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Hugs

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Posts: 12
Reply with quote  #1 
Hello all,


Anyone tried hiprex ? I seen a new consultant today and it's been suggested I try this medication after 17 years of suffering I'm desperate for anything to work.

Any positive stories ???

Hugs
Xx
ModeratorKate

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Reply with quote  #2 
Hello Hugs,
Sad to read you are still struggling with this dreadful did-ease.
I do hope someone will reply with some positive feed back for you. In the meantime, I discovered that Hiprex:is antibacterial.
Hexamethylenetetramine or methenamine
https://en.wikipedia.org/wiki/Hexamethylenetetramine

http://www.netdoctor.co.uk/medicines/infections/a6848/hiprex-methenamine/

Also if you TYPE Hiprex into the search Tab at top of page , there are many members replies from previous years, so hope some more recent Members will have further comments to assist you.

Do please post your journey, and tell us your Regime ,Diet etc,as this will really be of help to others searching.
 

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barbie

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Posts: 38
Reply with quote  #3 
I've been treated by the Professor in London, and he always wants me to take Hiprex along with the antibiotics as it has the effect of making the urine antiseptic and so clears out the bugs.  

I have been off antibiotics for three weeks now but still taking Hiprex.  All okay so far, seeing him on Thursday.
Hugs

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Posts: 12
Reply with quote  #4 
Hello,


Thanks for your replies. I picked up my medicine tonight and keeping positive. It seems to get positive reviews.


Hugs
Xx
Hugs

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Posts: 12
Reply with quote  #5 
Barbie - how did your appointment go yesterday ??

Hugs x
ModeratorKate

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Reply with quote  #6 
Hi Hugs
Barbie has a post below in Registered COB Members users General .

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barbie

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Posts: 38
Reply with quote  #7 
Dear Hugs,

My appointment with the Prof went very well, thanks.  I'm still taking the Hiprex as a precautionary measure, but no antibiotics.  The Prof was very sympathetic and has given me a prescription for more antibiotics in case it starts up again.  Just having that 'insurance' puts my mind at rest.  

I have been taking Hiprex for the best part of two years, fortunately I have not noticed any side-effects.  Even if I have to take Hiprex for the rest of my life that's still better than having cystitis!

I had a diagnosis of lung cancer last year and have just completed treatment; that was awful but still not as bad as cystitis!
Loobyloo

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Reply with quote  #8 
Hiprex is great stuff, at least for me, i cannot believe that it is not discussed much, even my GP did not know about it.  I went to see a consultant in London 4/5 years ago, am happy to give his name.  However, it will not be activated within an alkaline urine which scuppers the 'alkaline is best' approach.  I therefore take 1000mg of sustained release Vit C twice a day with a Cranberry pill with my Hiprex.  This drug is usually used for paraplegics who are wheelchair bound with a catheter.  Very few urologists use it but i have had cystitis for 40 years.  I have no side effects thus far, although it is formaldehyde, not an antibiotic or antiseptic as such.  Having visited an expensive practitioner at the Hale clinic (oft mentioned on these forums, it was a negative experience for me), many urologists, spent £100s on D-mannose, oil of oregano, you name it.... i have done it, Hiprex was a godsend for me.  if used correctly i cannot recommend it highly enough.  
barbie

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Posts: 38
Reply with quote  #9 
Well, I've been telling everybody that I am symptom and antibiotic free and have been since the beginning of this year!  Have been taking Hiprex, but that's not an antibiotic.  There is now a supply problem so I have not been able to take Hiprex for a week now.  On Friday I noticed the old familiar symptoms returning; frequency, discomfort etc., then  when my pee turned cloudy I knew I was in trouble so it was back on the Amoxicillin again!  B***** and b*****!  I've informed the Prof and unfortunately there is currently no alternative to Hiprex, it might be available again about mid-September time, but that's not certain.   

So I just keep on with the Amox and then have a telephone consultation with the Prof on 1st September.  He was, as always, very sympathetic.
ModeratorKate

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Reply with quote  #10 
Hello barbie

So sorry to read of your unfortunate circumstance,

Thank you for taking time to notify Prof and posting on here, do hope it will not put you back toooooooo much.

Kindest regards
Kate 

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cattyp

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Posts: 7
Reply with quote  #11 
Hi there I have had ic for 20years pure evil the only thing that worked for me was desert harvest aloe changed my life
barbie

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Posts: 38
Reply with quote  #12 
Actually I have managed to get a supply of Hiprex again.  Apparently the problem was that their factory burned down!  It is now available again so I'm now off the Amox and back on Hiprex and thankfully back to being free of symptoms.
ModeratorKate

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Reply with quote  #13 
Thanks for posting that info, Barbie, am sure this will give hope to others.

Kind regards
Kate

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Ibby

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Posts: 15
Reply with quote  #14 
Hi thanks for these posts about Hiprex. I read in the patient leaflet that they shouldn't be taken with certain antibiotics. I'm in Cyprus at the moment suffering with infection number 13 within 12 months. As I recall, the antibiotics I'm on shouldn't be mixed with Hiprex.
cattyp

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Posts: 7
Reply with quote  #15 
The desert harvest company always has a sale June and Dec they are based in america I always get mine that way look at the website
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