Sign up Latest Topics
 
 
 


Reply
  Author   Comment  
Mervy65

Registered:
Posts: 3
Reply with quote  #1 
Iam a 65 year old female who 2 yrs ago contracted the above infection. I was put on nitrofurantoin for a month and it didnt work and the infections kept coming back because I had 130,000 colonies. I had a hysterectomy in 1996 and have a prolapse. For 3 yrs I was on vagifem 10 mgs 2x wk. in December I had a TIA and they took me off of the vagifem, was ok as far as utis until last Thursday where I felt one coming on and low and behold I have one with 100,000 colonies. I was put on nitrofurantoin 100 mg for 7 days, seems to be working although sometimes I feel pressure and the burning coming back. Iam trying the d-mannose 500 mg 3x day, also comfort tea, tulsi tea and green tea. I think I will need to go back on the HRT to keep the infections at bay.

My question is do all utis have colonies? I asked my doctor when she called about the results and asked her if the culture said anything about ESBL and she said no. if you build your immune system can you get rid iof the ESBL infection?
Also is there anyone else out there who knows anything about ESBL,HRT and TIAs. Any suggestions, help or treatments would be appreciated!


__________________
Mary lockhart
ModeratorKate

Moderator
Registered:
Posts: 1,857
Reply with quote  #2 
Hello Mary
Welcome to our Forum, I am sorry to read of your symptoms and would hope that you are confident with the treatment you are receiving.

I wonder if you would consider joining COB as the Office has so much more information /contacts and leaflets to assist,am sure if you telephoned the Office and ask to speak with
Susannah Fraser Communications & Liaison Officer Advice Line: 0121 702 082 she will certainly be able to offer you support and advice.

I found these links that I discovered,( you may have already read)

https://www.gov.uk/government/publications/extended-spectrum-beta-lactamases-esbls-treatment-prevention-surveillance/extended-spectrum-beta-lactamases-esbls-faqs

https://www.stroke.org.uk/finding-support

Personally, I would recommend that you clarify any extra herbal/alternative medication with your Doctor,
Wild oil of oregano is sometimes tolerated alongside D Mannose, and Cornsilk combined with Marshmallow root is a pleasant Tea with good urinary assistance.
Again personally, I use Gynest (HRT) cream twice a week in very small amounts, as this does lubricate the thinning tissue,that when dry and brittle, can easily become infected.
Do keep posting, as this will be of interest to others researching info.
Kind regards
Kate







__________________

 


http://bladderhealthuk.org/membership/membership-benefits
coboffice

Moderator
Registered:
Posts: 991
Reply with quote  #3 

Hello Mervy65

Do give me a call in the office if you would like a chat.

It is quite possible to get rid of ESBL and if you culture results are showing no signs of it this time it is not that pathogen causing the infection.

If the infection has not cleared after the course of antibiotics, you should return to your GP as it may be that another course is required.

D-Mannose is a good supplement to take for infection (provided you are not diabetic) and the Comfort Tea is bladder friendly but I would avoid Green Tea at the moment as it contains caffeine which is a bladder stimulant.

Hoping you feel better soon.

Susannah x

 


__________________
for Bladder Health UK
Mervy65

Registered:
Posts: 3
Reply with quote  #4 
Hi Kate,

Than you for your reply. I thought I had joined the forum, but didnt realize that you are in the UK. I found a Canadian pharmacy and asked them to send me the ingredients of the gynest so I can talk it over with my doctor. My eurogynecologists is telling me that he doesn't think the small amount of estrogen I was getting from the vagifem caused the TIA. Your thoughts on this? I get de caffeinated green tea and pomegranate is the decaf ok to drink. Your question re jointing the forum would that be the UK one?

__________________
Mary lockhart
ModeratorKate

Moderator
Registered:
Posts: 1,857
Reply with quote  #5 
Hello Mary
Sorry my Bad,I did not register you were overseas when I did a quick check sorree.

Yes we are UK based, but still assist worldwide, you have joined this Forum but not the COB Foundation, which was my suggestion.
Do  consider joining as they will send you an informative welcome pack, plus much more.

Here are some links nearer you ( maybe) (but, dont rely on my geography) [wink]

Interstitial Cystitis Association (ICA) 
100 Park Avenue, Suite 108A 
Rockville, MD 20850 USA 
Tel: 800-HELP ICA (800-435-7422) 
http://www.ichelp.org
ICAmail@ichelp.org 

Interstitial Cystitis Network ICN (National) 
4983 Sonoma Highway, Suite L 
Santa Rose, CA 95409, USA 
Tel: 1-707-538.9442 
http://www.ic-network.com 
jill@ic-network.com

 Re your query re TIA, We are not medical advisors,and I am only Moderator/sufferer, ensuring this Group functions correctly, .

The active ingredient in Gynest is naturally occuring estriol, and that at 0.01%, but would imagine, they have stopped your medication as a safety valve, and as I mentioned do be careful what you take and ALWAYS check with your doctors.

Keep posting and reading.
Kate





__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Mervy65

Registered:
Posts: 3
Reply with quote  #6 
Hi Susannah, thanks for your reply and the good information from both you and Kate!! I have also been drinking asparagus juice and eating asparagus, I heard that is good for utis also. Regarding the culture, the doctor had called yesterday stating it had 100,000 colonies and I asked if it said anything about ESBL and she said know , but I asked the med center who did the culture to send me a copy so I could see for myself. The doc also said after 2 yrs it should be gone. Do you have a toll free number I could call you on because I live in the US and think it might be pretty expensive?
__________________
Mary lockhart
ModeratorKate

Moderator
Registered:
Posts: 1,857
Reply with quote  #7 
Hello Mary

Re your query re Telephone:Am sure Susannah will respond later.

In the meantime here are contacts for you

FOLLOW @BLADDERSUPPORT ON TWITTER

Overseas Dial: +44 121 702 0820

My personal guess would be that there is NO FREE telephone,as we are a very small charity.

kate



 

__________________

 


http://bladderhealthuk.org/membership/membership-benefits
coboffice

Moderator
Registered:
Posts: 991
Reply with quote  #8 
Hello Mary

The green tea should be fine without caffeine. I'm afraid we don't have a toll free number for you to call - as Kate says we are a small charity with limited funding.

Susannah x

__________________
for Bladder Health UK
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.


This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.