Register Latest Topics
 
 
 


Reply
  Author   Comment  
heathwhit

Registered:
Posts: 212
Reply with quote  #1 
Anyone out there lived a life of hell after a cystoscopy i have been like this for two monthd now with my bladder feels sore right up to my naval, can"t stop wanting to wee, csn't get any relief after a wee feel i am not weeing properly, sore and stinging in vulval areaI rang the hospital and the urinary nurse is seeing me this afternoon.My doctor rang friday to say water test all clear, i asked if i could try abs and hesaid no they may do more harm than good.i just want togo back to how i was before this procedure i wasn t perfect no bladder pain just vulval and certainly not all this wanting to wee.Honestly t think this is gping to enf my life, i am not ypung.Just wondered if anyone had suffered like this.I don't think i had ic very badly at all and now it is hell.i am sure from my writing i fo not want to live anymore like thid do proably this is my time to go.Heather.

__________________
H.M Whitworth
Erin

Registered:
Posts: 12
Reply with quote  #2 
Hi Heather, I'm so sorry to hear what you're going through. I myself am 27 years old and have been suffering with bladder pain for 11 years and honestly sometimes I don't know how I've kept going. All I can say is talk to someone, your family, Samaritans, a pain psychologist. Often for me it's about getting through one day at a time and without this forum, my family and my psychologist I don't think I'd still be here. Please don't give up, we care about what you're going through you're not alone. Erin
Blueangel

Registered:
Posts: 132
Reply with quote  #3 
Hi
Are you watching what you eat ? No acidic foods, no spicy foods, nothing frozen , tinned or sugary.
Drink plenty of bottled water, I find the one the tennis players drink is best, and take a good probiotic.
I know at this moment in time it feels like this will never end but once the inflammation starts to
ease you will start to feel better.
Diet is so important as everything you eat and drink goes through the bladder and can cause
ongoing pain . I find de- mannose powder helpful, especially the lemon flavoured, taken at
least 3 times a day when symptoms are bad. Hope you start to feel better soon.
heathwhit

Registered:
Posts: 212
Reply with quote  #4 
Thanks for your reply i get so uptight with all this going on which i know doesn't help.i think what upsets me most is having a needless cystoscopy, i think it was you who said why have one when you have no bladder psin, wise words , wish i had taken your advice.best wishes Heather.
__________________
H.M Whitworth
Blueangel

Registered:
Posts: 132
Reply with quote  #5 
Take my advice in my above post... Hope it helps, it helps me.
chrismm

Registered:
Posts: 33
Reply with quote  #6 
Heather, so many of us do feel for you in what you are going through and the fact that you are so stressed can not be helping you either.  As Blueangel says perhaps you could try her suggestions re diet and at least if you are focusing on doing something positive you may not feel soanxious.  There will be something which will help you but unfortunately it is just a matter of trying different things and giving them time to work as nothing works immediately.  Persistance and patience seem to be needed by so many of us.  I hope your consultant will be able to suggest something for you when you see him. In the meantime  could you perhaps see your doctor about being so stressed and you can discuss your concerns with him.  So many of us have been in this awful place and eventually we find something to give us relief.  I do so hope that you do too.
Thinking of you.

__________________
Chris
sueworld2003

Registered:
Posts: 1,154
Reply with quote  #7 
Create a food diary to see If anything you're currently eating is making things worse. It's along haul kinda thing, but as with most things to do with this illness most things are.

I know from experience when you're bladder lining has been damaged by something like you've had done It can take a long time for it to calm down. For me it took ages.
heathwhit

Registered:
Posts: 212
Reply with quote  #8 
Oh thanks Sue i am eating a very bland diet at the moment.The thing that has upset me most i did not need this procedure done, no bladder psin at all the pain and discomfort was all urethal, burning after weeing etc.They only found some inflammation which MIGHT be the cause of my discomfort.Talking about instills no way are they going anywhere near me in that respect.It helps to know not everyone gets over this type of procedure quickly.Hope you are coping ok at the moment.Best wishes Heather.
__________________
H.M Whitworth
sueworld2003

Registered:
Posts: 1,154
Reply with quote  #9 
What you might see as being bland might not be the same as what your bladder thinks. [smile]

Do your research online looking for low histamine producing/low acid foods and see If for the time being you can eat only those. Anything to get your inflammation levels down.

Imo you can't keep dwelling on what was done to you, thats old news, what you need to do imo is focus all your energy and finding a what effects you the least. Took me well over a year to do that.

This will all pass eventually. [smile]
heathwhit

Registered:
Posts: 212
Reply with quote  #10 
Quote:
Originally Posted by sueworld2003
What you might see as being bland might not be the same as what your bladder thinks. [smile]

Do your research online looking for low histamine producing/low acid foods and see If for the time being you can eat only those. Anything to get your inflammation levels down.

Imo you can't keep dwelling on what was done to you, thats old news, what you need to do imo is focus all your energy and finding a what effects you the least. Took me well over a year to do that.

This will all pass eventually. [smile]

__________________
H.M Whitworth
heathwhit

Registered:
Posts: 212
Reply with quote  #11 
Thank you so much for your help and you are helping me a lot.I will certainly look for the low histamine/acid diet sounds like sense.Also try and forget what i have had done and move forward.Best wishes Heather.
y

__________________
H.M Whitworth
chrismm

Registered:
Posts: 33
Reply with quote  #12 
Heather - this is your best post yet.  You are now being positive and looking forward.  Stay with trying Sueworlds suggestions and give it time  - there are lots of things out there which may help you but just focus on one at a time as you are doing now with diet.  I wish you all the best.

Sueworld - I am so pleased that you have encouraged Heather with something to focus on for the future.  I have been quite concerned about her from reading her posts, as I know just what she is going through This illness is all about trying out things for ourselves isn't it and also having the patience to give them time. As you say, the main aim is to take away the soreness in the bladder lining. I was told mine had disappeared altogether.  I was fortunate to get Elmiron which puts in that artificial lining. I have been taking it for over 20 years and have no soreness or urgency at all.  All the best to you.

__________________
Chris
heathwhit

Registered:
Posts: 212
Reply with quote  #13 
Thank you chris i honestly don't know what i would do without the encouragement from you all.i don't know if i would be offered elmiron but i certainly couldn't bear instills just the thought of them fills me with horror being so sore .I have always got over flares before but i doo know this time is worse i have ever been.Still can't get infection out of my mind it feels so like that.best wishes Heather.
__________________
H.M Whitworth
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.


This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.