Thank you redhead01
BHUK are fully aware, and I post their latest comment for all to read.
"Bladder Health UK are aware of the recent article released by the American Academy of Ophthalmology regarding long term use of Pentosan Polysulphate (Elmiron®) and a possible association with retinal maculopathy (eye disease).
We have spoken with BHUK medical panel members and advise any members who have been taking Pentosan Polysulphate (Elmiron®) for a prolonged period of time (between 12 and 20 years) to have regular eye tests – at least 2 per year- particularly if they are noticing any changes in their vision.
All members with concerns about continuing to take Elmiron should discuss these with their Consultant before taking the decision to discontinue treatment. Also, don’t stop treatment without talking to your health care professional first."
We are aware that the manufacturers of Pentosan Polysulphate and the relevant authorities i.e. European Medicines Association are reviewing emerging data and we will keep you informed of developments.