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laia_poch

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Reply with quote  #1 

I suffer from postcoital cystitis from e.coli. sick and tired. what can i do?????????????????

Moderatorsusan

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Reply with quote  #2 
Horrible aren't they and they really kill a love life.

Suggestions to minimise post sex flares include:

  • Bottle washing both before and after sex
  • Ask any partner to thoroughly clean themselves and scrub fingers before sex
  • Use plenty of a non-irritating water based lubricant such as Yes or Sylk
  • Drink a pint of water before sex and then urinate immediately afterwards and drink plenty of water.

Keep up any antibiotic/antimicrobial regime even if things have completely settled.  Even some who are well are still reporting flares after sex and have found they have had to take antibiotics/antimicrobials afterwards for a few days.

Additionally, wipe ‘front to back’ and if necessary, research the Angela Kilmartin bottle washing technique  when passing a bowel movement or having sex as bacteria can be transferred from the anus to the vaginal/urethral entrance causing UTIs.

If you get are getting flares from ecoli then D Mannose can really help.  

  • D Mannose may be effective for the reduction of acute or recurrent infections if taken at the very onset of the infection when symptoms are first noticed.
  • D Mannose may be effective against certain strains of E-coli or Enterococcus known to cause UTIs.
  • D Mannose is a natural, alternative remedy that may be used if the user does not wish to use daily prophylaxis or low dose antibiotics to prevent infection or reinfection. Increasing bacterial resistance to low dose antibiotics has meant that many front-line antibiotics such as Trimethoprim are now resistant to strains of UPEC.

If you have used D Mannose before and found it effective previously then continue using it.  The following points should help.

  • Take a half to one teaspoon of D Mannose in no more than half of a glass of water. Then wait for about 45 mins to an hour. After that, drink plenty of water.  This concentrates the Mannose in your urine allowing it to bind to the UPEC bacteria. Continue this every two to three hours for up to five days.
  • Only use D Mannose at the very beginning of symptoms. If symptoms have not diminished or completely disappeared after a day, do not wait any longer and go to the doctor. A full-blown UTI might benefit from D-Mannose supplementation, but there is a risk that bacteria are growing at a faster rate than can be cleared through D-Mannose especially if the bacteria are resistant to it. Remember, D-Mannose only works for UTIs caused by E. coli bacteria in uncomplicated infections and/or Enterococcus for complicated infections.  A delay in seeking treatment if symptoms worsen or do not significantly improve can result in worsening the infection leading to possible kidney infection or at worse sepsis. 
  • If antibiotics are prescribed, supplementing with D-Mannose could be an option to speed up recovery, but do not stop the antibiotic treatment to switch to D-Mannose. A course of antibiotics should always be completed unless side effects are experienced and a medical professional advises cessation.
  • Some find it beneficial to follow up a flare up or acute attack by taking a preventive D-Mannose dose daily.  This is usually one teaspoon 2-3 times daily.  Consider taking D-Mannose every time you think your vaginal flora or immune system are compromised (with the first signs of a yeast infection, when consuming a lot of sugar, during stressful times, after sex, illness etc.).
  • Take the DM away from any acidic food or drink as it will counteract its effects and the urine must be kept alkaline.  This includes the use of the antibacterial Hiprex. Gram negative bacteria such as e coli reproduce more slowly in an alkaline environment allowing for potential of greater attachment to the D Mannose molecules for excretion. 

The powder is recommended above the capsules if tolerated. Sweetcures of York have an excellent website - google it and give them a call.  The founder herself suffered horribly from UTIs.


Hope this helps

L8tti_x

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Posts: 53
Reply with quote  #3 
Sex is a trigger for me too.

It really is a passion killer. Having to follow a washing regime really takes away any spontaneity doesn’t it. Ho hum.

I can’t offer any further advice but just wanted you to know you weren’t alone.

X

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laia_poch

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Posts: 19
Reply with quote  #4 
Many thanks everybody! I have just found a blog about bacterial biofilm and d-mannose lube. Have you ever heard about it????????
L8tti_x

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Posts: 53
Reply with quote  #5 
There is a wealth of information on here re: biofilm infection, or what is now referred to as a Chronic UTI.

Check out the categories section and have a good read. Alternatively BHUKOffice can send you information packs if you join up and Cutic.co.uk is also a fantastic resource.

Never heard of that lubricant. Sounds intriguing!


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laia_poch

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Posts: 19
Reply with quote  #6 
Quote:
Originally Posted by L8tti_x
There is a wealth of information on here re: biofilm infection, or what is now referred to as a Chronic UTI.

Check out the categories section and have a good read. Alternatively BHUKOffice can send you information packs if you join up and Cutic.co.uk is also a fantastic resource.

Never heard of that lubricant. Sounds intriguing!



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