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speedy12

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Reply with quote  #1 
I found this hickory coffee, all gluten-free in the shop and I could not stop the urge to buy it and drink it, it is purely hickory-based, no sugar or any other ingredients.
I just love coffee so much, I drink just one containing caffeine  in the morning to wake up and be alert throughout the day, but then I could replace the real coffee with the hickory one.

Do you think that it can have a bad effect on the bladder? Will I have greater urgency and frequency?

 

ModeratorKate

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Reply with quote  #2 
Quote:
Originally Posted by speedy12
I found this hickory coffee, all gluten-free in the shop and I could not stop the urge to buy it and drink it,

Do you think that it can have a bad effect on the bladder? Will I have greater urgency and frequency?

 


As you say you have drunk it!!! have you had any side effects????

also, as we all know and understand that, what affects one is acceptable to others,
what about trying half and half  mixed,for a while?

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Kate

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LauraC87

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Reply with quote  #3 
"Normal" coffee makes my bladder spasm badly, and my frequency go through the roof. Always has done even before the IC stuff started. So I rarely drank it. 

"Normal" tea increases my frequency a bit but the effects are short-lived. I used to drink it constantly before the IC stuff. 

I have had cups of normal tea whilst on holiday and noticed the frequency issue. Haven't risked coffee since the IC started. 

What I do is I allow myself 1-3 cups of either a very weak plain Rooibos tea (if you google it it will come up) with milk (to me it tastes like normal tea now!), or a drink called Barleycup, which is a coffee substitute made with barley, chicory and rye. The rest of my drinks have to be plain warm water. 

I think Barley Cup is similar to the Hickory coffee you have mentioned. 

Both the rooibos and the barleycup I find do increase my frequency slightly (I think, could just be coincidence), but they don't increase my pressure or pain so it's worth it for me. 

Hope to hear how you got on with the hickory stuff  x x x 
speedy12

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Reply with quote  #4 
Hi Laura,

Thank you for the reply, I think that the type of coffee mentioned by you made of barley, rye and hickory is very similar to mine except that mine is made of plain hickory. Apparently this type of coffee is very good for losing weight, it is not that I want to lose it as I have already lost so much weight but it has got other health properties. I also fear that it might increase frequency though,  which I want to avoid at all costs but if  I feel like drinking another cup or jug of coffee thoughout the day, it is better to reach out for the hickory one than the one with coffeine.
speedy12

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Reply with quote  #5 
I know that taking one spoon of baking soda dissolved in a glass of water is good for maintaning the acid environment in the organism and thus keeping the bacteria at bay but could you please tell me if that is good for the liver as I came across one reaction of the person who just shouted out loudly seeing me prepare a glass for myself: Oh my God, what are you doing, it is bad for the liver! Is she right?
LauraC87

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Reply with quote  #6 
Hey 

I think baking soda in water actually alkalises rather than being acid forming. It can be helpful for bladder conditions , particularly burning symptoms. However it can mess up your blood pressure and electrolyte balances if not taken carefully. Ie you are not supposed to take it if you have high blood pressure. 

Re the liver, I am not sure, but maybe the person meant that the baking soda will reduce your stomach acid which it does - which I think can have some effect on the liver, but I doubt it at low doses. 

Hmm. It's a puzzle. Let us know if you find out. Does it help for you if you have tried it that is? x x 
speedy12

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Reply with quote  #7 
Actually I have not tried it yet as I am simply afraid of what I have been told it might cause.
I do not have the burning sensation but frequency only probably caused by invincible bacteria. I am not so sure if baking soda will help me get rid of them.

Indeed it is a great puzzle but I have been encouraged by people here recommending soda on so many occasions especially in cases of flare-ups.
ModeratorKate

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Reply with quote  #8 
Hello all.

Here are a few links that I found,may be worth reading.

As with any non medical advice, we all have to be careful as we are all different, what is so good for one maybe have completely opposite effect, and actually exacerbate our symptoms.
I am fortunate in that my Doctor is very open minded on trying any suggestion, but explains if she can any side effects that she is aware of, and monitors my outcome.

http://www.livestrong.com/article/491110-the-risks-of-using-baking-soda-to-reduce-stomach-acid/

http://www.patient.co.uk/medicine/potassium-citrate-for-cystitis

Regards
Kate


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speedy12

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Reply with quote  #9 
Moderator Kate, thank you so much for these very informative links, I have found them most helpful, they have answered most of my questions regarding the risk of using soda. It looks like pottasium citrate is a much better solution for cystitis then[smile]
ModeratorKate

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Reply with quote  #10 
Hello speedy12
I have always understood, that 'potassium citrate' is suggested one to take , but as we all know we are all different, and Bicarbonate is usually in the house, so can be used sparingly.

As I mentioned it is always advisable to ask your GP or Nurse for their advice, before taking anything.At least then you have some medical information, and hopefully they understand your personal situation,and should know of any interactions.

If only there was an answer to suit us all,it would be much simpler. Doh!!!!

Kind regards
Kate

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speedy12

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Reply with quote  #11 
Hi Kate,

Thank you so much for your insight, that is very clever what you say. I totally agree with you.

I stopped taking antibiotics two months ago or it might have been even longer than that. Do you think that I still need to take probiotics? The last I had have just finished and there was such a queue in the pharmacy that I just did not bother waiting.

I have finished the autovaccination made on my own pathogens, have had quite a lot of antibiotics throughout the year. Should I now turn more towards diagnostics like urodynamics or cystoscopy or more towards Chinese herbs and other alternative methods?
What should I do now - that is the question I am asking myself at the beginning of the New Year. I am at a loss, not sure what to do now, completely puzzled. Will I be stuck with these bladder problems for ages?
ModeratorKate

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Reply with quote  #12 
Hi speedy12
I personally take 'probiotics' every day.

As you mentioned you were from abroad, in one of your posts.
I wonder if you have contacted this, as they maybe nearer to you.

Libor Zamecnik MD
Urologicka Klinika
VFN a l. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
Libor.zamecnik@if1.cuni.cz
http://www.urologicka-klinika.cz

Also you could always become a Member of COB ( links below)
They have so much more information and advice , than we can cover here on the Forum.

Kind regards
Kate

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speedy12

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Reply with quote  #13 
Hi Kate,


Thank you so much
In fact I am from another country, there was once information about somebody from Poland on the website but now it is gone. It is a little bit far for me to go to the Chech Republic. Do you know anybody from Poland?
I am planning to buy more probitoics tomorrow when everything is open again.

Best wishes

speedy12

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Posts: 161
Reply with quote  #14 
I was wondering which herbs are  good, recommended for the bladder.

Shall we write a little bit about our experiences with them, have they been effective and in what way?

What I most probably have is BC (bacterial cystitis) , I do not think that I have IC or I may not know that I have it as very often IC is caused by bacterial pathogens residing too long in the urinary tract.
It would be good to perhaps attack the problem with some herbs.

Is vitamin C good? I have bought one in 500 mg pills to be taken twice daily. Is that ok, I have heard that vitamin C alkanises the urine which is good. Soda might be a little bit harmful for the liver.

Thanks for any insight.
speedy12

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Reply with quote  #15 
I just wanted to let you know that I have embarked on the chinese herbs' route, I am not sure where it is going to lead me but I will give it a go. I just do not understand one thing, the lady said to me that I should cut out dairy like cottage cheese and I Wonder why. I do not eat much of it, just one per day and  I eat eggs for breakfast and I do not know whether they belong to dairy products according to chinese medicine or not. I just do not understand the reasoning behind this all, anybody has got any clue?
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