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rosa81

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Posts: 6
Reply with quote  #1 
3 months ago I started with symptoms of cystitis but all the tests are negative. Yesterday the gynecologist just touching me told me I have interstitial cystitis. What should I do? Thank you.
ModeratorKate

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Posts: 1,912
Reply with quote  #2 
Hello Rosa81
So sorry to read of your diagnosis, Am pleased you have found us , we are UK based but have plenty of help to offer you both on the forum and at BHUK.

To give you a start look through the Interstial cystitis categorie, here is a recent entry.
http://cobf.websitetoolbox.com/post/interstitial-cystitis-help-9846071?pid=1305713462

Then I wonder if you have contacted which maybe nearer to you.

Associazone Italiana Cistite Interstitiziale
Viale Glorioso 13
00153 Roma ITALY
Chairman: Loredana Nasta
http://www.aicionlus.org 

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doloroso

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Reply with quote  #3 
Ciao Rosa 81

Do take a look at this link. It is full of information regarding trigger foods which might worsen your symptoms. It is an extremely interesting link. Do print it off if you can.
Keep a diary of the foods you are eating so that you can establish which foods are upsetting your bladder.

https://www.ichelp.org/wp-content/uploads/2015/07/food-list.pdf

Good luck

rosa81

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Posts: 6
Reply with quote  #4 
THANK YOU SOOOOO MUCH!!!!!!
rosa81

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Reply with quote  #5 

After my previous diagnosis I did another urine test (the laboratory did not want to do it! why???). I went to the doctor with the results - the bacterial presence is negative (less than 1000). When I mentioned ic the doctor laughed saying that no one can make a ic diagnose without a specific examination. he said me that bacteria are hidden (????????). I do not understand what it means and has not proposed anything except antibiotic (4 months with 1 Monuril a week). Today I think to contact a urologist to make an appointment and in the meantime I do not know whether or not to do this therapy. Currently I do not have more burning but I always want to urinate (two drops). I have the impression that the bladder empties well and I can sleep at least 6 hours per night without peeing. Suggestions? Tips? Do you know urologists in London?

ModeratorKate

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Reply with quote  #6 
Hello Rosa
Just a Reminder.We are not allowed to print names of medical professionals on this Forum, you can how ever e. mail or P.M. each other if you wish.

However if you contact BHUK they will be more than willing to advise you and have names for you, they will  also have a lot more information that may assist you.

If answerphone is on, do please leave contact detail and someone WILL get back to you.
As BHUK is a charity the office is only small and phones not always available but are frequently checked.

Kind regards
Kate

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rosa81

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Reply with quote  #7 
Oh sorry!!!! I did not know that ;( thank you anyway!!!!!!
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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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