthetic thyroid medications. Following shortly the new diseases of chronic fatigue and fibromyalgia appeared as never before. These also may go away nicely when treated with the natural dessicated pig thyroid hormome, Armour is the best, I hear. The reason the Armour pig thyroid works so well is that it has both important hormones, T4 and T3 and some need the T3 as there body has trouble making the T4 convert to the usable and stronger T3. This is why some never improve on Synthetic T4 alone. Go to the site and sign the petition about getting Armour thyroid back in the UK. Sincerely Lynne My feelings are, "YOU CAN TAKE AWAY MY ARMOUR THYROID WHEN YOU PRY IT FROM MY COLD DEAD FINGERS!"
inneedofhelp18

Registered: March 6, 2006
Posts: 66
Reply with quote  #15 

well thanx a lot for the replies again i have got a appointment for monday were i will show the result to the dr i had my dr send me the copy of blood test from india i am so scared i know i will be sent home without any help... just wondering what medicine is good in uk as armour is not available here which one r u on???

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