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Beatit

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Posts: 29
Reply with quote  #1 
D mannose 5th day.  
Not much improvement noticed.  
Should I feel improvement by now if Dm is going to work?
Or should I persevere longer?
I have been taking 3,4,5 teaspoons per day.

I have urethra soreness/irritation and getting worse yesterday and today.

I should appreciate to hear your experience.
Moderatorsusan

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Posts: 920
Reply with quote  #2 
It usually works within a few days so I'm sorry you aren't seeing much difference. I can't remember if your GP has tried localised oestrogen with you such as Ovestin or Vagifem. Have you been checked for Vulval and vaginal atrophy? This can be leading to the UTIs and urethral discomfort. Even a simple moisturiser such as Yes is recommended.

In terms of what else to try that is a natural opposed to an antibiotic this article may be helpful.

https://chriskresser.com/treat-and-prevent-utis-without-drugs/

I wouldn't give up on the Mannose just yet, its worth stopping it to see if things worsen and if they do they it could be helping albeit slowly. The COB office have a bacterial cystitis pack they can send you if you want to call them in the morning which has more suggestions.
Beatit

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Posts: 29
Reply with quote  #3 
Thank you Susan.

I am going to step up the dose to 7 or 8 spoons a day and see if it makes difference.  However, did I read somewhere that D m is only for 5 days?  Is it safe to continue longer.  I hear there is no side effects from D m, so must be alright.

I have decided to start Oil of Oregano capsule too.   Taking Dm and Oil of Oregano is OK, isn't it? This is my next hope.

I do have atrophic vaginitis and have been using Vagifem and Replen twice a week since June. But they have not cured my urethra soreness/mild cystitis symptom.

I think my problem is quite simple comparing with other sufferers on the forum. It would be great if I can cure this without taking anymore antibiotics.




Moderatorsusan

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Posts: 920
Reply with quote  #4 
You can take D Mannose as long as you want and Daily as a maintenance dose. Many do to keep infection at bay or to prevent further UTIs. And yes you can take Dm and OOO at the same time but obviously take them at different times during the day.

In terms of the vaginal atrophy I would talk to your gynae as the Vagifem dose can be increased to 5-7 times a week along with a vaginal lubricant. There is an excellent menopause/post menopause and women's health clinic in London based at an NHS hospital where they are dealing with women wth atrophy and associated bladder and other problems. I'm aware of a number of ladies being treated there successfully and they have increased their usage of Vagifem and local oestrogen under the guidance of the specialists there. The COB office can give you more information. Unfortunately there is a long wait list for a referral but you could at least talk to your gynae once you have the info and the name of the lead specialist to see if he/she is in agreement with increasing the dosage. Some people are finding it is taking up to a year if they have severe atrophy before things feel more comfortable and that is using oestrogen daily but certainly they have found their bladder symptoms have improved significantly. There is a lot more education of GPs and sadly gynaes needed.

These two articles may be of interest

http://www.bladdermatters.co.uk/content.php?id=164g%3D2%2FRole-of-Estrogen

https://www.sciencedaily.com/releases/2013/06/130619164620.htm







Beatit

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Posts: 29
Reply with quote  #5 
Thank you susan.

You mentioned an excellent menopause/post menopause and women's health clinic in London based at an NHS hospital. Is this same as the chronic recurrent UTI clinic at UCL headed by Dr SE?

If so, I have already asked GP to refer me but she refused to do so as I am already under an urologist.  My GP thinks all my urology problem have to be dealt by him. Difficult GP to deal with.
Moderatorsusan

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Posts: 920
Reply with quote  #6 
No this is a different one located at another hospital.  If you contact the COB office on Monday they can advise you of its details.  Your GP has no right to deny you access to a clinic, please see the attached link.  You can obviously advise your GP that your current treatment is not working and you wish to be referred to another specialist firstly for the bladder and urethral issues and secondly for the vaginal atrophy.  Both hospitals are centres of excellence and you can make the point that in doing this it will save unnecessary incorrect treatment costs at the wrong hospitals if you are referred to the appropriate clinics.  

http://www.nhs.uk/NHSEngland/AboutNHSservices/NHShospitals/Pages/HospitalsSummary.aspx#choice

http://www.nhs.uk/chq/Pages/902.aspx?CategoryID=68&SubCategoryID=162
Beatit

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Posts: 29
Reply with quote  #7 
Thank you Susan.

When I think my atrophy and urethra problem started around the same time, perhaps it is reasonable to think my urethra problem was caused by lack of oestrogen. No white cells in the urine sample but bacteria could also indicate soreness is caused by lack of oestrogen rather than infection? Anyway, as there were bacteria, D m should work really.  I will persevere with D m.
 
I will get info from COB office.

I am not looking forward to confronting my GP but it might be necessary.

Thank you for all your advice.
doloroso

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Posts: 66
Reply with quote  #8 
Stick to your guns! Do NOT take a no for your referral. It's your body and your health. Sending a Good Luck wish! [wave]
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