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heathwhit

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Posts: 162
Reply with quote  #1 
Anyone out there lived a life of hell after a cystoscopy i have been like this for two monthd now with my bladder feels sore right up to my naval, can"t stop wanting to wee, csn't get any relief after a wee feel i am not weeing properly, sore and stinging in vulval areaI rang the hospital and the urinary nurse is seeing me this afternoon.My doctor rang friday to say water test all clear, i asked if i could try abs and hesaid no they may do more harm than good.i just want togo back to how i was before this procedure i wasn t perfect no bladder pain just vulval and certainly not all this wanting to wee.Honestly t think this is gping to enf my life, i am not ypung.Just wondered if anyone had suffered like this.I don't think i had ic very badly at all and now it is hell.i am sure from my writing i fo not want to live anymore like thid do proably this is my time to go.Heather.

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H.M Whitworth
Erin

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Posts: 9
Reply with quote  #2 
Hi Heather, I'm so sorry to hear what you're going through. I myself am 27 years old and have been suffering with bladder pain for 11 years and honestly sometimes I don't know how I've kept going. All I can say is talk to someone, your family, Samaritans, a pain psychologist. Often for me it's about getting through one day at a time and without this forum, my family and my psychologist I don't think I'd still be here. Please don't give up, we care about what you're going through you're not alone. Erin
Blueangel

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Posts: 106
Reply with quote  #3 
Hi
Are you watching what you eat ? No acidic foods, no spicy foods, nothing frozen , tinned or sugary.
Drink plenty of bottled water, I find the one the tennis players drink is best, and take a good probiotic.
I know at this moment in time it feels like this will never end but once the inflammation starts to
ease you will start to feel better.
Diet is so important as everything you eat and drink goes through the bladder and can cause
ongoing pain . I find de- mannose powder helpful, especially the lemon flavoured, taken at
least 3 times a day when symptoms are bad. Hope you start to feel better soon.
heathwhit

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Posts: 162
Reply with quote  #4 
Thanks for your reply i get so uptight with all this going on which i know doesn't help.i think what upsets me most is having a needless cystoscopy, i think it was you who said why have one when you have no bladder psin, wise words , wish i had taken your advice.best wishes Heather.
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H.M Whitworth
Blueangel

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Posts: 106
Reply with quote  #5 
Take my advice in my above post... Hope it helps, it helps me.
chrismm

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Posts: 26
Reply with quote  #6 
Heather, so many of us do feel for you in what you are going through and the fact that you are so stressed can not be helping you either.  As Blueangel says perhaps you could try her suggestions re diet and at least if you are focusing on doing something positive you may not feel soanxious.  There will be something which will help you but unfortunately it is just a matter of trying different things and giving them time to work as nothing works immediately.  Persistance and patience seem to be needed by so many of us.  I hope your consultant will be able to suggest something for you when you see him. In the meantime  could you perhaps see your doctor about being so stressed and you can discuss your concerns with him.  So many of us have been in this awful place and eventually we find something to give us relief.  I do so hope that you do too.
Thinking of you.

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Chris
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