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Charlette

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Posts: 2
Reply with quote  #1 

Hi there,

this is my first visit to the cob foundation, im so thankful i found you and i so wish i you can help me answer my questions! Ive only been suffering with BC for about 2 years im only 19yrs old and ive never felt pain like it, last night was the beginning of another attack, the pain was so unbearable i really felt i needed to go to hospital but couldnt get there because i couldnt get off the toilet, so spent the night alone and in pain, story of my life! However, when not on the toilet i was on the internet looking for cures to cystitis and came across waterfall d-mannose and was very tempted to buy it, has anybody else tried it and does it work? PLease help

Charlette, London


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CJ Flegg
Elena

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Posts: 188
Reply with quote  #2 

Hia - sounds as if you've got it bad.  I am on D-mannose but can't tell you if it works or not as I am also on a lot of medication for BC.  If I begin a flare up I am managing it by doing the 3 hour emergency first aid treatment (in Angela Kilmartins book) plus the d-mannose and it seem sto be keeping it under some kind of control (albeit not enough).  Have you been to the doctors and been diagnosed with BC and also had all the tests done (it could be IC).  You shouldn't be suffering like that, there is lots of medication that can help and I would be inclined to go back to your doctors.  Sorry not to be of too much help, but this site is great for support.

 

xE

patricia

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Posts: 4
Reply with quote  #3 

Hi Charlotte

 

It does sound really bad.  My daughter is 19 so I can imagine it will be really bad for you.

 

I tried waterfall d mannoose for about six months.  I found it made my symptoms less worse if I took a lot as soon as the pain started.  However it did not prevent me getting cystitus in the first place - the info claimed it would if I took it before and after sex or every day.  It also worked out expensive - I was paying 33 pounds a month for the powder just to keep on a miantenacne dose and take it when the pain started. 

 

I only took it after I had tried orthodox medecine.  I think you should go to your GP and try antibiotics first and also see if you can discover what is causing it.  I stopped having bubble baths, perfumed soaps etc and was very careful about my hygiene.

 

Good luck

 

Pat

Charlette

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Posts: 2
Reply with quote  #4 

Hi,

Thanx for the advice, i am going back to my GP and asking for a proper diagnosis as in the past he has just told me it will pass and to just keep drinking water, but now im back at university it cant go on any long. Thanks again for your advice, this website has been brilliant as none of my other friends seem to have never had it! Lucky them!

Charlette x


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CJ Flegg
Fiona80

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Posts: 2
Reply with quote  #5 
I have used Waterfall D-mannose and didn't work for me but did work for my friend.

You sound just like me 7 years ago, at university, in chronic pain and thinking that i would have to spend the rest of my life living like a nun or in agony. I have found homeopathy extremely helpful and consult my homeopath by phone every time i have an attack and get sent a remedy. The remedies she sends are never the same as the ones recommended in publications for generic cystitis so is worth going to see a practioner. I have had cystitis free periods of time for up to 2 years, maybe more, and am able to have a normal, active sex life.

Just posted a load of info in the section about not taking antibiotics, you might have found it all out already but could be worth a look...

Good luck.

Millie

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Posts: 793
Reply with quote  #6 
I am pretty sure d-mannose won't help you. Uva ursi by Bioforce (liquid form) probably would. It stopped my infections for a year.

I hope you get some relief soon

Millie
atchan

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Posts: 12
Reply with quote  #7 

Hi.

 

I have urinary retention problem which causes frequent UTIs (Probable Fowlers but not yet tested).  I tried Waterfall D-Mannose and it has helped me.  I took the recommended dosage with onset of symptoms and although I have now stopped taking it, whilst I was using it I didn't have UTI attacks.  They say in some cases, it can also help with IC but I don't know as I don't have IC.  I also have painful bladder syndrome but it didn't help me on that and I think if anything, it was probably making it worse.  Now I'm not on it, I think the pain in my bladder is slightly less, I think.

 

Hope you get the necessary treatment and get better soon.

Best wishes, x

Elena

Registered:
Posts: 188
Reply with quote  #8 

Hia Fiona80 - really interested to hear that you have been clear with homeopathy - you mentioned that there is some information on the site about this - I've had a quick look - could  you let me know the thread or search word to be more specific.

 

Thanks - Elena

Louise77

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Posts: 53
Reply with quote  #9 

The Homeopathy is mentioned in the thread, Anyone not take antibiotics?

 

I bought some Uva-Ursi yesterday and have had two doses and the discomfort in my bladder has gone already! Hope it continues to work and thanks for the recommendation!

Millie

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Posts: 793
Reply with quote  #10 
That's great Louise. I took uva ursi at a time when my infections had been non stop......I always took it after s*x and it stopped them for a year. Unfortunately I gradually needed more and more and ultimately the bacteria became resistant; however the relief was fab for those 12 months! I wholeheartedly recommend taking it alongside the homeopathic remedies cantharis, staphysagria and sarsparilla (you can get them on the Ainsworths website) if your problems are made worse by s*x.

Good luck!

Millie
Drizzle

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Posts: 255
Reply with quote  #11 

Hi

You could also telephone Ainsworth they have resident Homeopaths who will speak with you on the phone and maybe able to offer suggestions also they can make a mix of remedies into one tab instead of having to take individually.

I have used different mixes together in one tab with success.

For other dis -eases and recovery  situations.

Drizzle

aj_83

Registered:
Posts: 2
Reply with quote  #12 
Quote:
Originally Posted by Charlette

Hi there,

this is my first visit to the cob foundation, im so thankful i found you and i so wish i you can help me answer my questions! Ive only been suffering with BC for about 2 years im only 19yrs old and ive never felt pain like it, last night was the beginning of another attack, the pain was so unbearable i really felt i needed to go to hospital but couldnt get there because i couldnt get off the toilet, so spent the night alone and in pain, story of my life! However, when not on the toilet i was on the internet looking for cures to cystitis and came across waterfall d-mannose and was very tempted to buy it, has anybody else tried it and does it work? PLease help

Charlette, London

aj_83

Registered:
Posts: 2
Reply with quote  #13 

Hi

 

I am 23 & suffer with Cystitis nearly every month & everytime I get it it always seems to trigger at night waking me up at some random time & I end up sitting in the bath all night, not being able to sleep? Does anyones else find bathing helps? it seems to ease the pain for me. I've heard of Waterfall D- Mannose but dont dare to buy it as I wonder why we cant buy it over here. I try & drink Cranberry Juice & take cranberry tablets every day but I do admit a cuppa tea is my weak point in the morning.I've had so many antibiotics its unreal, its really getting me down & dont know whats going on inside of me, I assume something causes it but do not know what, people say it could be sex but I get it even when I dont have sexual Intercourse, Can any one help me!



Registered:
Posts: N/A
Reply with quote  #14 
D mannose is available in the UK- maybe you are thinking of something else?

Some people swear by Bioforce Uvi ursa which is easily available in health stores.

Assume you are doing all the usual of wiping front to back, no thongs or tight pants, and so on? If this is happening monthly is there a link with anything at all? Some people think cranberry makes them worse and if your bladder is sensitive then maybe give it a rest- it is very acidic.  If you get no improvement maybe try the IC diet and see if that helps at all?

Louise77

Registered:
Posts: 53
Reply with quote  #15 

I also am more prone to cystitis just before my period. I have noticed that I'm more sensitive around the vulval area at that time and sex can sometimes be painful so tend to avoid it for the few days before my period.

Also read that you are more likely to become constipated around that time which leads to a build up of bacteria. When you pass a stool it is very important to thoroughly wash your bottom after. Have you tried Angela Kilmartins bottle washing method? I have found this a great help!

 

I am taking the Uva-ursi and it seems to help, i'd recommend it. I don't drink cranberry juice but i do take the cranberry extract tablets. I also drink Actimel and take a Multibionta vitamin to help with the good bacteria.

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