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heathwhit

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Reply with quote  #1 
Would i have symptons every day if i had a biofilm.All tests come back negative for bacteria.I have symptons every day stinging burning no relief after voiding, now suffering from acute anxiety.

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H.M Whitworth
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Reply with quote  #2 
If bacteria have appeared from the biofilm or embedded infection and are active in the bladder then yes, you could well have daily symptoms.  Biofilms by their very nature mean that bacteria flux in and out of them regularly setting up flares as the bacteria produce toxins causing inflammation.  Anxiety itself can be a trigger particular with the high number of bladder mast cells that there are producing histamine which is a food source for bacteria encouraging bacterial growth.  An antihistamine can calm the histamine release and can be taken regularly.

I think we have previously advised that you may want to consider getting a better urine sample taken than that your GP provides.  The Bladder Health UK office can give you details if you call them and can advise options.  It will cost money but may give a more detailed analysis as a longer culture can be requested than the standard 18 hour.  I know you are post menopause so have you discussed vaginal and urethral atrophy with either your urogynaecologist or urologist?  The atrophy can cause burning and pain on passing urine as the skin is more fragile and sensitive with the nerve endings being exposed.  If diagnosed, your urogynaecologist should be treating you for the symptoms of vaginal atrophy after examination  Additionally a good barrier cream such as Hydramol can help the skin and set up a barrier against the stinging and pain you are experiencing.  This cn be bought over the counter in Boots as well as a bath and shower emollient.  Its completely natural with no additives or fragrance. If you haven't been referred I would ask your doctor for an urgent referral so you can seek investigation and receive treatment.  
heathwhit

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Reply with quote  #3 
Thsnk you so much for your reply, you have given me plenty to discuss with my doctor nrxt week.The urologist i saw just said cystoscopy and instills which i don't really want.i am going to ask to see a urogaenologist to discuss thde things you have mrntioned.I hsve had a private test with medicare but not the longer one, that came back as inflammation which could be infection but not sure, i will try the longer one.This really is not on not long ago i sent a sample which was tested by nurse she rang to say i had infection but when tested at the hospital they said not, i really do give up so still no abs.thanks again for your help.
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H.M Whitworth
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Reply with quote  #4 
If you decide to use the longer culture again, please order online as this gives you an option to request a longer culture and the reason behind this request after you have added this to your basket for purchase.  If ringing, they will not give you this option and simply send you the kit and you cannot write on the form provided.

Good luck with your GP appointment, hopefully they can refer you to see a urogynaecologist and you can get some help with your ongoing symptoms.
Sarah1975

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Posts: 15
Reply with quote  #5 
Hi Heathwhit
I just wanted to say that I totally empathise with the acute anxiety you are suffering from as I am the same.  I too have symptoms every day, mainly stinging high in my urethra (bladder neck) just prior to voiding and when my bladder contracts when it's full (ever since my first bacterial infection last July).  I had a broth culture done and am currently taking Nitrofurantoin and have been for several weeks but the stinging hasn't subsided. My urologist wants to do a cystoscopy and hydrodistention but I've not gone down this route yet hoping the abs will work. I've had a particularly bad day anxiety wise today, my appetite is completely gone and I feel sick and panicky.  I made an appointment with the specialist mental health Dr at my surgery so I'm hoping she will help me to better deal with this horrible situation.  I'm trying mindfulness but I've not had much luck so far.  I know how isolating it is feeling this way and there are times when I think I just can't deal with it any more.  Sorry I haven't been any help but wanted you to know you aren't alone in feeling this way.  I hope you find some relief soon.  It would be good to hear from anyone who has any tips on coping mentally. 
Moderatorsusan

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Reply with quote  #6 
Don't forget that BHUK have support groups all over the country so rather than feeling isolated with these issues, you could contact the office and see if there is one local to where you live.  Many have found real support in talking about coping with bladder issues and the relief at finding out there are people to share their concerns with has helped enormously.  Please don't feel isolated because of your symptoms.

The office is open Monday to Friday between 9am and 2pm and there is a message service out of hours or if your call is not immediately answered.
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