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lisacornwall

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Posts: 21
Reply with quote  #1 
Hi everyone.following on from my previous posts about my despair, I have been to see my consultant today who has told me that my bladder is highly abnormal, and is clinically not overactive, but small capacity. As all medications and the cystodistension have not worked, he is referring me to Bristol (I am in Cornwall) and to a specialist as he says I am somewhat of a mystery. Ultimately he thinks I will end up having surgery. I am very against any major surgical procedures as I am very worried about the consequences if it were to go wrong (I am only 26 and yet to have children).

Has anyone had surgery and can they give me their advice and experience? When I began seeking help for my condition I never imagined it would go as far as surgery, the problem has become much bigger than I imagined and I'm scared!
barbie

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Posts: 40
Reply with quote  #2 
What kind of surgery is he talking about - bladder removal????  I should think you would want a lot more information before going down that route!
lisacornwall

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Posts: 21
Reply with quote  #3 
Hi, no surgery to make my bladder bigger, but not sure what the options are and how they go about it.
Moderatorsusan

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Posts: 931
Reply with quote  #4 
I would call the BHUK office- they have factsheets about these options and can send them to you.  The team in the office are really helpful and can talk things through with you.
Anne_44

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Posts: 37
Reply with quote  #5 
Lisa, I believe they take part of your bowel to increase the size of your bladder - why don't you google this and it might help to allay your fears.  It sounds like a good option to me - I wish they would offer it to me!!
lisacornwall

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Posts: 21
Reply with quote  #6 
Thanks Anne, I have googled it and unfortunately none of the surgeries appeal to me, they all sound so permanent and risky. Because I am yet to have children this is a further risk of surgery, it really is a very difficult and tough decision.
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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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