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melmul2

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Posts: 72
Reply with quote  #1 
Hey all I've been having symptoms of ic since February of this year
I was diagnosed with lupus in June this symptoms started while I was in hospital with a very bad lupus flare up
For months my kidney doc tested my urine but no infection he finally referred me to a urologist
Who I still haven't seen
My symptoms have got worse last few weeks and it's getting me very depressed
Booked acupuncture this weekend
Feeling hopeful about that
As you can imagine I've been left in the dark about this so any tips or advise is very welcome

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melissa mulhern
Lindilou

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Posts: 122
Reply with quote  #2 
I have never had acupuncture but my husband has and swears by it.  Good luck melmul2
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melmul2

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Posts: 72
Reply with quote  #3 
Yeah I have to say I've read some positive reviews about it
So kinda excited

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melissa mulhern
otty

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Posts: 44
Reply with quote  #4 
Hi I have tried lots of things to help me with IC and I found acupuncture to be fantastic I attend my local hospital and the physiotherapist carries out the acupuncture. I have the needles in my left side of my stomach and also in both of my legs. I have been in so much pain prior to having the acupuncture and once the treatment completed my psin went.
I have acupuncture every two weeks I also find going to the swimming baths also help with the pain. Good luck
melmul2

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Posts: 72
Reply with quote  #5 
Thank you so much for the reply
Even more hopeful now

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melissa mulhern
melmul2

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Reply with quote  #6 
Had the acupuncture done yesterday still in pain, I'm getting it done tomorrow again
I'm really hoping that it may take a few sessions for me

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melissa mulhern
vallee

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Posts: 20
Reply with quote  #7 
are you having this on the NHS ? the treatment I am having is not working so wondered about this.
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vallee
melmul2

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Posts: 72
Reply with quote  #8 
No I've not even seen a urologist yet this is going on since February, but then my kidney doc didn't refer to me until June
I'm paying for it myself [frown] I couldn't wait on the nhs for that either

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melissa mulhern
vallee

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Posts: 20
Reply with quote  #9 
Know what you mean about the NHS its been over a year since I went to the doc and finally got the tests and am now having the treatment.
I was sort of diagnosed about 40 years ago but nothing was done, now its really bad.
Come on researchers find out what's causing it.

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vallee
melmul2

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Posts: 72
Reply with quote  #10 
It's a bloody joke I just started that prelief a few days ago and I found a bit of relief
Out a fortune buying stuff from America
There never seems to be many success stories on this that's what scares the hell out of me

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melissa mulhern
vallee

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Posts: 20
Reply with quote  #11 
it is worrying when women are having their bladders removed as its so painful.
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vallee
melmul2

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Posts: 72
Reply with quote  #12 
Quote:
Originally Posted by vallee
it is worrying when women are having their bladders removed as its so painful.

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melissa mulhern
melmul2

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Posts: 72
Reply with quote  #13 
I just got the Atrax from my gp I've read this may work
Have you heard about a broth test? I've read about it on the American site

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melissa mulhern
ModeratorKate

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Posts: 1,857
Reply with quote  #14 
"Have you heard about a broth test?"

See this link....


http://cobf.websitetoolbox.com/search?searchid=38579877

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otty

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Posts: 44
Reply with quote  #15 
Hi I am having acupuncture on nhs but have applied via go to cig for funding to pay the hospital for my acupuncture as hospital no funds to continue long term Broth test see professor ML who believes that this is the correct test for IC as the test nhs carry out agar only shows up 75per cent iof infections I also attend a support grp in the hospital which is a life line. Good luck to all survivors

Edited By Mod No names please, also note BIOFILM Forum relating to Prof latest info
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