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calm

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Posts: 113
Reply with quote  #1 
hi everyone
in recent phonecalls with other COB members I have discovered that the antibiotic ciprofloxacin often features in people's stories of this condition.I have been pretty convinced for a long time that ciprofloxacin{which was precribed to me by a dodgy gp who didn't do a urine culture test first!} was the trigger/cause of my IC.I was wondering if other people were prescribed this drug and have felt  too that it was a contibuting factor to developing their IC?
I am keen to research this as would hate to think that cipro is being used now and in the future for UTI's and causing more incidents of IC!
thanks
susan 

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Susan
RachelAnne

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Posts: 248
Reply with quote  #2 
Dear Susan

Many complimentary practitioners who specialise in IC - definitely see a correlation between people who have used a lot of anti-biotics in their life and the on-set of IC.

It is worth reading  thesis -  - http://www.icama.org as it is a very good piece of research on IC.

There is no doubt in my case, my IC was bought on my taking too many anti-bioitcs - my immunse system and my gut was leaking and when I took one more roung, my bladder just bore the brunt and the anti-bioitcs made my bladder very toxic and then painful.

It is a vicious circle, as western medicine only give out anti-biotics for bladder infections and generally anti-biotics are given out to easily. The natural route of complimentary medicines uses natural anti-biotics that don't harm the immune system and have less side effects. The key is to find a practitioner that has experience of treating UTIs in this natural way etc

I would read thesis - there is alot of information re your query.

Cipro is like bleach!

Best regards

Rachel
pbxer

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Posts: 27
Reply with quote  #3 

I am suspicious that antibiotics and ciprofloxacin in particular might have started the burst of trouble I have had recently. It isn't guilty as charged yet but its certainly in the line up of suspects.

Laura1991

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Posts: 47
Reply with quote  #4 
As i've said before I think people are a bit harsh on western medicine, just as I am cynical about complimentary medicine. People have said to me, look at people in the past who didn't have access to medicine as we know it now so used herbs etc to treat wounds and infection, and although this is a valid point you also have to realise that many of the people treated this way probably died of that infection. 
Antibiotics are successful treatments for both UTI's and IC for many people but people seem to disregard this and only focus on the negative of them. All medicines have side effects, and you have to weigh up whether the side effects out weigh the possible benefits of the treatment and for a lot of people they don't.

pbxer

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Posts: 27
Reply with quote  #5 
The thing that annoys me about some practitioners, in both the alternative medicine and the mainstream medicine (particularly) is the confidence / arrogance. Like they are the massive brains at the forefront of a great advanced science.

They are not. Just as people used to die of TB and the Plague, with no help from their primitive medicine, so do people today suffer and die of many diseases which our primitive technology can do nothing about.

Surely they should be the most humble profession in the world when you think of how few things they can actually cure, whilst at the same time they should get recognition for those things they have succeeded in eliminating.

I definitely wish I had been born 100s of years in the future when perhaps they might have solved a few things our primitive society cannot.
luvspugs

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Posts: 97
Reply with quote  #6 
The only problem I have with the antibiotic theory is that more women (by far) are affected than men with IC. Women do not abuse antibiotics more than men. I would have thought the usage would be about equal, so it would stand to reason that the rates of IC would be roughly equal too.

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calm

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Posts: 113
Reply with quote  #7 
Hi everyone not posted for a while ,you mayremember me as the cob member who rode the "bike ride of hope " in 2010 to celebrate my recovery from IC using acupuncture in order to raise money/profile for cob.
Sadly my symptoms returned this year due to entering the perimenapause.
I am using acupuncture again and plan to add in hormonal treatment cos am peri menapausal. I will probably post about hormones later to start a thread for this topic as am very interested in link. I wanted to let you all know that have made a recent rather awful duscovery. I have always beleived that my IC was caused by a dodgy gp not following protocol and prescribing ciprofloxacin for a uti in 2006. My ic symptoms began immeadiately after taking this drug and was convinced it caused the condition. Recently I have had my fear confirmed by medical oinion I found whilst researching on the web. A doctor clearly warns not to use cipro for utis cos it can cause IC! So all of my pain etc etc could have totally been avoided if my then gp at the time had not been so heavy handed with meds. Cipro as you may know has black warnings in the states, legal cases have been taken against the manufacturer because of the serious health issues it can cause.Please please please spread the word about this med as would hate others to get IC needlessly, I didnot have a history of uti's before IC.
I am very determined to get this link publicy known as it is a scandal that gps dish out such dangerous drugs. When I am better and have ever faith I will be again, I will devote alot if energy in preventing this happening to anyone else.
Wishing you good health asap
Susan x

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Susan
Icy

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Posts: 428
Reply with quote  #8 
Hi Calm,

I actually had IC long before I ever took Cipro - so I am not really sure if one can say that Cipro actually caused IC. I do believe that antibiotics do cause IC and that in my case was probably other types I had been given, from young for various things I did not need them for. I am sure antibiotics break down the lining of the bladder.

As far as Cipro is concerned it is an appalling antibiotic and I think should be banned. I had tendon problems from it and it messed up my stomach even more than it was already. It is a terrible medicine and all the fluroquinolones are so dangerous. Despite all the health warnings and the fact I complained to my GP about side effects and filled in a yellow card - the pharma company were not interested and still the doctors dish them out like sweets.

I would also warn anyone never to take fluroquinolones of any kind as they can damage the tendons, the central nervous system, give peripheral neuropathy and devastate the digestive system.  

Can you post up the link where the doctor says this on the internet - about Cipro can cause IC. I am sure other members of the forum would be interested to see this. 
coboffice

Moderator
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Posts: 991
Reply with quote  #9 

In our experience sufferers of bladder illness are all quite different in what they respond or react to. It is better for paitents to research and be informed on the medication they are taking before they have a consultation with their GP/Urologist.

Susannah Fraser
COB Office


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saxon

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Posts: 120
Reply with quote  #10 
im not sure if ciproflx did start my ic but i was having acute cystitis which wasnt treated quickly enough, after going through a range of cheaper Anti Bs they got to ciproflx and bam my guts got involved also, i couldnt even eat and i can eat! lost 3 stone in a month and its taken me 4 years to re-build my body. whilst coping with the ic/urethritis/ibs/mental distress etc. i also had some homeopathy around a similar time after i fell out with medics but that made things even worse, i caught her putting vodka in my remedy to keep it fresh and it set my ic off even more! even after i explained no alcohol! the most successful thing i have found for recovery and managment, is water, rest, relaxed nerves, ic diet and would you believe it fresh salmon everyday. if the doc's had their way i would have been on anti Bs for 5 years now i said no because a wise gp said it would create a low grade infection and the bacteria become immune. ive made friends with doctors again but i have learnt how to tell them what i think my body needs x
SuzieQ178

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Posts: 31
Reply with quote  #11 
Just to add my twopennorth!

I am now almost 60 years old and have had IC for nearly 6 years.  I have never suffered from UTIs and can count on one hand the number of times I have taken ABs in my life, none in the last 10 years.  I have always been in good health generally, but have been plagued with 'womens problems' all my adult life!  My IC started three weeks after a testosterone implant (having had a previous hysterectomy and biophectomy) - was this the trigger?

So, all I am saying is that we are all so different and I wish we weren't because that would probably make it so much easier to find something to help this condition long term.

Sue

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calm

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Posts: 113
Reply with quote  #12 
Hi all ,here is link to the statement about cipro causing ic
 http://www.justanswer.com/ob-gyn/1eng8-question-ciprofloxacin-having-prescribed.html
Clearly for some people cipro hasn't harmed them, but it did me, and am very angry that my then gp used such a dangerous drug. I wasn't aware that cipro was dangerous back then, and took the gp's advice in good faith.
Thankfully I have a gp now who totally supports my use of acupuncture for my ic.
It cured me before and am sure will do again, but as peri menapausal need To add hormone work into the equation. Cipro has got black warnings in the usa and would so hate another innocent person go to their gp with a simple uti like I did, be given cipro and end up with ic!! As I said before once better again will do all I can to get this link very widely well known. I also look rorward to doing another big bike ride to raise money for cob and all it's members. !
Susan xx

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Susan
Ashdown

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Posts: 40
Reply with quote  #13 
http://articles.mercola.com/sites/articles/archive/2012/10/01/gut-bacteria-on-fat-absorption.aspx

Someone sent me this link - and other people might be interested.

Ashdown
Icy

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Posts: 428
Reply with quote  #14 
I think that anyone who is offered fluroquinolones of any kind (Ciprofloxacin, Levequin, Oflaxacin etc) should not on any account take these until they have researched themselves and considered the very serious side effects that can come from these drugs. They are still being given out regularly and doctors and urologists just seem totally ignorant of the way these drugs work and what they do to the DNA. I took fluroquinolones and had the most appalling side effects. Everyone should google "side effects of fluroquinolones". 

This is also a very sad story of a man who died as a result of Ciprofloxacin side effects. Although not everyone will suffer, how does one know that your body will not react in this way.... the risk is enormous. I am shocked that these drugs are not banned in the UK - as they are in some other places. http://www.noise11.com/news/def-leppard-sidekick-dies-from-drug-side-effects-20120921 


DawnCOB

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Posts: 4,496
Reply with quote  #15 
Many medications can unfortunately have serious side effects, each person is individual so it is difficult.

I am allergic to a lot of medications, however I am grateful that I am able to take Ciprofloxacin without a problem..

best wishes
Dawn

best wishes
Dawn
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