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DawnCOB

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Cystitis Success Stories

 

COB frequently receives stories from those that have found successful treatments for their bladder condition.

 

The following is a selection of success stories which are featured in either COB magazines or on COB forums. 

 

Where possible a direct 'story' link has been included under the title. If you have comments/questions about the success story please click on the link to take you to the relevant thread to post in.

 

If you have a success story that you would like to be included here please email this to info@cobfoundation.org

DawnCOB

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Acupuncture excerpt from COB mag issue 59 2009

 

I started in January and have been going since, my has reduced dramatically and Ive only had two infections in that time which is progress for me. I would definitely recommend trying acupuncture. Julia.

DawnCOB

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Bladder stretches/distention/helmstein

 

I used to retain urine in my bladder , which meant I couldn’t empty my bladder correctly.  This caused repeated bacterial infections, approx once a month.  The Urologist doesn’t know why the retention occurred but I do have a small bladder.  I did try Intermittent self catheterisation (ISC) for 6mths to empty my bladder after normal urination. This did not seem to make any difference to the infections, but I know it does help some. I have tried several low dosage antibiotics which did seem to help while they worked ! After many years of low dosage antibiotics I had a helmstein (prolonged bladder stretch for 2 +hrs) this worked and for the first time I was able to empty my bladder completely.... I do retain occasionally but with patience can now empty the bladder much better. I still have a few infections a year but it is much better than it used to be. Dawn

DawnCOB

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 Bicarbonate of Soda

 

http://cobf.websitetoolbox.com/post?id=4820798&highlight=success

 

My history in brief - 41 year old female nurse suffering from UTI's for the past 6 years - much worse this past 12 months - have had around 15 courses of antibiotics and am now resistant to amoxycillin, trimethroprim and ciprofloxacin - the only 3 medicines my 'bug' (enterococcus - a bowel bug similar to Ecoli I think) were suspectable to as far as I know. I have seen 2 consultant urologists and was due to have a cystoscopy and urethral stretch next week which I have just cancelled. I had become very desperate having just finished a course of cipro with NO effect - in fact worse symptoms - feeling very tired, tearful, 'spaced out', anxious. Sex life seriously affected as I believe intercourse to be a big cause. In a very bad way I trawled the internet long and hard and found a recommendation by a Dr W...., consultant urologist is the US, to treat myself with BICARBONATE OF SODA! Within ONE hour I felt better! The theory is, I believe, that the bugs need an acidic environment to survive and in a pH neatral or alkaline one they DIE!!! I anyway eat very healthily - lots of raw veg when I can manage and avoid caffeine, alcohol, sugar almost completely. Even so, the pH of my urine is usaly 5 or 6. By taking a quarter of a teaspoon of B. of soda 3 times a day, I've maintained my urine pH at 7 for 2 days and all traces of leucocytes in the urine (my only indication of infection usually apart from feeling really lousy) have vanished! 2 days ago I had 3 +++ of them in the urine. I feel fantastic - more energetic than I have for years, and my thinking is clear again and all traces of anxiety and depression vanished!

I intend to continue on B.of soda long term whilst still striving to improve my diet. I suggest buying pH urine testing sticks - £8 for 80 from Amazon if you live in the
UK and take as much B. of Soda as you need to maintain your urine pH at 7 to 8. I have nothing on the internet to suggest it is dangerous - indeed, one study actually showed to slowed down the rate of kidney failure in some patients. As a nurse, I would suggest using it in a cautious manner as with any chemical - Dr W suggests taking 1 teaspoon dissolved in water every hour for 8 hours or something similar! I personally prefer to just take as much as I need to keep my urine neutral at 7. Just as being in an acidic state (as most of our poor Western lifestyle bodies are) is unhealthy I think to be too alkaline would also not be good though I've no evidence for this.

Remember, because B. of Soda is cheap and readily available there has been no incentive for companies to invest millons in researching it so it's use in this way is not to my knowledge tried and tested and I do not know the risks though personally I cannot see the harm provided it is used carefully. Also, SOME bacteria that cause UTI's actually CAUSE your urine to be alkaline - if this is the case for you obviously sadly this will not work for you. If you can, test your urine first to find out. If not - just try it! You could soon be feeling fantastic too!!!!! JoS

DawnCOB

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Complimentary Therapies

 

http://cobf.websitetoolbox.com/post?id=4996487

I have suffered from bladder infections all my life.

I have turned to the complimentary route as I developed IC after taking anti-biotics 30 months ago and became very ill indeed. I am still recovering and still only forty per cent of my well self.

I see a herbalist at the Hale Clinic - if you google her site she has information about bladder infections. If you go to see her once it is £50 - she may have student rates - if you ask her - I don't know, but she has treated people with recurring cystitis.
The pill can be bad for bladder infections.

Many people visit- http://www.icama.org  - she is a
US chinese doctor that has specialised in IC and knows a lot about bladder problems - her website is very useful re diet - it has a diet section which is really useful. I know many people can't afford to go to Los Angeles - but the website is very good re diet.Rachel

DawnCOB

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D.Mannose

 

COB mag issue 64 excerpt

 

I found Waterfall D Mannose on the internet I take it before sex and after and three times the next day. I have not had cystitis for over 3 yrs, which is really good. anonymous.

 

D Mannose

 

http://cobf.websitetoolbox.com/post?id=2627628

I've been suffering with utis for about 10 years now, I'm 26. Constantly for about 8 years with a year break (no idea why, it just went) came back for the last year, basically every time I had sex, which was starting to mess up my relationship and my life!!!

In the last couple of months I've been using d-mannose. Came across it one desperate night when i was weeing blood, dreading going to minor injuries to get more antibitoics that didn't work then going up to the docs that think you're mad for making such a fuss... Thought anything was worth a try and cranberry etc did absolutley nothing for me so bought a sachet of waterfall d-mannose which was about £18. Best thing I ever bought!!! Started taking it and was feeling better. Not had a full infection for about 6 weeks which is a miracle for me. If I get a twinge I just take more! It's amazing. 
Ames

 

DawnCOB

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Emotional Freedom Technique

 

Excerpt from COB WROH issue 64 pg 18

 

I was at my wits' end in the last 3 months of 2009 during a stressful time in my life (fighting for ill health retirement), and consequently repeated bacterial cystitis infections.  Nothing seemed to be working- hygiene, cranberry supplements, water, the homeopathy that had been so effective for 5 years, and far too many courses of antibiotics (!)

 

I remembered an EFT day workshop I'd attended some years previously and decided to see if EFT could help.  I felt that I needed the guidance of an EFT practitioner and my homeopath introduced me to someone  locally who was very good.  I signed up for a “package” of 4 sessions of hypnotherapy and EFT.  EFT works like a sort of self-hypnosis, so the two go together very well.

The hypnotherapy was wonderful- nothing like as scary as it sounds- a bit like a very relaxing guided visualisation.  EFT gave me seven precious months free of serious cystitis attacks and antibiotics. Liz

DawnCOB

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Hypnotherapy

 

http://cobf.websitetoolbox.com/post?id=1962974

 

Most of us who have had a chronic illness for years end up trying many things to no avail.....it's a very lucky person who gets it right the 1st time! You name it, I've tried it both orthodox and holistic treatments (for BC)...I've spent a small fortune chasing the holy grail.  Hypnohealing or psychoneuroimmunology is still one of those therapies that most people view as mumbo jumbo....quite often I see someone's eyes glaze over when I start to explain how I was cured. It's not the same as 'simple' hypnotherapy and very view therapists actually use this type of treatment...I was very lucky to strike gold there with my first stab at finding someone. I did see Stefan Chmelik at the same time for acupuncture, supplements and chinese herbs but I firmly believe that the hypnohealing did 80% of the healing.

I found my therapist through here -

http://www.abc-hypnotherapy.co.uk/

Their advanced therapists are all trained in hypnohealing I believe.

The other thing I would say (and I was chatting to my therapist about this only yesterday as we are now very good friends) is that somehow I 'knew' my illness was heavily influenced by my mind/emotions. I can't stress enough that this is not saying the illness was in my mind but it was being caused BY my mind. The  area I needed help with was learning what this connection actually was and how it could be switched off. It was a painful process with many tears and a couple of 'healing crisis' episodes which I now understand are to be expected when the right 'buttons' are being pushed subconsciously.
I can't remember when my last infection was now but it must have been > 12 months ago .....this was after about 8 years of what I considered to be a permanent UTI. Millie

DawnCOB

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Homeopathy

 

http://cobf.websitetoolbox.com/post?id=1329235

 

I have been suffering with repeated bouts of chronic cystitis for 8 years and is always brought on by sex. I started off taking antibiotics which would cure that one attack then i'd get it back the next time i slept with my partner. After 2 years i switched to homeopathy. I recently tried taking a dose of antibiotics when i was on holiday as I foolishly hadn't taken homeopathic kit with me, two weeks later and i am still suffering with awful thrush and bad guts. I am now firmly of the opinion that antibiotics are awful and am going back to alternative medicine.

I would highly recommend going to see a practical homeopath as this cleared up my cystitis for up to two years at a time and i was able to enjoy a normal sex life for the first time ever. Great! During my first consultation my homeopath told me that it is not necessary to suffer throughout your life with cystitis or damage your body by taking antibiotics on a frequent basis.

I have started getting it back again recently and i am keeping on with the homeopathy and also giving acupuncture a go. I read that cystitis can be linked to trapped emotions, especially anger and upset, acupuncture is especially good at releasing these emotions and is menat to be the most effective alternative therapy for curing cystitis. If this is the case then no matter how much you treat the physical symptoms it will keep returning until the trapped emotion is dealt with too.

There is a brilliant book called Woman's Bodies, Women's Wisdom by Dr Christiane Northrup which has a load of advice for preventative measures to take such as acidophilus and vitamin C. I have also tried taking colloidal silver from http://www.ukcolloidalsilver.co.uk
which is meant to be a natural antibiotic which you can take daily as a precaution.

DawnCOB

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Uva Ursi

 

http://cobf.websitetoolbox.com/post?id=3138503&highlight=ursi

 

 

Dear friends on the COB message boards,

I am 33 years old and have been suffering from recurrent cystitis almost all my adult life. Like many of you, my symptoms were brought on by intercourse, and often would clear up after a course of antibiotics. However, for the past year, I found that my attacks were growing in severity and frequency, and that the antibiotics were slower to work. I was also beginning to grow uncomfortable with the idea of constantly being on antibiotics, which is what my GP was recommending.

I decided to try alternative methods of dealing with my infections, and have been seeing an acupuncturist and herbalist for the past two months. She has put me on a course of chinese herbs, and given me several other supplements to take (including uva ursi and d-mannose). There is a herbal tonic that I take every day, to keep up my general health, and another that I take in case of an attack. About two weeks into the treatment, I felt a "twinge"--that feeling that an attack is coming on. I immediately began taking the herbs, and had an acupuncture session that afternoon. My symptoms cleared up by the end of the day, and I haven't had an attack since then.

What I have realized from this experience is that I may always be prone to getting cystitis, but that, with herbal medicine and acupuncture, I can learn to deal with these attacks pro-actively and without the use of antibiotics. Just knowing this has made me feel enormously relieved. My fear of having an attack of cystitis used to be something I worried about constantly, always having to make sure I was near a bathroom, and having that anxiety that if I did one thing wrong--forgetting to pee after sex, or not drinking enough water--I would have to suffer the consequences. I can't say that there's a magic formula-and the acupuncture treatments were really expensive, so you have to factor that in-but I feel so much more positive and in control now.

For anyone who's finding it difficult to cope with antibiotics, I would strongly urge acupuncture and traditional chinese medicine.

I have found this message board enormously helpful--I've been on it for some time now, but have never posted. It's great to know that I'm not alone in my pain. So thank you to everyone for being such a supportive community.  Rosella

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