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Maccasgirl

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Posts: 2
Reply with quote  #1 
My husband has suffered from OAB for 2 1/2 years, and has tried many different medications with limited or no success, he recently had a urodynamics test, with a view to having botox, but this has now been temporarily ruled out as due to brain injury it was felt he would be at high risk of retention. It has now been suggested he tries the conveen for 3 months, after this time if we feel it's not working then we could look again at botox , with me having training in inserting a catheter as my other half probably wouldn't be safe in doing it himself. Anyone had a similar experience? I'm feeling a bit lost at the moment
ModeratorKate

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Reply with quote  #2 
Hello Maccasgirl

Bless you, so pleased you are able to assist your Husband.

Can I suggest you contact BHUK advice line ( number at top of page) Leave your contact details and someone WILL get back to you,
we are only small Charity, so office is small.
They will have loads of extra support and info to assist you.

Kind regards
Kate


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doloroso

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Posts: 100
Reply with quote  #3 
Hi Maccasgirl.
My 85 year old husband has been catheterised for life since August 2018. He has chronic kidney failure (left), an overstretched bladder and an inoperable  large prostate. (his whole urinary tract is knackered). He cannot self catheterise. Every 12 weeks he has a catheter change at the clinic. To avoid UTIs he is injected with a specific antibiotic in his thigh each time. This was prescribed by an A&E Urologist after having made 2 trips at the beginning of his long term catheter due to blood in the urine etc etc. (I know the symptoms having been a very long time sufferer of recurring chronic UTIs).  Thank the Lord he has been free of UTIs ever since. Have you ever been asked/advised that perhaps a long term catheter would aid your husband?? Yes, it's a pain in the bum! However, in my husband's case it's keeping him alive so to speak. Do keep posting here as the support is extraordinary. Good luck - sending positive vibes to you!
doloroso

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Reply with quote  #4 
Just re read your post. Indwelling catheterisation would avoid retention. One of my husband's big problems before the long term catheterisation.
Maccasgirl

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Posts: 2
Reply with quote  #5 
Indwelling catheters are something I've been thinking about as a way of avoiding daily catheters and the higher risks of infection if botox does cause retention , but today we had a visit from the urology nurse and she has kitted us out with said conveens, bags etc, we had to nip out and he seemed much more relaxed and said "nobody knows I've got this bag do they?" So it just shows how things were preying on his mind despite saying he wasn't bothered, anyway we shall give them a fair go and after having a chat have come to the conclusion that for him botox doesn't sound as appealing as it once did , so plan is to give coveens a go and if they aren't a success then see if an indwelling catheter is something his urologist will consider , thank you for comments so far they have been very helpful
doloroso

Verified BHUK Member
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Posts: 100
Reply with quote  #6 
Morning!
Happy to read that. Fingers crossed your husband has found some peace (you too)! It took months of trying different size leg bags and even a catheter flip flow valve for my husband before we have finally found the way to make him comfortable (call it that)! I don't know whether you know but instead of the elastic bands that fit around the leg bags, there is an Aquasleeve which fits over the bag keeping it in place, far more comfy than those elastic bands. Good luck! Have a great weekend! x
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