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Daisykins

Registered: Dec 25, 2008
Posts: 5
Reply with quote  #1 
My Doctor has referred me to Urology as I have had 2 full blown UTIs in 3 months and have had irritation the past 3 weeks which I thought would lead to an infection but my urine results and chlamydia results have tested negative.

My appointment is on 14 January and I am very nervous. Could someone please talk me through what happens at the initial consulation? My period is due around that time and I am concerned they will want to do an internal of some kind. I am desperate for the consultation and 14 January was the earliest available and don't really want to move it, but if they will insist on an internal then I don't wish to suffer the indignity during my period? Could someone tell me step by step what happens at the consultation?

Oh, and my latest symptoms are occasional burning (but not when passing urine, only inbetween), the feeling that I need a wee when in fact I don't, or feeling like I could pee a waterfall but only a trickle comes. Then within 5 minutes I feel a need the loo again.  I am taking CYSTOPURIN which really does help (I was peeing every 20 minutes but can now go up to an hour and half which is great) but it is very expensive at over £4 per box and it only lasts 2 days. I'm also taking D-Mannose tablets, and have just started taking Bee Propolis too in desperation. I am drinking loads of water, several litres a day.

Thank you to anyone who responds.

Daisykins

Registered: Dec 25, 2008
Posts: 5
Reply with quote  #2 
Ps... I should mention perhaps that whilst my urine sample tested negative, it did show 'mild inflamation'.
Gig

Registered: July 10, 2007
Posts: 518
Reply with quote  #3 
You can save on buying OTC remedies by taking a quarter of a teaspoon of bicarb of soda in water- a glassful- this will help make your urine less acidic and help the burning etc.  Do not do this if you have high blood pressure.
Are you cutting out tea, coffee, fruit juice and alcohol?  You might find it helps just to drink water or very weak herbal teas.

When you see your dr, they will take a  case history.  it is unlikely they would examine you if you have a period, and you can refuse if they want to and you aren't happy- it's your body!  They will possibly book you in for investigations at another time.

It is possible that your bladder is irritated by the infections and you might be able to make it settle by following the IC diet, which leaves out all possible irritating food and drink. see http://www.ic-network.com - diet/food.



StephsMum

Registered: Nov 13, 2007
Posts: 248
Reply with quote  #4 
Its quite unusual for Urologists to go where Gynaecologists usually "do their stuff".  You may well be asked to lie flat, though, (fully clothed!) so your tummy can be felt and you will be able to say if you are tender, and you can point to any pain you have in your pelvic area.
Dont forget that 1 in 4 women at any one time is "on" and that will include the nurses and any female doctors! PLEASE dont feel embarressed! even though thats often easier said than done.
Suggest you gather your recollections of your symptoms and a time scale so you can write it down to take with you.  Even though your GP will have said "2 infections in 3 months," you may well have had lots of other pain and frequency etc over more time.

Sometimes you may get seen by the Urology nurse too, she may take more information from you.  If you are worried/shy about talking to your Consultant, you can ask your nurse anything, they are usually excellent.
CaroleC

Registered: Feb 8, 2008
Posts: 91
Reply with quote  #5 
Before I was diagnosed I went to see several GPs and three specialists over about 3 months.  Although I am not really taken to writing things down, I did, so had a complete record of the symtoms, timing and investigations and treatment that was tried. I took this along to appointments as it got very confusing as I was seeing a gynae, uro and a specialist in vulval conditions.

This meant I could give them a complete picture and several times my printed notes got photocopied! Looking back I realise how lucky I was to get to the bottom of it all, literally!!  I had my nether regions examined so many times it got to be routine.  They were all very careful and sensitive to my feelings so  just say if you are unhappy and don't wish to be examined. 

Try to write down what they say, I used to take a notebook in and ask them to repeat or spell anything I didn't quite understand.  I found they were more than happy to repeat things and two of them drew me diagrams in my notebook to help.

I am sure it will be a relief to see a uro so good luck and keep us posted

Carole
Daisykins

Registered: Dec 25, 2008
Posts: 5
Reply with quote  #6 
Thank you ladies for your advice - I have been checking out the IC DIET and see that sweeteners can be big irritants to the bladder. I used to be a water junkie... it was all I drank. But in recent months I started having No Added Sugar squash and now get through 3 bottles a week and of course it contains sweeteners. I am going to cut out the squash and see if it makes a difference as my water infections have occurred since I introduced squash in to my diet although I was having it for about 3 or 4 months before my first infection. The only other thing on the problematic list which I consume regularly is peanut butter - well, I'm a little confused as it says peanut oil is ok, but peanuts are not... doesn't actually mention peanut butter.

My diet is generally very bland as I have IBS and I find it's easier to control with mostly natural products, with no added preservatives, herbs or spices, and so I'm not sure there's much more I can amend to my diet, but certainly the sweeteners may be a problem. I have just tipped my squash bottles down the sink and I'll go back to tap water and on my next main grocery shop I'll buy bottled water.

I really cannot understand otherwise why I would suddenly be getting water infections as I have had no lifestyle changes, or changes to my diet other than the squash.

The Cystopurin I have been taking with helpful results does not contain Bicarbonate of Soda, instead the main ingredient is Potassium Citrate BP. Does anyone know an alternative for this? I did try another sachet brand which possibly contained BOS but I had no relief from it.

Thanks for your continued help.



Reply with quote  #7 

Dear Sir,

 

I am 42 years old, height 5 feet 3 inch and 120 Lbs weight, non hypertensive

non Diabetic and no other problem.

 

07 months back Hysterectomy was done for multiple fibroid. After hysterectomy fistula about 01 cm was developed at vault, which was repaired per vagina 02 months back. I again become incontinent about 06 weeks after repair, in spite of all precautions.Doctor examines me by speculum & then by dye test and confirmed that it was a small fistula, may be 1 to 2 mm.  (Not seen by naked eye)

 

I was again catheterized for one week but remained incontinent in squatting position. So catheter was removed. Now question is that:

  1. Why incontinent in squatting position in spite of catheterized.
  2. Can this fistula heal with out surgery?
  3. When my next surgery should be planned & by which route (Per abdomen or per vagina)
  4. What precaution should I take that the size of fistula would not increase? (Previous fistula increases from 03 mm after surgery to more than 01 cm at 04 months after hysterectomy despite all precaution like avoiding intercourse etc.

 

 

Gig

Registered: July 10, 2007
Posts: 518
Reply with quote  #8 
Faz- I am sorry to hear you are having these problem, but I don't know if anyone here can offer any help- your problem sounds as if it needs to be sorted out by an expert gynae who deals with these things.

I hope you can find a dr who can help you.

Where do you live?

maz451

Registered: Feb 16, 2008
Posts: 696
Reply with quote  #9 

She lives in Pakistan Gig! I don't think this is the right site for her to seek help. Faz - you need to find out if you have any support agencies in your country as we cannot really comment from here on your particular problem which is gynaecological rather than urological. M.

BlissC

Registered: Dec 5, 2008
Posts: 125
Reply with quote  #10 
Quote:
Originally Posted by Daisykins
My appointment is on 14 January and I am very nervous. Could someone please talk me through what happens at the initial consulation? My period is due around that time and I am concerned they will want to do an internal of some kind. I am desperate for the consultation and 14 January was the earliest available and don't really want to move it, but if they will insist on an internal then I don't wish to suffer the indignity during my period?


Quote:
Originally Posted by StephsMum
Its quite unusual for Urologists to go where Gynaecologists usually "do their stuff".  You may well be asked to lie flat, though, (fully clothed!) so your tummy can be felt and you will be able to say if you are tender, and you can point to any pain you have in your pelvic area. Dont forget that 1 in 4 women at any one time is "on" and that will include the nurses and any female doctors! PLEASE dont feel embarressed! even though thats often easier said than done.


As others have said, it's unusual for a urologist to do any kind of examination, apart from maybe pressing your tummy, on a first visit. Most of the time usually is spent going through your symptoms and medical history, and discussing what treatments or investigations you might need. Usually if you need a cystoscopy or anything, a separate appointment's booked for that. If I remember rightly, last time I had one (about 8 years ago now), my appointment letter said it didn't matter whether you had your period, but that if you wanted to rearrange it because of it that was fine.

The staff are very used to such complication though working in the field they do, and all the urology staff I've met, doctors and nurses, have been very sensitive and are obviously used to working with embarrassing situations. That said, earlier this year when my GP thought my problems were gynaecological rather than urological, he arranged for me to have an ultrasound at the local hospital. The appointment letter did say that if they couldn't see the pelvic organs well enough using the external ultrasound that they might have to do a trans-vaginal ultrasound using a small probe, and obviously I was hoping that they'd be fine with just the normal ultrasound!

Now unfortunately they couldn't see enough from the external ultrasound, so decided they needed to do the trans-vaginal ultrasound instead. My major problem though was that to save me two trips to the hospital, my GP had thoughtfully arranged for me to have an MRI scan I needed for something else the same morning - MRI scan first, then the ultrasound. That unfortunately meant that the litre of water I had to drink 20 minutes before the ultrsound...I had to have before the MRI scan, because my two appointments were literally back to back. So there I was, throughout my scan (where you have to keep incredibly still) and the first part of the ultrasound desperately wanting them to hurry up and finish, because my bladder was protesting greatly. For the trans-vaginal ultrasound though, the bladder needs to be empty...and you've never seen me move so fast to get to the loo!

It was only when I got to the loo though that I discovered my period had started! So of course with bladder now thankfully empty I went back to the ultrasound room and announced that we had a major problem. Both the radiographer and nurse though were fine about it, and said they could either book me another appointment for the scan in a week or so's time, or we could go ahead and do it, as it wasn't a problem technically in doing the ultrasound, and it didn't bother them at all. As I was already wearing the lovely fashionable hospital gown, and it costs me about £10 each visit to the hospital in taxi fares, I decided as I was there I might as well go ahead with it, and did my usual as I do during any procedure and just chatted with the nurse.

All of that story's got absolutely nothing to do with visiting a urologist, but I thought I'd just share that to show that usually they're very used to such complications and how to deal sensitively with them, and as Gig said, in the unlikely event the urologist wants to do anything more than just talk about your symptoms etc., just ask if you can have a separate appointment for any examinations etc. you might need. They're also very used to patients ringing to re-arrange appointments due to periods when they're working in gynaecology and urology, so don't worry about having to reschedule appointments if necessary.
Gig

Registered: July 10, 2007
Posts: 518
Reply with quote  #11 
I think you should ask before hand what will happen- you could phone up.


Sue45

Registered: Jan 9, 2008
Posts: 222
Reply with quote  #12 

Quote:
Originally Posted by Daisykins


The Cystopurin I have been taking with helpful results does not contain Bicarbonate of Soda, instead the main ingredient is Potassium Citrate BP. Does anyone know an alternative for this? I did try another sachet brand which possibly contained BOS but I had no relief from it.

Thanks for your continued help.


You can also get sodium citrate sachets which alkilinise the urine.  I get Cystocalm from Poundland which is far cheaper than Cystopurin.  Tesco and Morrisons also do their own brands for a little over £1.
If you favour potassium citrate it can be bought from any pharmacy in liquid form and added to water or any other drink you can tolerate, and this would also work out cheaper for you.
Daisykins

Registered: Dec 25, 2008
Posts: 5
Reply with quote  #13 
Thank you everyone for your insights and advise and reassurances. I have good news - I removed artificial sweetener from my diet, well, that is, I took diet squash (3 bottles per week) out of my diet. The following day my symptoms were much reduced, and since then I have barely any symptoms at all. Just a little pain (almost nothing) when sitting or laying in certain positions. I'm wondering whether my bladder is still healing for being irritated so long by artificial sweetener and that this mild pain will go naturally. Has anyone else had this experience?

My urology appt is 14 Jan. I will keep it anyhow as a precaution.

StephsMum

Registered: Nov 13, 2007
Posts: 248
Reply with quote  #14 

Maybe not only the artificial sweetner but also the fruit that makes the squash!  Most IC-ers cant tolerate any fruit or fruit flavour except pears or blueberries.

Daisykins

Registered: Dec 25, 2008
Posts: 5
Reply with quote  #15 
Well, I have been having bananas all week with no problem. Have just had some melon, have also had some fruit teas today and a lemon+barley squash. I have had no pain today at all, so if I do tomorrow, you've already given me the answer - so thanks!!
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