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Jude10

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Posts: 34
Reply with quote  #136 
Hi, thanks for your help, I,ve managed x3 days of half a tablet and it has got easier. I,m off to physio today as I have noticed that pelvic floor muscles play a part in all of this especially exercising, this can,t be about bacteria but must be some sort of inflammatory memory or pain memory somewhere in the pelvis. I can,t find a good pelvic floor physio up north who uses Thera wand and does good assessment but it,s a start. I noticed on websites where they discuss pelvic floor problems that they have pelvic flares just the same and urethral burning etc but may have had a bartholin gland infection, or severe thrush or childbirth, anyone had help from this? Some have thought a uti and no bacteria showed up and got better using pelvic wand and seeing pelvic physio.
Sophs50522

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Posts: 92
Reply with quote  #137 
Hey jude. I do believe pelvic floor muscles play a huge part in all of this not sure with it being the cause Though but certainly makes it worse. Mine came from stress and anxiety, i can't help but think this just lowered my immune system and led me to a chronic uti. If i have no success with antibiotics I'm going to give accupuncture a try as i have heard lots of success stories.
Mine isn't from child birth as my youngest is nearly 2 now and Ive had thrush swabs so don't think it's that either. Haven't heard of bartholin gland infection though. Might look That up.
Have you been to seen the prof?
Jude10

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Posts: 34
Reply with quote  #138 
Hi Sophs, I think pelvic floor issues seem to come from a whole variety of sources including uti, I,m seeing the specialist in Leeds but I,m not convinced abx will remove all muscle and nerve irritation, somehow this seems to get held in muscle memory and I,m feeling I want to try to help it along. I,m just quite interested that pelvic flares happen to people with so many different infections etc. And remain after infection has cleared as though the inflammation won,t go away! I can see people also get through pelvic flares and stop them with pelvic physio. I remember you are in wales and would love to see the pelvic physio in South Wales but too far for me!
Sophs50522

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Posts: 92
Reply with quote  #139 
Agree with you there jude! I do think the bladder will need retraining again once bacteria is gone.
Are you on high dose antibiotics?
Who is the pelvic physio in south wales may i ask? I Wouldn't mind giving them a shout.
Sophs50522

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Posts: 92
Reply with quote  #140 
Hi guys Sorry I'm back again, i am having some trouble getting hiprex at moment so have to do without now until i get my urine tested again with the prof on the 27th, 4 weeks away yet. Is it Really important or will antibiotics help alone?
I've also just been presribed flucanozle to take with my treatment as i tried everything under the sun and couldn't fight off the thrush.
I'm really hoping it settles my symptoms a bit as it makes me flare badly!
littlemoo

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Posts: 7
Reply with quote  #141 
Hi All

I'm new this group. I can't actually work out how to start a new topic, only reply to existing ones!

I had a first appointment at the Prof's clinic last week, saw a colleague of his as I was offered an earlier appointment rather than waiting until August.

I am taking nitrofurantoin twice a day and now hiprex too. I couldn't get the hiprex at a pharmacy - ended up buying on ebay - supplied from Australia where you can but it over the counter.

I have been on the ABs for 4 weeks and hiprex for just a couple of days. Feeling ok on them so far. My sister-in-law is a nutritional therapist and has recommended taking saccharomyces boulardii (a friendly yeast) to avoid getting thrush. You can take this at the same time as the ABs as it's not affected by them. I am also taking a good quality probiotic in between AB doses. Just sharing this in case it helps someone.

I'm not feeling much better yet - still feel like I need to pee all the time, but I think the pain is improving slightly.

I think I have had my infection for at least 18 months, maybe as long as 2 years, but with negative tests at the GP (usual story). Just wondering if the length of time you have had an infection impacts upon how long it will take to treat? Does anyone have any idea?




Sophs50522

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Posts: 92
Reply with quote  #142 
Hey little moo,
That's some good info! Would consider taking some of that as i suffer awfully with thrush from the AB's.
From what i have read ..The longer you have the infection the deeper it goes into the bladder wall but that doesn't mean it can take longer to treat. Think it's all down to that person's immune system and how well it fights it. Can take years for some and only months for others.
My symptoms started the end of November and started antibiotics in the april, I'm due to go back now in two weeks for my pee and flee. Will let you know if my counts drop :)x
littlemoo

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Posts: 7
Reply with quote  #143 
Hi Sophs50522

Thanks for your reply. Do let me know how you get on at ypur next pee and flee. Fingers crossed for you. Are you feeling any improvement yet? Thrush aside r u feeling ok on ABs and hiprex? I have avoided thrush so far but it’s still early days for me.

Best wishes
Littlemoo
Sophs50522

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Posts: 92
Reply with quote  #144 
Hey little moo, i definitely will do!
I can't get hiprex at moment [frown] so just antibiotics. I think they are helping my flares as they are much shorter but i am having awful anxiety and stress at moment and noticed my symptoms are much worse.
Your so lucky you haven't got thrush [frown] everytime i had antibiotics for an ear infection I'd always get it so knew i would get it chronically being on them.
X
Moderatorsusan

Moderator
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Posts: 1,059
Reply with quote  #145 
Hiprex is now back in stock so try your pharmacy again.

If it helps, thrush treatments here and also info on
probiotics

http://www.chronicutiinfo.com/day-to-day-management/treating-thrush/

http://www.chronicutiinfo.com/day-to-day-management/probiotics-kefir/
Dxb99

Registered:
Posts: 9
Reply with quote  #146 
Hi Sophs, I hope things are improving for you now with the the abs and hiprex, I would definitely start taking the saccharomyces Boulardii also - it is one of the probiotics I was prescribed to take too and I had it couriered from the uk to Dubai from a company called nutriLink and the brand was allergy research group
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