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maryellen

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Reply with quote  #1 
Has anyone been prescribed the latest drug for OAB called Betmiga (mirabegron). Apparently it is a beta3-adrenoceptor agonist and works in a different way to the anti-muscularinics such as Ditropan. My consultant has prescribed a 25mg daily dose but as yet (started 4 weeks ago) it is not nearly as effective as Ditropan so I am wondering if he should have started me on the 50mg dose. It is a very new drug and I would like to hear from anyone else who has been prescribed it.
CQ84

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Reply with quote  #2 
Hi Maryellen, I have been prescribed them but haven't started taking them yet. I'm doing a diary to show the differences I have from antibiotics, no tablets and these new ones. Having a flare up after my cystoscopy and biopsy last Thursday so need to deal with that.

My consultant has prescribed me with 50mg one per day and I've always been told take them on a night, is that what you do? He also said they an take 6-8 weeks to kick in.

Be interested to see how you get on and I'm going to start mine next week so will keep you posted.

Caroline.

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ModeratorKate

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Reply with quote  #3 
Hello

If you are both members of COB the Summer edition of 'Wee Ray of Hope ' is now in the post system and shortly will arrive on your doorstep.

Again this edition is packed with so much  research and good information.

There is a Q and A on this drug, and it would appear that as it is still new and not a lot of feed back yet, it would appear to have less side effects than long standing drugs,and may help with the Dry mouth and constipation often found when using some of the others.

Do keep us posted on your journey with this drug and more importantly your health,and hope this maybe the start of easing some of your symptoms.

CQ84,that is always such a good idea to keep a Diary,as when we are so troubled it is so easy to forget.

Kind regards
Kate


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CQ84

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Reply with quote  #4 
Hi Kate,

Thank you for the reply, I become a member last September/October and I don't receive anything at my home address? I got my "I can't wait card" and that's it.. Have I done something incorrectly?

I have to say I have found this website a blessing as when I'm at the end of my tether its good to chat to people who understand what you're going through, its so hard for friends/family/colleagues to just get it of you know what I mean.

I'm hoping the diary may show me a pattern or at least let me remember the bad times when I see my consultant because at times I just feel it all rolls into one. My diary is very in depth from food/fluids/activity and intimacy. My new consultant thinks its a good idea.. Hoping he can help with making it more manageable as by day it gets worse and I'm just turning 29 next week.

I'm staying positive and won't let this beat me!

Caroline x

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ModeratorKate

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Reply with quote  #5 
Hello Caroline.
Re membership I will query with Office, but you should have received a welcome pack when you joined, and then receive the quarterly Wee Ray of Hope,

If I could also suggest that you contact them yourself, in case they have incorrect information held for you.
Advice Line: Tel: 0121 702 0820


Do keep us updated,

Kind regards
Kate

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CQ84

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Reply with quote  #6 
Thanks Kate, ill give them a call today. Maybe I didn't get round to doing it in the end.. Either way ill get it sorted.

Thank you for the advice.

Caroline

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Sel

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Posts: 162
Reply with quote  #7 
Betmiga won't be available where I live until the Autumn. Have spoken to my uro about it, he's keen on me trying it out. If it is better taken at night I have to ask if I can take it with Diazepam.
Looking very much forward to receiving the next issue of A Wee Ray of Hope. 

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CQ84

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Reply with quote  #8 
Hi Sel,

I'm starting my tablets today but will take them at night before I go to bed, my urologist has always advised me to take the tablets at night as it stays in the body longer, no harm in you experimenting, if it doesn't work go back to what you're doing. I took antibiotics for nearly a year at night and found it gave me some relief. My urologists have always told me to experiment on when to take them to see what works best for me.

Ill keep you all posted with how I get on with these tablets, none of the others have worked so fingers crossed.

I hope it helps and you find some relief.

Caroline

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Sel

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Reply with quote  #9 
Thank you for keeping us posted Caroline, I really hope it works.
Will you take it on an empty or full stomach?

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CQ84

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Reply with quote  #10 
Hi Sel,

I always take mine around 10-10:30pm.

How you feeling?

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Sel

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Reply with quote  #11 
Quote:
Originally Posted by CQ84
Hi Sel, I always take mine around 10-10:30pm. How you feeling?


Hi Caroline,

Hence, I assume you take it on a empty stomach. Despite the fact I protect my stomach with "Esomeprazolo" (I am sure it'll be a similar name in English) I have to take things on a full stomach.

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Sel

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Reply with quote  #12 

Have just looked it up, it can be taken either on an empty or full stomach. Phew ...!


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maryellen

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Reply with quote  #13 
Hi Caroline,

I took Betmiga 25mg for 4 weeks and my OAB was poorly controlled compared to Ditropan. Anyway, the chemist could not get anymore straight away as the supplier was out of stock so I went back on to ditropan and straight away the symptoms improved. In the mean time I saw my GP and he agreed that I could start taking 50mg Betmiga as soon as the chemist could get them. I take it last thing at night and up to now (it's only been 6 days) they are giving much better control but still not quite as good as ditropan but then it's still early days. The big plus for me is that the side effects are less. I have no dry mouth, although I still have problems with constipation, but mainly I can now tolerate heat much better. When I was on ditropan I could not play tennis or go out for a walk in the countryside on even a moderately warm day as I would just get too hot but 3 days ago we went for a walk and the temperature was around 23 degrees and I had no problem.
I'll keep you posted as to how I get on.

Brenda
lou49

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Posts: 8
Reply with quote  #14 
Just wanted to say hello to everyone.  I've recently joined this forum and this is my first posting.

Anyway, was very interested to see this thread, as I had a cystoscopy yesterday and my urologist has suggested I try this.  I'm glad to see someone else's experiences as it's a newish drug.  I have to collect the first two weeks tomorrow from the hospital and then get the rest from my GP.  After having had the cystoscopy, bladder and kidney scans, and urodynamics at the beginning, it seems that there's nothing untoward.  I was on Vesicare for a while - it helped a bit at beginning but then didn't make much difference.  I have IBS and it definitely did a number on my digestion, which I didn't like!

My starting dose will be 50mg.  Most grateful for the tips to take at night and wait a few weeks before it (hopefully) kicks in! Thanks!

Louise

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Nan

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Posts: 1
Reply with quote  #15 
Hi!

I was given Betmiga after Vesicare and other similar drugs failed to work. Initially I was given the 25mg dose and it had no effect and no terrible side effects. When I went for a cystoscopy the urologist said they should have kicked in within 72 hours and I should be on the 50mg dose. This made me feel unwell in the night - vivid dreams, difficulty sleeping - not helped by the increased visits to the toilet! I stopped taking them after 10 days as they did not help my symptoms (OAB). I've yet to confess to my doctor! By the way, I took them with my evening meal -about 6.30pm.

Can anyone suggest an over-the-counter painkiller which helps with bladder pain? It's my worst symptom.

Also, does anyone know whether OAB symptoms ever go away, or is this something I have to live with?

thanks

Nan
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