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SJ2271

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Posts: 56
Reply with quote  #61 
Thanks. I’ve got an appointment with the Prof in August. Sophs50522 great you’re got your appointment in two days. Hope you’ll let us know in the thread how you get on.
Sophs50522

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Posts: 71
Reply with quote  #62 
Aw not long, hopefully you get a cancellation. I will do!

Can anyone help me .. What train station in London do I need to travel to on Thursday ? And what tube ?
Just about to book my tickets
Thank you :)
Jane_B

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Reply with quote  #63 
The nearest tubes to the Prof are Oxford Circus, bond st or Regent’s Park. Best of luck with your appt it sounds like you have really been suffering.
Sophs50522

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Posts: 71
Reply with quote  #64 
Thank you Jane, do you have any idea which one is closest and if there is anything close by I can have a bite to eat if I'm a bit early ?
Just researched .. will get train to Paddington and get Oxford circus tube. Didn't realise it was that close to the shops so will wander around there if early.
It states on my letter to limit fluid intake if i have my last drink and pee at 10.30 that should be okay for my appointment at 2.30 shouldn't it ?
Sorry for questions. For what it's costing me I don't want to mess this up lol thank you x
Moderatorsusan

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Reply with quote  #65 
There is the big John Lewis on Oxford street for food (good top floor cafe). Loos on the same floor.

Drink wise that’s fine. It’s really so your urine is essentially not a bottle of water. You need it to be as concentrated as possible for the detection of white blood cells and Epithelial cells. Sadly a lot of patients overdrink before their appointment which makes their urine too dilute.

Don’t worry if you are on your period - just let Prof know as blood can obviously be picked up in the urine sample. And don’t worry about stopping any prescribed meds before you see him - bladder or non-bladder.

Good luck and hopefully you will feel a lot better very soon.
Sophs50522

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Reply with quote  #66 
Brilliant thank you susan. Can I just ask if my urine shows epithelial cells what do that mean ? I know white blood cells mean infection not sure about epithelial ?
Moderatorsusan

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Reply with quote  #67 
That’s easy to explain

The first thing the body does when it senses an upsurge in potentially harmful bacteria in the urinary tract is to shed bladder wall surface epithelial cells to sweep them away to prevent penetration of the outer lining of the bladder (the urothelium). These are excreted out of the body when you urinate.

So Prof will be checking the amount of Epithelial cells to check how your immune system is responding to the infection.

If counts are low don’t worry. Bacteria are cunning and hide in the bladder wall so may not be causing any flare like symptoms which means the immune system isn’t firing away and shedding cells. That’s why Prof also goes by your symptoms as well as the urine counts.

Good luck with your appointment.

Sophs50522

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Posts: 71
Reply with quote  #68 
Ah that's really interesting susan.
So there is a possibility of it showing no counts for either of the cells ?
As im.not sure if the bladder is suppose to have minimal bacteria if that makes sense ?
Reason I'm asking now is just so i dont have to use up most of my limited time I have with him on Thursday. 30 minutes I imagine will go very quickly.
Thank you
Moderatorsusan

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Reply with quote  #69 
The bladder is not sterile and has its own community of microbes living in there. Prof will tell you this but its a belief that still persists to this day even in the media.

The problem is that there is still much to understand about what makes up a healthy bacterial community in the bladder as no-one has bothered to fully research this previously and its only in the last 5-10 years that people have started looking at bacterial behaviour. Prof himself has tested his own research team to check their urine samples and the bacterial elements using advanced testing. In theory a number of them should have raging infections on what was found but are actually absolutely fine with no hint of feeling unwell with a UTI.

What does happen is that something whether thats a bacteria added externally such as through sex, a catheter etc or through the weakening of the host immune system causes this community to become unbalanced and the immune system is unable to fight off the infection and we develop UTIs.

All this you can discuss with Prof at appointments in the future. Main thing is that you have a good appointment tomorrow and can start to get into treatment so that things will improve for you. Do let everyone know how you are getting on as it will really help others.
Sophs50522

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Posts: 71
Reply with quote  #70 
Thank You, That has helped alot! :) Will update soon!
X
Sophs50522

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Posts: 71
Reply with quote  #71 
Hey everyone. I have indeed got a biofilm infection. Lots of white blood cells and pus cells. What a lovely man Though. Even Said i can travel to his home as its Only an hour drive away from me.
Ive been prescribed antibiotics and hiprex. O cant Thank You all enough for Your support x

Can i also just note. I have pyuria of 34. Is this high?
Ive been prescribed cefalexin 500mg twice daily.
Jane_B

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Posts: 21
Reply with quote  #72 
That’s so good, he is a lovely man indeed. I Can’t remember my pyuria levels but I wouldn’t worry too much about other people’s levels. Important thing is he has diagnosed the infection and you will get better. Don’t be disheartened if it seems to take time. As he will have explained progress can be slow but it will work.
KJW

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Posts: 18
Reply with quote  #73 
Hi Sophs, I'm so pleased you have a diagnosis and now have a plan to help solve the problems, and thank you for sharing your experience.  I've got my appointment at the end of May. This sounds like a silly question, but how much did you drink before your appointment?  I'm rubbish at weeing on demand and usually drink lots to combat this, but at the same time I'm worried about diluting my wee too much!
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Kirsty 
L8tti_x

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Posts: 31
Reply with quote  #74 
Good news that you have a diagnosis.

How are you feeling re: long term antibiotics?

KJW... I would drink as little as possible. Prof only needs a tiny sample and the more concentrated your pee the easier it is for him to accurately assess the situation. When I see him my samples are sometimes only a dribble!

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Lotti
Sophs50522

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Posts: 71
Reply with quote  #75 
Thank You jane. I Really am hoping my symptoms eradicate.

KJW.. im happy to share my experience. Without this forum and all The support i have had from everyone i Wouldn't have had a clue who to turn to. Really am grateful for all The support!
I had my last drink at 9 and my last pee at 9.30. I seen him at 2.30 So i made sure my urine was as concentrated as i could get it lol ive actually been symptom free for 2 days aswell,i was adamant nothing Would show.

L8tti.. The Thought of long term antibiotics terrifies me with my ear problems but he Said cefalexin Was Really safe for people who suffer with ear problems. My ear specialist told me to contact him once i knew What antibiotics he Will prescribe So i Will be doing That soon.
Can anyone advise if actimel yoghurt drinks are enough to tackle thrush caused by antibiotics ? I suffer terribly with it When on antibiotics. If anyone can recommend What Will be best to take That Will be great Thank You x
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