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cherrypie

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Posts: 51
Reply with quote  #46 
Hi Gill,

I take my betmiga in the morning as there was nothing in the directions to suggest otherwise. Usually if a drug is to be taken at any other time of the day it will tell you to do so in the directions. It is a prolonged release medication so it should continue to work at a steady rate throughout the 24 hour period.

I also take D-Mannose before bed as well as a teaspoon of sodium bicarbonate. As another member of this site suggested as you do not drink over night your urine is likely to be stronger upon waking. It is hoped that the sodium bicarbonate before bed will help to counteract this.

Like you I sit on the loo a while after passing urine and try again a number of times as well as rock backwards and forwards to make sure that the bladder is empty. This all sounds so wonderfully glamourous I must admit. Above all I am trying to remain positive, easier some days than others I must admit!
Nia

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Posts: 177
Reply with quote  #47 
Nocte is written on my prescription does that mean one at night? Do oab meds help with IC? I reckon I am so inflamed that my capacity is so small.
cherrypie

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Posts: 51
Reply with quote  #48 
Yes nocte does mean to take at night. My medication does not say that but I think that a I may try taking mine at night in future and see if it makes any difference.

I have no idea whether OAB medication helps IC but it does seem that many sufferers are prescribed it. Having looked around this site it seems that many members take Vesicare which is usually given for OAB. When I was first prescribed the Betmiga I was actually a bit surprised as when I was seen by the Urodynamics department I was told that OAB medication would not help my condition. I still do not know for sure that the medication is helping in the way that it should!
Nia

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Posts: 177
Reply with quote  #49 
Don't know how it could help me as I have pain if capacity goes over 100ml. Do you think it is worth a try?
cherrypie

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Posts: 51
Reply with quote  #50 
Hi Nia,

I have no idea whether it will help or not I am afraid. The only thing I would say is, if what my GP told me is correct and it can take up to eight weeks to have any affect, you probably did not give it a long enough try first time around. Good luck whatever you decide.
Nia

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Posts: 177
Reply with quote  #51 
Fingers crossed cherrypie
Bekka22

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Posts: 4
Reply with quote  #52 
I've started my tablets today will let you all no how I get on, he gave me 25mg 42 tablets take one daily.
cherrypie

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Posts: 51
Reply with quote  #53 
Hi Bekka22,

I have been taking Betmiga for about four months now and I think that, along with the Gabapentin which I now also take, things are improving a bit. I certainly do not get up as much during the night as I used to.

The 25mg dose is actually only a starting dose, or so I was told by both my Urologist and my GP. The full dose is 50mg a day. As to how long it takes to work, I have been given different advice by different doctors. Some said that it could work in as little as two weeks but one GP said that it would take up to eight weeks. In my case I suspect that the second estimate was nearer the truth. It was certainly no miracle cure for me although I am sure that it is contibuting to my slow improvement now.

I have found some odd side effcts most of which have subsided now. The first one was a dry mouth which I think is common with most medcations of it's type. The second, and for me most annoying, were sore and swollen eyelids. They were often quite weepy too. For weeks I could wear little or no makeup. Sounds unimportant I know but as I have felt quite isolated by this condition and rather disfunctional this did not help. Luckily this side effct has also calmed down and I am able to wear some makup which I find helps with my confidence.

Hope this information helps a bit. Good luck, hope it works for you.
Moderator_Jen

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Posts: 955
Reply with quote  #54 
I take one 50mg tablet of betmiga slow release a day and it really has helped calm my muscle spasms.

I was directed by my Dr and pharmacist to take it at night as it could make me drowsy - perhaps it's because of an interaction with other medication I am taking?

I also experienced slight side effects - dry mouth and dry eyes - I wear contacts and had to change to glasses as my contacts keep falling out or sticking to my eye due to them being so dry. The side effects only lasted a couple of weeks and now I'm back to normal - whatever that is!!!

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Special interest in supporting those with Interstital Cystitis, Fowlers Syndrome and those who have bladder issues in Kent.

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ibuljeeon

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Posts: 3
Reply with quote  #55 
hi

Re Betmiga

Overactive bladder for 20 years. I have tried all sorts of tests and medications on and off as some GPs have told that there is no treatment for overactive bladder. in 1014/2015 I was on Vesicare and it did not work. for the last 8 months I am on Betmiga 50 mg and I had had no or very little effect. my eyes feel heavy and overtired. I do not know if it is due to the side effects of Betmiga or disturbed/ lack of sleep.
try to take your tablet at 9 pm . it is slow release anyway. I have reached the end of my road and I do not know what to do

iswar   
Rachel_m

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Posts: 2
Reply with quote  #56 
I have recently been diagnosed with OAB. I began taking tolterodine tartrate which had no effect. My consultant then prescribed me betmiga 50mg and said I would notice small improvements after just a few days. I have been taking it for 4 weeks but so far I haven't noticed any improvement. I have urinary frequency not urge incontinence. I don't really know where to go from here, does the betmiga take a long time to work? Also if the tolterodine tartrate had no effect does that mean all the other medication in that family of medication will not work? My consultant mentioned botox, but it seems so drastic and there are lots of questions I would need to ask before considering it.
ModeratorKate

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Posts: 1,590
Reply with quote  #57 
Hello Rachel-m
Welcome to our Forum and hope you will find much to assist you.

As you will have read on just this thread, we are all so different an react in different ways.It is always sad to read when a person so young has bladder issues,it may help if you were to join COB, as not only will they send a Welcome Pack you will have access to so much more, and there is also a young person's advisor .

You mention Botox, here are a few links to broaden your knowledge of this so infuriating dis-ease.

http://www.cobfoundation.org/bladder-conditions/overactive-bladder/oab-treatments/medication-for-oab

http://health.spectator.co.uk/botox-for-your-bladder-and-other-incontinence-treatments-that-work/

Do keep posting and asking many questions, we will always listen and try and assist.

Kind regards
Kate


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Rachel_m

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Posts: 2
Reply with quote  #58 
Hi Kate

Thank you for replying. I joined over Christmas and did receive a very helpful welcome pack. I didn't realise there is a young person's advisor though. How do I make use of that resource?

It's such a frustrating condition that really does change your life, I hope I can bring it under control in the future with treatment. Although from what my urologist said, "there is no medication to try after betmiga, but we can consider botox". I'll check those links out that you've provided. Thanks again.
ModeratorKate

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Posts: 1,590
Reply with quote  #59 
Hi Rachel_m

Pleased that you have joined COB, contact the Office and they will be able to assist you.

0121 702 0820 someone will get back to you if answerphone is on, as it is only a small charity/ office.

regards
Kate

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Sasha

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Posts: 2
Reply with quote  #60 
Hi I am also new to the site, I have read what you posted. Can I ask how do you find things during the day, if you take Betmiga at night. I have been taking this for 7 months and my Consultant has just put me on Vesicare as well, I am taking them in the mornings at the moment.
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