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sara74

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Posts: 5
Reply with quote  #1 
Hi,

I was hoping someone could help me, i'm at a very low point. My bladder hurts as it fills up, once i've been to the toilet I have relief for a few minutes.

I've had IC for a long time but luckily my symptoms started to fade and I went into remission for 6 years.  It came back 2 weeks ago.  Along the years i've been to see an Urologist, had my bladder stretched, cysistat, various drugs to help ease the pain without much success. 

I've read posts about a London Professor and Dr A, Who are they please? At this point I would do anything to be out of pain.

TIA

Sara
ModeratorKate

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Posts: 1,763
Reply with quote  #2 
Hello Sara74

Welcome to the Forum.
So sorry to read of your discomfort.
If you contact BHUK and become a Member, they will be able to give you all the latest information re London Professor along with so much more helpful advice.

Please do contact them today.
Kate


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sara74

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Posts: 5
Reply with quote  #3 
Hi,

I have become a member but I can't get through to anyone.  I have tried the confidential Advice Line.

I've been to my doctors today and she is willing to refer me but the Professor in London isn't taking referals on the NHS.  Is there another doctor that goes down the long term antibiotic route that I can be referred to on the NHS.  I live in Lincolnshire but to be honest I would travel anywhere in the world if I thought I could be helped. I'm just so tired and helpless in all of this, I feel like my life is over.


Moderatorsusan

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Reply with quote  #4 
Sara - keep trying - there are two other specialists and BHUK can give you details.
sara74

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Posts: 5
Reply with quote  #5 
I spoke to someone but she couldn't give me details of anyone other than a doctor in Crewe.  Please if you know the name of these doctors can you private message me. I'm desperate and i don't know where else to turn.
BHUKOffice

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Posts: 63
Reply with quote  #6 
Hello Sara74

I have messaged you with the information you are looking for. If you need anything else, please do call our office again tomorrow.

Susannah Fraser

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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.