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maryellen

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Posts: 7
Reply with quote  #31 
Hi,

Saw my consultant yesterday and he thinks I should give 50mg Betmiga a longer trial so I will be going back on this soon. Let you know after a month if it works.
Sel

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Posts: 162
Reply with quote  #32 

Hi Everyone,

Have been unable to start Betmiga, due not to  one but two BC bouts. I am not risking it, not for the time being.
Hope it is working for some of you.


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Suffers from IC, BC and overactive bladder.
Sel

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Posts: 162
Reply with quote  #33 
Any update anyone?

Despite urone test was negative (perhaps urine still too diluted) during Xmas have had UTI symptoms, somehow, and luckily, so far  managed to keep them under control with D-Mannose and drinking as much as water as possible despite gastritis symptoms worsening. Was able to speak to uro over the phone, he suggested that despite this I take Betmiga, one 50 mg every other day, that according to him should unable me to hold D-Mannose in for longer as it would calm frequency, at least within a week (!?) I am too scared to try it out while I have UTI symptoms and during the festive season when my GP  isn't available and lab is closed, and also due to bad gastritis.

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Suffers from IC, BC and overactive bladder.
Angharad123

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Posts: 15
Reply with quote  #34 
Hello
I have just joined and posted on the meet and greet thread but wanted to add my comments here on Betmiga. For me it has been a miracle drug. I take it at night and it has stopped me going to the loo 3 times a night and is really helping with the pressure and urgency. I had problems in getting my GP to prescribe it at first as it is more expensive, but so far ( 1 month in) I have experienced no side effects at all.
Nothing I have tried in my search for relief from IC and its associated symptoms has helped as much.
Good luck and it might just be worth a try for you too..!
Sel

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Posts: 162
Reply with quote  #35 
Hi Angharad! Thanks for your post, it is always encouraging and uplifting to read stories like yours.  
I have also read your post on the "Meet and greet" thread. We are the same age.  May I ask you how long you have been having bladder problems for?
I have been on the IC diet for a long time, and as far as pain goes, and to some extent frequency too, it makes a difference, I don't always follow it to the letter, but there are things I would not even dream of having  again, such as citrus fruit, coffee, spices and so on ...
It is amazing Betmiga made such a difference in such a short period of time!
No doubts the cocktail of strong antibiotics you were put on for six weeks made a big contribution too to your improvement. May I ask how long ago you stopped taking it?
I am sure other members would be very interested in reading more about your treatments, if it is OK with you perhaps you could start a thread  with your orginal "Meet and greet post" on  one of the other forums on the board. It would be more visible.
Thank you again. Your contribution is very much appreciated.[smile]


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Suffers from IC, BC and overactive bladder.
Angharad123

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Posts: 15
Reply with quote  #36 
Hi
Yes that's fine.
I realise that looking back I have had bad bladder issues for well over 10 years - with real severity in the last 18 months. I am sure that the onset of menopause hasn't helped.
I had my cystoscopy / polyp removal at the beginning of August, took the 6 week cocktail of strong antibiotics and felt much better than I had for years but the infection came back 10 days later so I went on another 6 week course. I was on then on cefalexin as a low dose precautionary measure and this all helped with the pain but I still had pressure, discomfort and some pain until the miracle that was Betmiga was prescribed in mid November 2013. I am also still taking the low dose cefalexin for the next 3 months at the same time.
I honestly think that I wouldn't have had such good results if I wasn't so strict with the diet. Over Xmas I discovered I can tolerate half a glass of wine but 1 satsuma sent me back over the edge for a full day on the pain front! The urgency though is almost completely gone.
Here's to a happy and healthy new year for us all!
Sel

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Posts: 162
Reply with quote  #37 
Hi Angharad,

Thanks for your reply. My bladder problems started over 30 years ago, and with the perimenopause symptoms have taken a turn for the worse, UTIs have became more frequent, often urineculture (the standard one, haven't had a Broth one yet but planning to) is negative but the symptoms are all there. Frequency has hit the roof! You obvioulsy have found a combination of things that work. Do keep up posted on your progress. Wishes of a happy and healthy new year to you too.

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Suffers from IC, BC and overactive bladder.
ferrit

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Posts: 1
Reply with quote  #38 
tinybevy

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Posts: 13
Reply with quote  #39 
Hi I currently take 50mg, it helps a little bit for me (due to have botox soon) but it does give me nightmares.  These have lessened in horridness over time though.
SJ2271

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Posts: 48
Reply with quote  #40 
Has anyone else had side effects from taking this?
Griffin

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Posts: 50
Reply with quote  #41 
This thread is an old one but seems to have most posts about Betmiga.

I have been prescribed 25mg tablet once a day for frequency which I shall be starting tonight. I am a little concerned that everyone who has posted on this thread says they take 50 mg.

I am wondering if anyone here takes 25 mg with success?

I am also wondering, from something someone said, if once you start on it, you need to stay on it, or the old symptoms come back worse than before you started.
cherrypie

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Posts: 51
Reply with quote  #42 
I am pretty new to this site although I did join a few months ago. Unfortunately soon after joining we had a bereavement in our family and my use of this site was shelved along with the consideration of treatments for my condition, whatever that is. The jury still seems to be out on that one. I was prescribed Betmiga a couple of months ago following my first cystoscopy. I took 25mg a day for the first ten days then was advised to up it to 50mg by my GP. I was also told by the regestrar performing my cystoscopy to try to hold on as long as possible before going to the toilet. After six weeks of the 50mg Betmiga and trying to do the bladder drills I am finding little improvement although I do think that I may be getting up less at night.

I have read many of the posts on this thread and it seems that it could take up to eight weeks for the Betmiga to kick in. I was told by my GP six weeks so was beginning to think that it was not going to help much. It seems that I may still have a while to wait!

I am coping with most of the side effects although I am finding that my eyelids are often sore and inflamed. This is listed as a side effect and although it sounds unimportant I am often unable to wear make-up. I guess that this should not bother me but I already feel more than a little disfunctional due to my symptoms and find that this adds to my low mood.

I am back at the hospital on Thursday so am hoping that the Urologist may have more advice.
Nia

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Posts: 187
Reply with quote  #43 
How long does betimiga usually take to work? I gave it up after two weeks cos had a bit of retention. Should I try it again .
cherrypie

Registered:
Posts: 51
Reply with quote  #44 
Hi Nia,

I was told that Betmiga can take up to eight weeks to have any real effect but that if you are patient it is the best drug on the market for OAB at the moment. Whether this is the case or not I do not know, just that it is the newest and so the most expensive. I have been on it since the middle of August and am finding that I do not have to get up as much overnight if nothing else. Durring the day some days are better than others but the desire to go rarely goes completely but then I have been diagnosed with IC and not OAB.

As far as the retention goes I do find it more difficult to go on some days but again this could be due to the IC symptoms and not the Betmiga. I would suspect that if you only took the Betmiga for two weeks you did not give it long enough. There are also two strengths of Betmiga, 25mg and 50mg. I was told that the 50mg is the proper dose and that the 25mg is used to start with to get the body used to it. The advice from my GP was that you need to be on the 50mg dose for up to eight weeks to be able to tell if it is going to help or not.
Gillian55

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Posts: 16
Reply with quote  #45 
Hi, been reading your blogs, I am also on this drug, is it best to take at night or in day??? As with the pee issue, I sit and sit until every last drop comes out, rocking back and forth may help bladder to empty at end. This works for me, I also take one d mannose at night, just to keep any bugs from sticking. Worth a try.
Gill
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