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Jude6

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Reply with quote  #1 
I have an appointment with the professor next week after experiencing what I can only describe as the worst flare up of my life! Thank god it seems to be calming down now but i'm worried because it's not at it's peak the professor won't see as many white blood cells etc as have been apparent during the peak of my flare. Will the professor treat based on previous patterns and symptoms and not just on current active symptoms? I seem to have flare ups 3 times a year lasting approx 3 - 4 weeks at a time and more often than not my urine samples are negative, I believe I have a biofilm infection as this has been going on for 15 years.
Moderatorsusan

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Reply with quote  #2 
Good news you are seeing him.  Please do not worry about the fact that your bladder may be calm and you have few symptoms.  Remember he is looking for white blood cells and epithelial cells when he examines your urine not bacteria and even one white blood cell to him is the sign of infection.

Even if symptoms and signs are minimal you will be offered treatment based on the description of your previous and ongoing symptoms and bladder history which it is then up to you to decide if you wish to follow. Please don't think you are alone in what you have experienced, the majority of patients seeing him are there because their urine samples have been returned negative in terms of bacterial identification over many years leaving them dealing with untreated or mismanaged infections.

Good luck with your appointment and I wish you better health soon. 


Jude6

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Reply with quote  #3 
Thank you so much for your reply that puts my mind at rest [smile]
barbie

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Reply with quote  #4 
I was also worried when I first saw the Prof in October 2014, thinking at the time that I had no symptoms.  He immediately identified an infection that I didn't know was present and treatment began immediately.  To cut a long story short I am now off an antibiotics but taking Hiprex and this works well for me.

Wishing you all the best,
Jude6

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Reply with quote  #5 
Thank you and congratulations on your successful treatment
Jaycifer

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Reply with quote  #6 
I wonder if you could explain how HIPREX is used?
Did you have months of eg Cipro and then move on the HIPREX? or both at the same time??
I would be VERY grateful for this information as I am seeing the Prof in April [ taken months to get an appointment ].

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Jacqueline de Marigny
barbie

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Reply with quote  #7 
The Prof put me on Hiprex in addition to the antibiotics and I continued taking the two lots together.  

At the beginning of 2017 I developed some gastric trouble which I blamed on the Cefalexin (not guilty as it turned out, the gastric problem was entirely unrelated so I won't bore you with that) so I stopped taking the Cef immediately but continued with the Hiprex + vit C.  I have managed to remain symptom free since then apart from a brief spell last autumn when there was a problem with the supply of Hiprex; I had to do without them for a while and after just 10 days the nasty old symptoms started to recur, so it was antibiotics again!  Fortunately the supply has resumed so I'm back on track again.
Moderatorsusan

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Reply with quote  #8 
Methenamine Hipurate (or Hiprex) is a urinary antibacterial. It is not an antibiotic. It works by essentially turning to formaldehyde in the bladder and prevents pathogenic bacteria from attaching and developing new colonies of infection on or in the bladder wall.

It’s a very old medication which fell out of usage for a while but Prof is seeing excellent results on it.

Hiprex works best in an acidic environment thus activating the key ingredient. You can take it with Vit C if you wish. It is to be avoided alongside alkalising agents such as bicarb or OTC cystitis remedies as it renders its benefits ineffective. It’s very much a marmite drug. Some are fine on it, for others it can cause burning pain and increased frequency and Prof recognises that for some of his patients it is not appropriate.

It can be prescribed alongside antibiotics although Prof is not a fan of Cipro as its a broad spectrum ab preferring to use narrow spectrum antibiotics such as Cephelexin, Nitrofurantoin, Trimethoprim, Oxytetracyline or Azythromycin at the appropriate dosage and strength to manage and reduce symptoms.

Prof will explain all of this to you when you see him.

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