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Moderatorsusan

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Just to make you aware that there has been in existence for 3 years now a FB support group for those IN treatment with the Professor or Dr A (not those thinking of seeing them).  It comprises members from all over the world and also members that don't receive treatment from them but have embedded biofilm infections in their bladder and are treating accordingly.

Following discussion with COB, it has been agreed that this group can be mentioned on the forums for those wishing to join.  There are two groups, one for men and one for women.  The action points posted in this section have been put together by these groups along with the template letters posted by COB on their website (albeit modified for COB's use).  The groups have no clinical training so please do not expect to have your medical or prescription needs met but are very actively looking at ways to reopen the clinic, provide patient support and provide updates on any conversations held with the hospital as well as diet and general lifestyle advice.

If you would like to join one of these groups then please PM me.  I will send you a standard response providing you with full joining instructions.  Both groups are closed, secret groups on FB so anything you post will not go onto your own page.

COB are aware that Facebook is not a viable option for all members and will continue to offer full support to those not wishing to join a Facebook group.


Moderatorsusan

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Reply with quote  #2 
Please be advised that some of you who are messaging me have your PM replies switched off so I am unable to contact you with details of how to join the Facebook group.  Please check your settings and change them so that I can send you details.
Moderatorsusan

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Reply with quote  #3 
Just a reminder that there is specific FB group for people who are patients of Prof and Dr A. Additionally a separate group has been set up for the campaign against the clinic closure. When you join the main group you will also if you wish to join the campaign group be added to this. Your support and input is vital to get the clinic reopened.
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