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lottieloo

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Posts: 11
Reply with quote  #1 
Hi BHUK
I wonder if you could help with my queries on phage therapy & hormones - I seen a documentary on the BBC a few months back on phage therapy & although I'm aware it's not recognised by Western medicine, I wondered if you knew anymore?  I feel I've taken so many antibiotics & I'm currently on my second 'flare' since December, I realise I can't keep taking antibiotics.
Thankfully I'm one of Dr A's patients & currently taking oregano oil, gse & D Mannose & there is improvement, I'll keep taking for a week in total, (unless you suggest longer?)  However, I know it's only a matter of time before a bad flare arises again.
I've suffered with what I thought was cystitis/IC for over 20 years but feel the flares now really throw me off kilter & have become more severe.  I believe Its because Coliform is now dominant but could the menopause/hormones contribute to more attacks?  I know this is difficult for you to answer as we are all different but is the outlook any better post menopause?  I'm trying to be positive & hope there can be an end to these attacks as they can be lowering & do get me down.
Thanks for any advice & your help,
coboffice

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Posts: 990
Reply with quote  #2 
Hello lottieloo

A very warm welcome to our forums! You will find a wealth of useful information here and input from other sufferers can make all the difference when we are struggling.

With regard to phage therapy, phage are routinely used in agriculture but research into using them for infection in humans was abandoned in Western Europe at around the time antibiotics were discovered. In Eastern Europe though, phage are used to treat infection. Bladder Health UK ran an article on Phage Therapy written by a consultant in Georgia. I am not sure if you are a member but if you are and would like to e-mail me (susannah@bladderhealthuk.org), I will find the article and send it to you. If you are not yet a member, I would urge you to join us to take advantage of the full range of information and support we can provide you with.

You can also receive our biofilm pack which will give you background into the way in which medical professionals like Dr A work and also information on the natural alternatives you are presently taking and the way in which you can use them to minimise the risk of a biofilm breakout or flare.

With regard to hormones and role they play in helping to maintain the health of the bladder, we ran an article from a London Consultant who specialises in hormones and the bladder in the winter edition of our membership magazine which you will receive when you become a member. Many sufferers, particularly those with recurrent or biofilm infection, benefit from hormones during and after the menopause. Topical oestrogen remains localised and can make quite a difference to the symptoms with accordingly to the London Consultant, very little risk. It is certainly worth considering.

Should you wish to have a chat about your situation, I will be on the advice line on Friday, 10th February between 9.30am and 2.00pm. Alternatively, my colleague, Helen Williams is around tomorrow.

Susannah Fraser

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lottieloo

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Posts: 11
Reply with quote  #3 
Hi Susannah
Thanks very much for your quick reply.  I'm a member & unfortunately I can't seem to find the winter magazine, I have them from 2014 but not the most recent one!  So, I'll email you or phone to request both articles on hormones & phages.
Thanks again for your help,
coboffice

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Posts: 990
Reply with quote  #4 
You are welcome. I am back in the office tomorrow and will sort the articles out for you.

Susannah x

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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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