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ModeratorKate

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Reply with quote  #31 
Hello Londilou
" Please can you tell me when is the nurse next on this site available to speak to?"

Sadly the Monthly Advice Nurse will not be in attendance this year, However the COB office will always be available for support, advice, and links to further assistance.

Keep up your search for answers, and dont forget to post ,when you think you have a solution or notes, that may help others.

Kate




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Lindilou

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Reply with quote  #32 
My bladder infection appears to have gone, however since restarting the D Mannose, I'm urinating for England.  I know for a fact that my bladder does not like sugars, I did a trial of foods to see how they affected me and sugars make my bladder worse/irritate it and D Mannose is also a form of sugar.

This is the second time I have given D Mannose a go. I've been awake the whole night going to the loo, Maybe D Mannose makes your kidneys/bladder work more, I don't know but I am sure that D Mannose is not for me. [bawl]

Ps am seeing the doc at 9.10 this morning, taking a urine sample with me, the other sample I took the other day came back clear


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Moderatorsusan

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Reply with quote  #33 
I'm sorry to read that the Mannose has increased your frequency. I would hesitate to blame the D Mannose as most of it is excreted rather than absorbed. However it's your body. Just bear in mind that with an infection you can knock back one bug only for another to take its space so whilst the Mannose may have knocked back your E. coli, it may not work for say a gram positive bug for which Mannosecis ineffective.

Try stopping the Mannose and see what happens. Also make sure it's not thrush causing symptoms for you especially if you have been on antibiotics.
Lindilou

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Reply with quote  #34 
No signs of thrush yet whatsoever, another urine sample has been handed in at the docs this morning.
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Lindilou

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Reply with quote  #35 
I give up, it's all guess work.  There are no warnings on the D mannose packets, no proper/real information.  I've read it can cause loose stools and kidney damage, also pregnant women to be careful of it.  Also diabetics to be careful too.

How can rice flour stop an infection?, and sugar of any form will not help either- because that's what is in it.

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ModeratorKate

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Reply with quote  #36 
Hi Lindilou
"I give up, it's all guess work." [rolleyes][wink]

Doh!!! so true but dinna give up!!!!! we all understand, , unfortunately this is what makes it so difficult, there is no set answer that will work for everyone, it is so infuriating, as what suits one will send someone else all haywire...

Try and master one thing , and then attempt to work on another,it's not easy, but we have to try...

Keep posting and nattering to us, we will always listen, It was heartening to read you have the infection under control, now lets think about slowing the weeing, reduce the quantity of each  time you drink, but still important to keep the fluids up, maybe also , could you reduce the amount of intake before bed, and try to relax, does a warm hottie on your tum help?, sometimes cold around the bladder is not good..

Just some thoughts.

Take care.
BIG hugs
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suzyj

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Reply with quote  #37 
Hi - I'm new to this forum. I had lots of Urinary Tract infections when I was in my 20s (now 64) and on and off ever since. I hadn't had any for a long time but then developed another one about 4 months ago - initially given 3 days of trimethoprim (didn't work and useless doctor) then Cipro (cleared it up) then it came back again and was given  7 days of Nitro which worked but left me with an irritation for weeks. Now I think it has come back again so have booked another  doctor's appointment.

The tests showed white blood cells present in urine but no bacteria. I see others have had the same - just white blood cells. I have read somewhere online (Web MD) that the lab tests are not sophisticated enough to detect low levels of bacteria. You know when you have an infection!! A sonar scan showed no abnormalities.

The difference with this bout of infections is that even in between I have greater frequency and irritation in the bladder. I take cranberry supplement every day although I read somewhere that this is not a good thing. Alcohol seems to be an irritant - as all symptoms had disappeared I decided to risk a couple of glasses of wine and that seemed to trigger this latest episode (will see whether it is infection after test) so that is off the menu now. Might have to give up coffee as well - that will be difficult first thing in morning>[smile]

I have just ordered D Mannose and am hoping that will help and not cause even greater frequency which some posters on here have reported.

Another thing I have tried with some success is a herb called couch grass - looks like twigs and tastes inoffensive. It is a diuretic I think so although it causes frequency it flushes the bacteria through the system.

Sorry for rambling post. Will post my success or not with D Mannose but hoping for the best.


Moderatorsusan

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Reply with quote  #38 
The specialist I see argues that white blood cells in the urine are a sign of infection and he goes by urine micrcrocopy and patients symptoms to treat as microbiology testing is failing to pick up nearly 50% of infections now.

Given your age and that you are post menopausal (and my apologies for being so direct) but would you consider low dose vaginal oestrogen? I seem to be reading this a lot on the forums at the moment from ladies in their 40s onwards picking up recurrent infections. The oestrogen is naturally anti microbial and keeps the bladder and vagina plump and stops dryness and the inevitably change in vaginal ph which occurs as women get older allowing bacteria to flourish. The urethra also tends to stay open because of the lack of elasticity and this allows bacteria into the bladder. Vagifem or Ovestin cream could be discussed but obviously if there is a history of cancer in the family then this must be taken into account.

D Mannose is a very effective way of keeping E. coli and other gram negative bugs at bay. I've attached some links below as to how to use it and why it works. It's not going to work for everyone as it depends what type of bugs are dominant in their bladders. If gram positive them it won't help but have a read.

https://www.sweet-cures.com/cystitis-treatment-method.htm

https://www.sweet-cures.com/e-coli-cranberry.htm

https://www.sweet-cures.com/urinalysis-lab-testing.htm

https://www.sweet-cures.com/uti.htm

Hope you get some relief soon. COB can send you their bacterial cystitis pack as well as a pack for those getting recurrent infections that aren't responding to the available low dose treatments.





suzyj

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Reply with quote  #39 
Thanks for reply. No problem being direct - can't get away from the ageing process - sadly.

I have been given hormone cream (Ovestin) for other reasons but didn't like it. However,  I think I will go now and get the prescription changed and  try it again as it might well help. The doctors I have seen have said that white blood cells in urine are a sign of infection but further tests didn't pick anything up but they didn't say that tests fail to pick up 50% of infections so that is interesting to know that.

I have ordered D Mannose so will have to see how effective it is for me and will check out the links later. I might also get Potters Antitis to see if that helps. Do you have any experience of this? At the moment it is just annoying but I can see that if it keeps recurring and there is more irritation to the bladder then it will be a real problem - I am working and most of the time have easy access to a toilet but it is a bit awkward to keep going out of the room!

I have found a doctor who specialises in UTIs but it is quite a long way from where I live and private but she seems to offer a lot of other tests so if other things don't work I will try that but have limited money to spend on private medicine.

I will read the info about D Mannose later as I don't really know what it is and how it works.

Thanks
Moderatorsusan

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Reply with quote  #40 
I have tried Potters Antitis previously but it certainly didn't help with my infections. However do give it a try.

You could also try oil of oregano tablets for 2 weeks but be warned they can be strong on the tummy and some ladies flare from them but they are anti bacterial.

If you didn't get on with Ovestin, why not try Vagifem? It's not half as messy in fact there is no leak at all and after two weeks of using it every day you can drop down to 2-3 times a week. Lots of ladies have reported feeling a lot better using. It and remaining infection and pain free. It won't happen overnight it will help over a few months.

Be warned there is no difference in the testing offered by private urologists to that of the NHS they all use the same testing methods I.e. Culturing over a 48 hour period only . I must have had 20 both privately and NHS samples in 15 year period all come back no growth, mixed growth or low growth. However on seeing my specialist now and because she uses a different culturing method, six bacteria were identified along with the resistances and susceptibilities to antibiotics on my first culture and I did nothing different in preparation. The COB have full details for her and costs are not expensive. In fact the test and consultation will probably be the same as seeing the private urologist for one appointment.

Do have a read of the links. Lots of useful info in them and if you are seeing benefit from D Mannose stick with it. You can take it up to 8 times a day in a flare and a maintenance dose of 3-4 times.

Wishing you better health.
suzyj

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Reply with quote  #41 
Hi  Well I have just got back from the doctor who thinks I have a low grade infection - the dipstick test showed some white blood cells, trace of blood and nitrates. She has given me 3 days of Nitrofurantoin and has suggested a long term antibiotic (one at night). I am not sure I want to go down that route as resistance could be a problem.

I have just got D Mannose  so could try that first - does that work for low grade infection. I am worried that this could all lead to further problems. I think she is right that it is a low grade infection as I don't feel particularly ill just a bit off and frequency as well as slight ache in kidney region.

I don't know what to do for the best really. The doctor has sent off the sample and has booked me in for another appointment in a few days. I have had a lot of UTIs in the past but this seems to be different as it has not cleared up but is lingering for a long time - at least a couple of months.

I think I will join the COB as this is one of the most helpful forums I have come across.
Lindilou

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Reply with quote  #42 
I take D-Mannose as well as the antibiotics, it's ok to do that.  Take both then continue with the D-Mannose after the antibiotics have finished.
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Moderatorsusan

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Reply with quote  #43 

It would be useful to know what the results are when the test comes back and make sure you get a print out of the results from your GP.  I'd be loathe to take long term low dose abs as this sets up resistance and will probably not shift the infection.  Ideally you need to go in high and hard but this goes again NICE guidelines.

D Mannose can be taken at the same time as your abs and you can carry on with it after they have finished.  It only works on gram negative bugs so again you really need a culture to confirm exactly what you have.  Bacteria falls into two camps, gram negative and gram positive.  E Coli for example is gram negative.

You can try naturals as well as the D Mannose such as Oil of Oregano oil two tablets twice a day or Uva Ursi (to be taken for two weeks only).

Do join COB.  You will get lots of support and information and there is an annual conference which has many interesting speakers.  COB can send you their bacterial cystitis pack as well as a pack for those getting recurrent infections that aren't responding to the available low dose treatments.

Don't forget to look into the oestrogen side of things for your urogenital tract given you are post menopausal.  Vagifem is very comfortable and far less messy than the creams.  No leakage at all in fact so one less thing to worry about.  Your bladder and lady garden will thank you for it.

 

 

suzyj

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Reply with quote  #44 
I was only given 3 days of antibiotics (now finished) and also took D Mannose which helped. I didn't realise how many D Mangoes you had to take so only ordered one packet which means I have run out and the symptoms are reappearing. I have ordered another 3 packets which should be here soon. I am taking Oil of Oregano. The tests sent off to the lab came back clear apart from white blood cells. The dipstick test showed red blood (small amount - not visible) and white blood cells - I think the doctor is right it is a low grade infection but I think I should have been given stronger abs for longer - what do you think?

As far as D Mannose is concerned how long do you have to take it for in high doses - I wasn't taking it correctly until I spoke to someone at COB (and joined) and after following the advice I noticed a very quick improvement. For long term maintenance would 2/3 in the morning and then 2/3 last thing at night be enough - it would be too expensive to take the high dosage on a very long term basis (what price health though[smile]. As far as I have understood D Mannose works by flushing the bacteria out of the bladder/urinary tract as the receptors on the bacteria attach themselves to the D Mannose rather than the bladder wall or wherever but does it actually stop them multiplying?

I have also been referred to the urology department - probably for a cystoscopy which, having read some of the postings here, I am not keen on. The doctor also mentioned washing out the bladder with an antibiotic solution - do you know anything about this?

I think I will also have to consult the private doctor that you mentioned - I expect the information on this is sent out in the pack that you get when you join.
Lindilou

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Reply with quote  #45 
The other week I had some sort of infection too and like yourself was only given 3 days of antibiotics.  I also take D Mannose.  Now it's settled down I take one D Mannose in the morning and one in the evening.

In my opinion you should of been given a weeks worth of antibiotics.

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