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heathwhit

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Posts: 212
Reply with quote  #1 
I am in such a dark place since my cystoscopy csn"t stop feeling i want to wee all the time i am walking about never felt like this before just stingy and burny after weeingand very painy in vulval area.I had no need to have that procedure done and regret every moment.I feelmy life isfinished how can i go anywhere feeling like this it is horrible i am writing this through my tears which flow daily .Please has anyone else felt like this after this procedure to give me some hope for the future.
.

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H.M Whitworth
Eva

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Posts: 268
Reply with quote  #2 
Hi heathwhit, please don't despair, remember this is a temporary situation and things will improve. I know how it feels to wonder how you will get thru the next 10 mins never mind long-term. What helped me was distraction and focusing on the fact that the suffering is temporary. Best wishes.
Catadam2020

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Reply with quote  #3 
Hi. I'm really sorry you're having such a difficult time at the moment. I had unbelievably horrid time after my cystoscopy too. But it does get better.
Stay strong xx
heathwhit

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Reply with quote  #4 
Thank you for your reply it does help to know others have gone through problems after cystoscopies, still regret having it , didn"t seem to find much when they did it just some inflammation which MIGHT be the causeof my problems.I think i have vulvadinia.
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H.M Whitworth
heathwhit

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Reply with quote  #5 
Hi catadam,, could you tell me what your symptons were after your cyscosopy because i am in a horrid place.

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H.M Whitworth
Catadam2020

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Reply with quote  #6 
Hi. Soon as the procedure was finished I went to the toilet and it was like weeing glass. I was crying. It went on like this for over a week. Then slowly it started to ease up. I did take pain killers as well. I sat in some warm water also. My issue was that I had urithral stricture. So after the cystoscopy even though it was very painful. It opened up my urethra more so it actually helped me. But for about week to ten days. I was in a lot of pain. If you're still in a lot of pain. Please make appointment with the doctor again.
heathwhit

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Posts: 212
Reply with quote  #7 
Thanks for your reply i think my situation is far worse than yours, i had the passing glass just for one day then things went back to what i felt like before the procedure, it was a few days latet everything stsrted to flair up , wanting to wee all the time no relief after voiding even some pelvic and bladder pain never had that before.it us now seven weeks since the op, i keep giving samples for infection all negative, i am at the end of my tether i am not young any more and my next urology app is november.

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H.M Whitworth
Catadam2020

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Reply with quote  #8 
What are the doctor la saying ? Any reason for your symptoms? Any painkillers?
heathwhit

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Posts: 212
Reply with quote  #9 
Hi, it's all hopeless, keep sending samples that come back negative but i am certain i have an infection.Just been reading an interesting article in todays daily mail regarding uti testing saying that infections are not been picked up, not made me feel any better.
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H.M Whitworth
Catadam2020

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Reply with quote  #10 
Have you had antibiotics?
Moderatorsusan

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Reply with quote  #11 
What I'm struggling to understand here is that despite you having a private medical sample taken after the procedure which tested positive for infection, your GP refused to give you antibiotics because the dipstick showed negative. Are they not listening to your symptoms or just relying on outdated and unreliable testing? I'd also take the article in today's Daily Mail and ask him to read it. Even the chair of the GP urological committee is admitting that the testing is hugely flawed and GPs urgently need guidance on how to deal with UTIs that don't clear after a 3 day course of abs.

I would go back to the GP and show him the test again and ask for a course of antibiotics. Any urological procedure should always be acccompanied by antibiotic therapy because instrumentation introduces bacteria into the urethra and bladder or disturbs existing bacteria causing a flare up.It has been nearly 2 months since your procedure and you cannot be left like this. Perhaps also contact the urologist who carried out the procedure and explain what has occurred and what has been found on the sample result. If nothing else they should be prescribing a course for you or at the very least seeing you because your symptoms are so bad.

heathwhit

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Posts: 212
Reply with quote  #12 
Hi , no abs just had a call from the nurse at our surgery to say there was a small trace of leauctysides , don't know how to spell that, asked her what that meant she said it could be a small trace of infection, going to send it to hospital for testing, no blood.Honestly you couldn't make it up, how i feel it feels like a ragi
Ing infection.She said my gp will ring me on friday with the result.So i carry on suffering.

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H.M Whitworth
Moderatorsusan

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Reply with quote  #13 
Its a start but I'd also contact your urologist who carried out the procedure and ask for an emergency appointment. You should never have been left to manage this for so long without support especially if the GP is continually struggling.

Catadam2020

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Posts: 13
Reply with quote  #14 
Tbh I would complain and demand to speak to another gp straight away. If you have even a slightest showing that there could be an infection. They should start you on a course of antibiotics asap. You shouldn't have to suffer like this. If I were you I would call them back and ask to either speak to another doc or speak with the practice manager if they refuse.
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