Register Latest Topics
 
 
 


Reply
  Author   Comment   Page 1 of 6      1   2   3   4   Next   »
Lindilou

Registered:
Posts: 122
Reply with quote  #1 

I've had bladder infections now for years. I have interstitial cystitis. I am now immune to Cefalexin due to my old doctor having me on one tablet of cefalexin every night for 6 years !  The consultant has now put me on a rotation of antibiotics of -

(On a rotation every three months, each one for three months at a time)
1,Ciprofloxacin 2,Nitrofurantoin and 3,Trimethoprim.  Point is, in the last year I have had 3 urine infections while on these tablets, the consultant says "Oh 3/4 urine infections a year is quite acceptable"! Well, not for me it isn't ![mad]

I have read in the COB information pack that D-Mannose only works for E-coli. Is E-coli the 'usual' bacteria which infects the bladder?  I have asked my doctor a few times exactly what the infection is I have had etc.  I never get a straight answer, all I get is "Well, for the infection you have you have the right medication".  Yes !, but what infection is it ? (ggrrrr! [mad]) It is becoming so frustrating never to get the answer you require/need.

I am going to have a months trial of D-Mannose of 6 tablets a day instead of the antibiotics, has anyone else done this and what was your experience?

Thanks for any replies
Lindilou [wave]





__________________
[smile]
Firefly

Registered:
Posts: 32
Reply with quote  #2 
Hi Lindlou

E-Coli is the culprint for infection most of the time but there are others unfotunately as well.

In my time I have had Staphlococcus, Strep B and Enterococcus as well. I use D-Mannose and also Oil of Wild Oregano and probably average two infections a year on this regime.

If you want to know what your previous infections were you could ask the surgery for the lab reports which should be in your notes.

I was on a preventative antibiotic for a few months before I stopped it and used the D-Mannose and other natural supplements to keep things under control. They work well for me - don't be afraid to try.
Moderatorsusan

Moderator
Registered:
Posts: 941
Reply with quote  #3 
Lindlou

Firefly is right - although E Coli is the main culprit for UTIs other bacteria can also cause issues such as Enteroccous, Proteous, Klebsiella, Staph etc. The critical thing is to ensure that when you get your urine tested, you get a laboratory report from your GP showing what has been cultured and what antibiotics are susceptible and resistant to your bugs.

D Mannose works only on gram negative bacteria such as E Coli which is why it is important to understand what bacteria has been found in your urine. The powder is best - take 3-4 teaspoons a day in water and when flaring you can increase to a teaspoon once every 2 hours. Be aware that it can initially give you loose stools but this should settle. Oil of oregano can certainly help along with naturals such as Uva Ursi.

As for the urologists' comment about 3-4 infections a year being normal. It's not, it just shows that you have not got rid of the previous infection and a low grade one is lingering.

COB have plenty of factsheets about bacterial cystitis the can send you with advice and tips. Do call them.
ModeratorKate

Moderator
Registered:
Posts: 1,666
Reply with quote  #4 
Hi all

Lots of good advice being given, so do let us know your journey,

Re COB ADVICE line." COB have plenty of factsheets about bacterial cystitis the can send you with advice and tips. Do call them."...
 
Due to being a small Office,the phone will be unattended until 12th August.

Kate

P.S.
Do However keep posting on here the forum as we will still be listening and hopefully assisting you all, as we are most definitely reading and replying together with the many wonderful members, trying to help you.

__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Lindilou

Registered:
Posts: 122
Reply with quote  #5 
Thank you both for the very useful information, I will endeavour yet again to get results next time I see the gp.  I have just spent quite a bit of money on the Sweet Cures Waterfall D-Mannose tablets (a few boxes) so will use these up first , then get the powder.
I have requested the Bacterial Infection pack so I should receive that shortly.

Thanks everyone for replying  [biggrin][thumb][love][smile]

__________________
[smile]
ModeratorKate

Moderator
Registered:
Posts: 1,666
Reply with quote  #6 
Hi Lindilou

Do hope you get some relief,and do let us know,

The tablets better than nothing, as you say use them first.

Kind regards
Kate

__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Lindilou

Registered:
Posts: 122
Reply with quote  #7 
I am confused, I have just received my tablets of Waterfall D-Mannose and it says "For maintenance take 2-3 tablets before bed "?
Advice on here is to take 6 a day?

[confused]

__________________
[smile]
Moderatorsusan

Moderator
Registered:
Posts: 941
Reply with quote  #8 
My advice is based on the powder which I take and its a teaspoonful up to 6 times a day when you experience an attack. A maintenance dose is 2-3 times a day.

Follow the Sweetcures tablet advice and see how you get on. You can always call them as I know they are very helpful and have an excellent website.
barbie

Registered:
Posts: 40
Reply with quote  #9 
I had good results with D Mannose, it bought me two years without needing antibiotics.  I was taking three tablets a day but gradually had to increase this to keep symptoms at bay.   However, on consulting the London Professor in October last year it was discovered that I had an embedded infection.  I had nine months of high dose Nitrofurantoin, stopped this at the end of June.  Still on Methenamine Hippurate twice daily, okay so far.
Lindilou

Registered:
Posts: 122
Reply with quote  #10 
I am amazed that doctors don't tell us about D-Mannose or Oil of Oregano but then they wouldn't be supporting the pharmaceutical industry by doing that would they ! [wink]   And heaven forbid....they can't help us help ourselves can they !
__________________
[smile]
Lindilou

Registered:
Posts: 122
Reply with quote  #11 
Just a thought- Is there any difference between the oil of oregano capsules and the oil of oregano cooking oil? 
__________________
[smile]
Lindilou

Registered:
Posts: 122
Reply with quote  #12 
D-mannose is helping my bladder etc wonderfuly, but I've had athletes foot since I started taking it, maybe I'm sensitive to the sugar it contains as I have read it can cause fungal infections and they feed on sugars etc.

ps - has anyone else had this problem?

__________________
[smile]
Lindilou

Registered:
Posts: 122
Reply with quote  #13 
Does anyone know of any medical proof that D-Mannose works, other than the information in the fact sheet?
__________________
[smile]
Lindilou

Registered:
Posts: 122
Reply with quote  #14 
Is there anybody still posting on this site?
__________________
[smile]
ModeratorKate

Moderator
Registered:
Posts: 1,666
Reply with quote  #15 
Hello Lindilou

The Forum is quiet at the moment, hopefully that may indicate that Members are finding relief in managing their symptoms, and  of the almost 300 people who have looked at your post, they do not feel they have any more useful information to give to you.

You could, telephone our advice line, who may have more detailed information that could assist you.

I do hope you are still feeling benefit from taking the D Mannose, as we all know, we are so different and react in different ways, it is so annoying when we think we maybe winning , only to find we have another set of symptoms to deal with.I wonder if the Powder that Moderator Susan takes would have less sugar.

Kind regards
Kate



__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.


This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.