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samantha1

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Posts: 37
Reply with quote  #1 
Hi,

I've been following the IC diet for a week and my symptoms haven't got any better at all.  Is it too early?  Am I still eating the wrong things?

Here's an example of things I've been eating, can you please tell me where I'm going wrong or give me an idea of how long it will take before I get some relief?

Breakfast

Weetabix/bran flakes/porridge/special K/shredded wheat
with semi skimmed milk and sugar

Lunch

White bread sandwich with butter/cream cheese/honey/egg
with lettuce, cucumber (no mayo)
Banana and pear + a plain buscuit

Dinner

Lamb chops/roast chicken
with potatoes, veg and gravy

I've only been drinking Evian water, not even drinking camomile tea as I can't stand it.

Is all that OK?  Will I get relief eventually?

Thanks



DawnCOB

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Posts: 4,496
Reply with quote  #2 
Hi Samantha,

If you are affected by diet, it can take up to 3wks on the diet before the bladder is suppose to improve.

I did find this when I first started the diet.   I had to give up milk, but am ok with bananas , some people have a problem with them.

best wishes

Dawn
Sue45

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Posts: 222
Reply with quote  #3 
Hi Samantha,
I hate to say this but take another look at the diet page on this site... breakfast cereals are not included on the list of IC friendly foods and after excluding them for a while I gave them another try, only to have a flare soon after.
Although some fruits are thought to be safe, this is an individual thing and I have yet to find one I can tolerate.
Some also seem to have a problem with gravy, there have been posts about this on the board before which you might like to search for.
Doesn't seem to leave a lot, does it?  The good news is that once you have eased your symptoms by following a strict diet you may be able to add things back in and find you can tolerate them after all.
It's a long, hard job and after around a year I'm a lot better but still making mistakes.
Good luck!

__________________
Sue
samantha1

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Posts: 37
Reply with quote  #4 
Quote:
Originally Posted by Sue45
breakfast cereals are not included on the list of IC friendly foods and after excluding them for a while I gave them another try, only to have a flare soon after.


Oh Blimey.  That's a nightmare.  What else is there to have for breakfast except toast?  Any tips?

Quote:
Originally Posted by Sue45
Although some fruits are thought to be safe, this is an individual thing and I have yet to find one I can tolerate.


I've been sticking to pears and dates.  I was eating bananas, but now see they are not on the safe list so not having them now.
Quote:
Originally Posted by Sue45
Some also seem to have a problem with gravy, there have been posts about this on the board before which you might like to search for.


Thanks.  I have been using gravy on my meals but will now go without.  Does anyone know if beef or chicken stock is ok?  I could probably knock something up that tastes vaguely gravyish from that.

Quote:
Originally Posted by Sue45
Doesn't seem to leave a lot, does it?  The good news is that once you have eased your symptoms by following a strict diet you may be able to add things back in and find you can tolerate them after all.
It's a long, hard job and after around a year I'm a lot better but still making mistakes.
Good luck!


There isn't much left :-( I'm struggling to get a balanced diet, especially with the limited fruit and no cereal.  What about porridge oats or shredded wheat?  It's just pure oats and wheat, is that no good? 

Sue45

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Posts: 222
Reply with quote  #5 

Can I suggest you do a search with some key words and hopefully you will find soe useful information from older posts.


__________________
Sue
lancaster

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Posts: 300
Reply with quote  #6 
Yes, gravy is a problem for me, it leaves me in such pain, so I have 'dry' dinners!! I have cut out salt as much as I possibly can.  Pears and melons are fine, but in moderation.  The plainer the food, without salt and sugar if poss, the better.
SandraB

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Posts: 156
Reply with quote  #7 
Hi Samantha,

With breakfast cereals, I've found there are some that I can eat.  I have to avoid any with added vitamins, or sweetened with fruit juice.  I do buy some from health food shops that are just whole grains, maybe with some honey.  Porridge should be fine.  I haven't looked at shredded wheat, but if it's really just pure wheat then it shouldn't be a problem.  My favourites are Heritage Flakes (made by Nature's Path), and puffed spelt with honey (can't remember the make, but I get it from the health food shop).

Breakfasts can become very, very boring so I try to treat myself to the nicest bread I can find.  Have you got a good bakery near you, that does loaves with sunflower/linseeds, bran, etc.  It all makes it a bit more interesting, and should be safe for your bladder.  As for what to put on it, I'm afraid I stick to just honey.

I can get away with a few dates, which you mention - but make sure they're the sort without preservatives.  For me, any kind of preservative is a killer.

Good luck, and stick with it.

Sandra.
xx




samantha1

Registered:
Posts: 37
Reply with quote  #8 
Quote:
Originally Posted by Sue45

Can I suggest you do a search with some key words and hopefully you will find soe useful information from older posts.



Thanks Sue, I have done that and found some very useful information.  Sorry, I should have done that in the first place.
Sonia

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Posts: 275
Reply with quote  #9 
Hi!

It's very difficult to start with when trying to sort out a diet which doesn't upset you - that's if diet is one of your triggers. Some people on this forum don't seem to be upset by what they eat. In some ways they are very lucky to be able to eat whatever they fancy!

I remember back in '88, when I was trying to sort out my gut after some very unnecessary ABs (long before the IC arrived on the scene in 2005), kneeling on the kitchen floor saying 'but what can I eat?' and wandering around along the tinned food and frozen meals aisles in a supermarket thinking 'the items they sell here are just not for me' - as they had got too many ingredients in them so it would have been difficult to pinpoint any aggravating foods if I included them in what I ate.

If you stick to a very very plain simple unprocessed diet, it's difficult but not impossible to sort it out. If diet is one of your triggers, you will gradually sense which foods are to be avoided and which ones are 'safe'.

This post is really just to say that you have my best wishes - and to say that I hope you are able to find out what foods might be upsetting you and that you improve soon.

Sonia




tigfox

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Posts: 186
Reply with quote  #10 
Samantha,
I feel your frustration! I recently went through the same 'what on earth can I eat' phase, I was diagnosed last June.

Basically you need to be as pure as possible. Having looked at what you eat usually, you definately need to cut out the cereals, they are fortified with vitamins etc and they can cause a flare, Porridge and plain shredded wheat is fine. You can have bread but make sure it is fresh baked bread from Tesco etc as the packed stuff has preservatives in. Go for pure butter, marg and the likes have so much rubbish in! I can eat Pears without any issues but cant eat any other fruit. I can't have gravy granules or stock cubes but I make my own stock (chicken and Veg) which is pure and allows me to make my own gravy, soups, stews etc. I was a rubbish cook before the IC but it has forced me to have a go and now I quite enjoy it! I make my own fairy cakes and have them as a treat.

The key is to look at the ingredients on everything, I couldnt believe how much stuff has rubbish in it. Better to cook from scratch and know exactly what you are getting. I am now starting to get some sort of routine with the food, I was a vegetarian but decided that I couldnt cope when eating out as a veggie, now when I eat out I go for something plain like steak and chips.

It took about 4 weeks for my bladder to calm down after I started following the diet very carefully, I only ate the foods in the green column of the IC-Network diet sheet to start with. Of course you will make mistakes, the best thing I did was to keep a food diary as you can just look back at your list if you get a flare to see what has hit you.

Stick at it! It definately made an incredible difference to me and I never 'cheat' as the pain just isnt worth it, I've just found other treats that I can have!

I hope you start to find some kind of normality with your diet and if you want to chat about it at any time feel free to contact me.

Best wishes,
Tig.
Sonia

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Posts: 275
Reply with quote  #11 
Tesco bread is not for me. I learned to avoid it many years ago. Even their 'freshly baked' products still have preservatives and flour improvers in them. Shame, 'cos its really nice and tasty. I suspect that is why homebaked bread is usually heavier and does not keep for as long cos it doesn't have all these 'extra' ingredients in it.  

I now only eat small portions of bread very occasionally when it is politic (at MIL's) or I am taking a chance (like last night eating some pitta with houmous).
S

samantha1

Registered:
Posts: 37
Reply with quote  #12 
Thanks tigfox, that's all great advice and I'm pleased to say that after 4 weeks I am now starting to feel better.  I can't believe that a change in diet can make such a difference to my symptons.  The only decent thing the NHS have done was give me a leaflet which led me to this site.  I've self diagnosed and made myself well, while the specialists shrugged thier shoulders and sent me packing. 

I stick to the green list on the IC diet, but have started experimenting with foods from the 'maybe' section (in very small amounts). 

I tend to be the sort of person that really gets stuck in to something when I put my mind to it.  I, like you, do lots of baking.  Here are some of the things I am doing to reduce my symptoms.

1. I bought myself a bread maker and bake all my own bread using organic ingredients.
2. My parter makes a big batch of fresh stock every week to add to stews or as a gravy.
3. I make my own pastry use as a base for quiche, custard tarts, etc.  Then eat them cold at the office instead of boring sandwiches every day.
4.  I drink 2 ltrs of evian every day.  The only other beverage I drink is a very occasional, very weak chicory coffee alternative...I seem to get away with that.
5. I make victoria sandwiches, fairy cakes, baked mini doughnuts, etc as treats.
6. I keep a feed diary and go to weight watchers every week to monitor my weight.
7. I cook everything from scratch and these day's spend all of my spare time in the kitchen preparing foods. 
8. I've learnt (well, I already knew, but have remembered) that being well organinsed is the key to a varied diet.

One thing I have found is that all the recipe books I've bought for IC are expensive as transported from America and I don't understand or cannot get some of the ingredience, so I'm in the process of building my own website with my own recipes, tips and advice.

I know I'm new to this whole IC thing, but I've spend the last month reading everything I can about the condition and I feel theres a large hole for British people with IC.  I'm even thinking about writing my own recipe book.

I'm not sure if I'm allowed to tell you my web address, maybe a moderator could let me know, but I think it's going to be great when it's up and running.

Sonia

Registered:
Posts: 275
Reply with quote  #13 
Hello Samantha
I am pleased that you are getting on very well with controlling your IC. It's really good reading your post - you sound very positive - long may it last! Keep at it!
Best wishes
Sonia

tigfox

Registered:
Posts: 186
Reply with quote  #14 
Samantha,
Thats brilliant! You have done much better than me! I`d love to see the website you mentioned with recipes (especially the quiche and tarts you mentioned!) I cant see the moderators having a  problem as long as you arent trying to sell anything on the website, a recipe resource for us UK ICers would be brilliant. The idea that you could then go on and put a book together is ace aswell, I just like the idea of something positive coming out of IC for a change. You could just post the link or you could give the COB office a ring just to check, they are very friendly.

Tig.
DawnCOB

Registered:
Posts: 4,496
Reply with quote  #15 

Quote:
Originally Posted by samantha1


I know I'm new to this whole IC thing, but I've spend the last month reading everything I can about the condition and I feel theres a large hole for British people with IC.  I'm even thinking about writing my own recipe book.

I'm not sure if I'm allowed to tell you my web address, maybe a moderator could let me know, but I think it's going to be great when it's up and running.

Hi Samantha,

Its great news to hear that diet has helped.  Please go ahead and post your website details..

With regards to recipe books... COB is issuing free 64 pg recipe books 'The IC Friendly Recipe Book' to members more details of how to obtain a recipe book is on page 5 of the latest winter WROH Issue 56 . There are plenty left....

COB also has a loan library where members can borrow another Recipe for IC book for £2 see page 28 of WROH.

Another diet related book in the loan library is Confident Choices.

For further details please call the COB Office on 0121 4761222
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