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jotack16

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Reply with quote  #1 
Hi,
I have a long story, and I am checking out some forum's to try to get some help.  I am a 60 yr. old (young) female and have been having frequency and an irritated urethra causing a constant urge to urinate, for 4 months now. Recap:  Have had some urethra burning and then always tested positive for a UTI and was given antibiotics.  I only have burning when with a UTI. Always Ecoli.  I was diagnosed by 2 urologists with OAB and Vaginal Atrophy.  After 1st cystoscopy was diagnosed with urethritis/urethra syndrome.  Then I suspected I had Interstitial cystitis and saw an NP who specializes in IC.  She said nope...because I never have had 'urgency' with the frequency (I could hold it for hours if I had to) and I don't have any bladder pain.  I have always had frequent urination past 10 years since menopause, and I always knew I had an overactive baldder, but nothing like this frequency now, nor have I ever had urethra irritation.  Just came on suddenly in November one morning. Everything I read about OAB also says there is 'urgency' (having to find a bathroom quick!) or leakage, and I have neither. Has anyone had what I have...just the occasional UTI with burning urethra (never burns when I pee), frequency and an irritated urethra that causes the urge to urinate all day (up about twice only during night and I sleep well!). If so...did any treatment work for the irritation?  Feel like I've tried everything.  Found a few more things to try from other forums, and this is my last hope forum!

Thank you so much!
Joanna
Moderatorsusan

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Reply with quote  #2 
As you are 60 I assume you have gone through menopause so it could be dip in hormones, possible thyroid issues. Are you on any HRT? Lack of oestrogen often causes UTI symptoms and infections in peri, meno and post menopausal ladies. As the ages advance your bladder, urethra and vagina become dryer, more brittle and lose their natural plumpness, muscle tension and ability to cope with bacteria. The urethra widens allowing more bugs in. Talk with your GP about Vagifem pessaries or Ovestin cream. Obviously a full medical history must be taken into account. An excellent website to look at is Menopause Matters for further advice. Lots of ladies develop UTIs in their 40s, 50s and 60s because of lack of oestrogen. Your bladder and in particular your urethra have lots of oestrogen receptors in them as if you aren't getting the oestrogen they need, it makes them fare more prone to infections. Your vaginal PH changes as well allowing bacteria to flourish which can make their way to your urethra and bladder setting up infections.

Some naturals to try if you don't want to take any more antibiotics are D Mannose powder, one teaspoon in water up to 8 times a day when in a flare or a maintenance dose of 3-4 times a day. Its very good for E coli infections. Oil of Oregano is strong but very antibacterial and may help. Also Urva Ursi can be taken for 2 weeks max but may help. Don't forget bicarbonate of soda if you get stinging to alkaline the urine and make sure you drink plenty of plain water, nothing fizzy and no orange juice etc which has sugar in it and will feed the bacteria let alone its high acidity on your bladder. As for Cranberry juice, thats a complete no no as it is so acidic and full of sugar. You might as well set up a welcome party in your bladder using that as the bacteria will feel so at home and reproduce.

Look at your diet and lifestyle. An inflamed gut can often cause lots of bladder issues as it puts pressure on the bladder and can cause leaky gut where toxins leak from the gut into the body overall and cause infections and inflammation elsewhere. Cut out wheat, caffeine, sugar, spicy food and tomatoes and citrus foods for the time being to see if this helps. Drink plain ph neutral water, nothing carbonated as carbonic acid is a bladder irritant. It sounds dull but a dietary issue can sometimes cause increased frequency.

Wipe front to back always. Shower don't bath and no foam bath products in the bath or anything perfumed down below including perfumed toilet paper. Don't douche your vagina as this affects the natural ph balance. And practice the bottle washing technique each time you have a bowel movement. A good book to get hold of is the Angela Kilmartin book about cystitis. Lots of lifestyle tips for managing this and her famous bottle washing technique.

Finally I'd consider getting yourself swabbed vaginally and tested for mycoplasma or urea plasma. As mentioned earlier given the changes in your vaginal PH you could have a urethral bacterial infection that's just not being properly cleared up. Antibiotics such as metronidazole are used for urethritis so you could always try a course of this for 10 days to see if that helps.



Roonie

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Posts: 9
Reply with quote  #3 
Hello,

I have just read your post which I see was a couple of years ago but I could have written it all myself !!
I have exactly what you have suffered since January
I hope you have found a remedy for this awfully irritating condition and hoping you might be able to give me some advice . I would be most grateful
Jude10

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Posts: 18
Reply with quote  #4 
Hi, I had a uti which didn’t,t show up on tests but responded to antibiotics. I have seen a specialist in persistent infections and am on longer term antibiotics, my most difficult to eradicate symptom is urethral burning! I think this is infection still. I also suffer from atrophy and take vagifem, this did stop Uti for last 4 years but sadly one got through.
Horrible symptom!
Roonie

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Posts: 9
Reply with quote  #5 
Hi ,

Yes same urethral burning is on going . I have good days and bad days .
I have also been using ovestin since February as I’m 48 and dr thought it might be lack of oestrogen . I’ve now been given medication for OAB but I’m reluctant to take these as I don’t think it’s that .
I still feel at times there is an underlying infection or something else . I’ve cut out alcohol and caffeine - trying not to eat chocolate but it’s miserable !
Were you symptom free for four years after the correct antibiotic was given to you ?
Jude10

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Posts: 18
Reply with quote  #6 
Hi, 4 years ago I had 10 days of antibiotic and it cleared up. This time it started with a smear test and hasn’t cleared up yet, 3 bugs showed up on a private test and I am on antibiotics, I had awful symptoms which have improved hugely and just some urethral burning and bladder discomfort left. I will also start hipprex .IIt,s been an awful journey and the gp was heading me towards an ic diagnosis but I knew it was a uti. I did loads of research on persistent infection. Hope this is helpful
Roonie

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Posts: 9
Reply with quote  #7 
Hi, thank you that is helpful . I have not had a good service from my gp practice . Did you have to get referred for private tests . Are you in th UK ?
I think it’s a route I need to go down now as it’s beginning to really get me down .
Should I just look on line for where to get tested privately ?
Jude10

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Posts: 18
Reply with quote  #8 
Hi, I am in the uk and chose a specialist in Leeds, my gp was happy to do a referral. There is also a specialist in London, it,s a difficult decision because I didn’t,t want to take antibiotics having always been very healthy, however I was simply too unwell to decline. My specialist told me it was as dangerous not to treat an infection. It,s a difficult treatment path though.
Bladder health uk have more info and a good information pack if you ring them. My specialist organised the lab test.
Roonie

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Posts: 9
Reply with quote  #9 
Thank you .

It’s interesting that 3 bugs showed up on your tests. I’m sure the routine GP’s uti tests do not pick up on some infections .
IC has also been thrown at me and whilst my symptoms relate to it I’m not convinced. This all started with a uti .
Here’s wishing us both a full recovery .
Jude10

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Posts: 18
Reply with quote  #10 
Hi, yes that.s right. Standard urinalysis do not pick up correctly in a fifth of cases,you can google a guardian article about this from 28th April 2017. This is how I became convinced I was right to think I had a uti and led me to the chronic uti website too.
Just to add azo medication and hipprex can provide some relief from burning symptoms you can get from eBay but research first.
My specialist also told me that IC is actually quite rare.
Roonie

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Posts: 9
Reply with quote  #11 
Hi I have read that article thank you which convinced me even more ! I have contacted a specialist in London but have to wait until October ! My husband says he will drive me anywhere if it helps even Leeds ! I appreciate on this site you probably would not be able to give me any personal recommendations .? Or point me in the right direction .
It’s so difficult to know who to see as I’ve been so let down by previous advice .
ModeratorKate

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Reply with quote  #12 
Hello Roonie
Whilst you can always PM or e. mail each other with details.

May I suggest you Join BHUK and contact the Office, they have all the details on the prof etc, as well as loads of other info that will help you.

Kind regards

kate

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http://bladderhealthuk.org/membership/membership-benefits
Roonie

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Posts: 9
Reply with quote  #13 
Hi Kate ,

Thank you

I will contact BHUK . I would Very much like any further advice
Katharina

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Posts: 1
Reply with quote  #14 
Hi, I am so glad I have found this forum. I am 52 with mild/moderate menopause symptoms. Nothing too severe except for the constant urge to urinate combined with various other issues in relation to this problem. I have just been on a 7-day course of antibiotics following a dip stick test by my GP. Although this test was clear, my GP advised it would be best to take the antibiotics as I have had the classic symptoms of a UTI for a while, e.g. frequent need to urinate and intermittent pains on both sides around the kidney area. I do not have other symptoms such as nausea/vomiting or a temperature which would normally be associated with a full-blown kidney infection. I have been on Vagifem for a year and a half which seemed to have helped initially and improved things somewhat, but the last few weeks have been really bad again. My GP says the twice a week Vagifem may not be enough anymore and suggested a higher dose which I am reluctant to do therefore I am sticking to the twice a week use as recommended in the leaflet. I wonder if it is ok to use it more often than twice a week and if this is actually the answer to the bladder problem??? Not convinced anymore. GP also said that if the antibiotics did not work to come back and he would send off a urine sample for detailed analysis to the lab. This is where I am at now. This condition is so distressing and I feel for all of you who have posted here. I am grateful for any additional advice you may have as I do not seem to be getting anywhere. Thank you very much in advance.
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Roonie

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Reply with quote  #15 
Hi ,

I like yourself I new to this forum and it is reassuring to know you’re not alone at this VERY difficult time .
What is good is that your gp is willing to send off your urine for detailed analysis. Mine has not been so fotth coming even after I paid privately to see a consultant who said that was the first port of call , ( I don’t think this is routinely done ) So I think that’s a good start for you

I also use a hormonal cream which I thought was starting to make a difference but I think it’s not anymore .
My gp also told me to use it on the ureathra and that just seemed to aggravate things . I was only told twice a week after the initial dose
I am 48 and am not in menopause just like yourself noticing a few changes .
I have wondered if HRT would help but don’t feel I need it for anything else yet

I’ve changed my diet and that had helped .

I never got rid of the constant need to urinate since my first uti in Jan . Since then I have had 2 more infections and am being put on the same antibiotics each time .Whilst they seem to help the aggressive symptoms I’m still left with the same annoying feeling of wanting to go . It never goes away but I am being told I am on the right antibiotics for the bacteria I have . It seems a lot of women are going on longer courses of antibiotics and if they have had detailed urine samples they may have more than one bacteria .

I’m going to look into pelvic floor dysfunction and am making an app to see a specialist as I don’t feel like Im gettingto the route of it with my go . She has now prescribed me something for OAB which I don’t think it is .

I’ve had a pelvic scan and kidney scan nothing .
I have joined bladder health UK and spoken to a lovely lady who was very helpful . I would say to do that .

I feel for you as all these ladies on here . It’s very hard to deal with at times .


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