Register Latest Topics
 
 
 


Reply
  Author   Comment  
Cleo

Registered:
Posts: 11
Reply with quote  #1 
Hi all!

Since 2008 I have been suffering with cystis like symptoms always triggered by sex.  My symptoms are just an incredible urgency to urinate which comes on very quickly (about 2 days after sex) and lasts for hours.  After drinking gallons of water I am able to move from the toilet to my bed and it eventually subsides over about 3 days.  I have always been prescribed antibiotics but no UTI present.  I've had a cystoscopy and bladder diagnostics done which found a slightly narrower than normal urethra.

I tried all the usual stuff, lube, condoms, herbal supplements, post-sex pill showering before and after etc.  Nothing worked until I met one guy who I was with for a year and we had a LOT of sex and I never got it once!! I can't work out why?

I am now with a new partner and the 4th time we had sex I had a flare up which has lasted 4 weeks now.  I am clear of all STI's as I've been to the sexual health clinic. I have just been given Oxybutonin and have been taking it for 3 days now but feel no difference.

My question is: what have I got and why is it brought on my sex with every partner I've been with except for the one I've had the most sex with???? And why is this attack lasting so much longer!!

In desperation....
Moderator_Jen

Moderator
Registered:
Posts: 963
Reply with quote  #2 
Personally I think this might be dual related problem, both urological and gynaecological. I'd suggest discussing this with your Dr and asking for a referral to a uro--gynaecologist. Alternatively a visit to your local sexual health clinic might help get some answers. X.
__________________
Bladder Health U.K. Forum Message Board Moderator.
Kent Support Group Co-Ordinator
Special interest in supporting those with Interstital Cystitis, Fowlers Syndrome and those who have bladder issues in Kent.

Please support Bladder Health UK by become a Bladder Health UK member  - click here for more details: http://bladderhealthuk.org/membership
coboffice

Moderator
Registered:
Posts: 991
Reply with quote  #3 
Hello Cleo

I have responded to your e-mail regarding the issues you are having. Please do e-mail me again if you need any further help.

I do agree with Jen a visit to a Uro-Gynae might be a good idea.

Susannah Fraser

__________________
for Bladder Health UK
Cleo

Registered:
Posts: 11
Reply with quote  #4 
Thank-you Jen and Susannah.  I actually ended up in A&E in the early hours of Monday the discomfort was so bad.  I was given two lots of morphine but it didn't last long....they did all the usual tests and scanned my bladder and I only had 20ml in there so it is emptying properly.  They said it was probably gyny related and sent a referral to my doctors.  I am now waiting for the consultant to call me back from a private hospital (work healthcare thank god) but she can only get me in next Wednesday so I have to wait.

I was worried about how I can manage this discomfort in the meantime and explained noting seems to be working so they sent me home with Buscopan (anti-spasmodic) - I can't really tell if its working, this morning I feel very tender and slightly worse than I did yesterday.  I'm back at work but all I can think about is keeping my discomfort to a minimum and praying it doesn't' flare up again.

Oh, I had a full sexual health screening about a fortnight ago so no STI's etc present.  Do you think something in my womb/uterus could be pressing on my bladder? 

Grateful for all you do for us.

Lisa
coboffice

Moderator
Registered:
Posts: 991
Reply with quote  #5 
Hello Cleo

I am sorry to hear you have had to go to A&E but it's good to hear you have an appointment booked to see if the issue is a gynae one. Pressure from another organ such as the womb or bowel can make the bladder irritable but it is impossible for me to say whether or not this is the case for you.

We have a specialist nurse bowel and bladder health on our advice line today. May I suggest that you give her a call (between 10.00 am and 2.00pm) to discuss things. The number is 0121-702-0820.

Susannah Fraser

__________________
for Bladder Health UK
Cleo

Registered:
Posts: 11
Reply with quote  #6 
Update - 

I was referred eventually to a urogynacologist and have now seen her twice.  She bladder scanned me and everything is emptying normally.  She has started me on a low dose anti-biotic to see if that helps.  She also got me in for an ultrasound, this showed normal bladder, no cysts/fibroids etc etc.  However there was a small amount of fluid in my uterus but she has put this down to me being on my period.  However, she described my uterus as Adenomyotic but normal.........

What does an Adenomyotic uterus mean?  Does that mean I've got Adenomyosis?  If that is the case how can it also be described as 'normal'??

I am also prescribed Neditol and I am feeling a little better.  I am due back to her in 6 weeks where she may want to arrange a cystoscopy and laparoscopy or hormonal suppression...

So I'm getting some answers now but not a diagnosis yet.....


coboffice

Moderator
Registered:
Posts: 991
Reply with quote  #7 
Hello Cleo

Glad to hear that things are progressing and you are starting to find some answers. Keep us posted.

Susannah

__________________
for Bladder Health UK
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

 Teva UK Ltd Abena.co.uk
This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.