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Annabel1979

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Posts: 44
Reply with quote  #46 
My first GP told me to go away and it was all in my head. I have just had my first referel letter through the NHS for June 24th. I requested see someone on 14th october. Thank god i had some savings and went privately. My heart goes out to those unable to do it. My new GP is actually really understanding and interested in the condition.. he hopes things will change in the NHS. They will eventually but im afraid progress is slow x
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Annabel fox
Sophs50522

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Posts: 92
Reply with quote  #47 
Hey everyone. I've managed to get a cancellation for 26th April. So pleased to be able to see him sooner. I'm having terrible few days. Believe it's because I'm on my period. Do anyone have IBS/ constipation aswell ? It's driving me mad. I've got what feels like indegestion too. I'm convinced I've got Lyme disease or something!!
Can anyone tell me if the prof can refer me for tests on nhs if needed to do a cat scan or anything ? I don't really want to be paying privately for that. Cost me far to much [frown]
Thank you x
Moderatorsusan

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Posts: 1,048
Reply with quote  #48 
HI there

Great news you have an earlier appointment. As you will be seeing him as a private patient sadly he won’t be able to refer you for scans on the NHS. That would need to be organised privately. It is likely that you will need to be referred by your GP for any scans if it is thought necessary. He writes to your GP after each appointment as well as giving you a copy of the letter at the end of the appointment for your own records so would add this to your letter if he felt it was necessary.

Other things he cannot offer:

Blood tests
Swabs for thrush
NHS prescriptions for any antibiotics he prescribes.

I assume you are all over your IBS/Constipation in terms of how to treat etc. An inflammed gut can put awful pressure on the pelvic floor and additionally your uterus swells in the lead up to and during menstruation. It’s no wonder your bladder is putting out distress signals with all that pressure going on.

Certainly once you start treatment make sure you take a good probiotic 2 hours away from medication as antibiotics don’t discriminate between the good guys and bad guys in your gut and will wipe everything out hence the probiotics to put the good guys back in to help your immune system.

Glood luck with your appointment.

Sophs50522

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Posts: 92
Reply with quote  #49 
Hi thank you. Could my gp refer me for tests with the professors notes ? Or would I need to see a urologist on nhs first ? They won't remove me off nhs list will they if i am under a private consultation ?

I am currently taking probitoics at moment for my bowels but it's not really helping much. I will continue to take them just incase I need anti biotics. Do you have any idea of cost of private prescriptions? Such as antibiotics or hiprex ?

Really hope I get to the bottom of it all its so stressful that all this come out of no where [frown]
KJW

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Posts: 22
Reply with quote  #50 
Hi, I’m sorry you’re having a bad patch, hang in there, not long until the 26th. I’ve had antibiotics privately it was cefuroxime, I had it for the uti, it didn’t work, anyhow I think it was between £20 to £30. I’ve also had amytriptiline and that was £2!! I think you just pay the cost of the drug so i assume it depends how old or popular it is. Hope you feel better soon.
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Kirsty 
Annabel1979

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Posts: 44
Reply with quote  #51 
Hey there. a month's supply of hiprex is about 20 pounds on prescription. You can buy online but its about 15 to 20 pounds delivery as comes from australia i think. That was on ebay and amazon. Good luck!
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Annabel fox
Sophs50522

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Posts: 92
Reply with quote  #52 
Thank you both. The don't sound too bad.
Will let you know how I get on :)
L8tti_x

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Posts: 33
Reply with quote  #53 
Nitrofurantoin is a bit more expensive. My prescription is for 8 weeks and it's around £75.


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Lotti
Sophs50522

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Posts: 92
Reply with quote  #54 
Ouch l8tti. How long do you have to stay on that for ?
L8tti_x

Registered:
Posts: 33
Reply with quote  #55 
You never know your gp may decide to support your treatment (if required...)

Mine did for a year but then withdrew his support once Prof had to include a paragraph in his correspondence about his protocol being unlicensed.

Good luck x

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Lotti
L8tti_x

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Posts: 33
Reply with quote  #56 
I've been on it since July 2016.

Ouch as you say!

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Lotti
SJ2271

Verified BHUK Member
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Posts: 59
Reply with quote  #57 
I've been suffering with bladder and bowel problems for six years now. I've had a lot of UTIs which sometimes show up on dipstick. Got diagnosed with OAB and spent three years on various meds for it which didn't work and had horrible side effects. I'm waiting to see the Colorectal Specialist at my local hospital in May (I want a MRI Proctogram). The Urogyno Specialist at my local hospital was only interested in giving me a cystoscopy and urodynamics test which I turned down. I take oregano oil capsules and a probiotic (d-mannose gave me an upset stomach) but I'm struggling to cope now and feel depressed. So I'm thinking I need to see The Prof too as after six years nothing is improving.
Annabel1979

Registered:
Posts: 44
Reply with quote  #58 
The prof prescribed me Hiprex.. it's been great... bladder pain gone and no UTIs for months.

You can order online as well if you dont want to wait for prescription, your GP may be able to prescribe as well.


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Annabel fox
Sophs50522

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Posts: 92
Reply with quote  #59 
That would be brilliant if so l8tti!
Annabel that's brilliant news! 2 more days till I see the prof. I Really can't wait now! I'm hoping hiprex just works for me. Have you tried any alcohol whilst being on it yet ?
X
Sophs50522

Registered:
Posts: 92
Reply with quote  #60 
Sj2271 .. It's really awful to go through and after 6* years i would suggest seeing him. He seems to be the only one who can really help! I think it's worth paying anything just to get the symptoms gone x

Edited by Mod
for Sophs 50522 re  typing error.*
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