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Ibby

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Reply with quote  #1 
Hello,

I just thought I'd post about my condition to see if anyone has a similar problem. I don't want to bore you with all the details but suffice it to say since September last year I've had a recurring UTI.

One of the alarming things I learned was that my bladder holds 2 litres of urine. Apparently approximately 500ml would be more normal.

I've had 7 infections and god knows how many lots of different anti-biotics. Any yes, lo and behold, I've got an emergency appointment at my Doctor's surgery this morning for yet another infection.

I'm in between a rock and a hard place. My bladder doesn't empty properly (that's an awful lot of urine in there) so I have the choice of self-catheterisation or not. 6 times I've had a catheter in my urinary tract and 6 times I've had an infection afterwards. I now have an infection after 4 weeks of not self-catheterising. I don't know which is the best course of action? But that will be my choice.

Does anyone know if the bladder muscles can be strengthened so that I may expel more urine?

ModeratorKate

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Reply with quote  #2 
Hello Ibby
Welcome to our Forum and hope you will find much to assist you.

Am sorry you are having such problems, but would ask you to contact the Office am sure they will have much advice and if you become a Member of BHUK you will have access to so much more info.

Also read through this link, and contact Susannah, if you do telephone the office mention this article if you are interested.  

http://cobf.websitetoolbox.com/post/trial-of-pelvic-floor-device-participants-needed-8934705?trail=15#2

Kind regards
Kate

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Ibby

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Reply with quote  #3 
Hello Kate,

if you become a Member of BHUK you will have access to so much more info.

Thank you for the above information. I already am a member.

I'll have a look at that pelvic floor device thank you.

Kind regards

Ibby - Colin Ibberson
ModeratorKate

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Reply with quote  #4 
Hi Colin
Good you are a Member

forgot to mention Continence Nurse is on the advice line tomorrow, why not give her a call

Kate

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Ibby

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Reply with quote  #5 
Will do Kate - thank you.
Hartley

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Reply with quote  #6 
I have just picked up your post. I have a similar problem (i.e an enlarged bladder that does not fully discharge. I self catheterise and occationally suffer from UTI's). Did you find any meaningful remedy? How are you doing?
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Ibby

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Posts: 21
Reply with quote  #7 
Hi,

No change I'm afraid. Nightly Catheter use and still get UTIs.
Hartley

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Posts: 2
Reply with quote  #8 
Shame about that.

I was instructed to catheterise 4/5 times a day, which I do. Sometimes I pass a little urine first. The idea being that it would help to keep flushing the bladder and reduce the build up of bacteria.

I changed the catheters that I was prescribed by the Bladder n Bowel nurse and now use the fully sheathed thin catheters (SpeedyCath Flex for when I am out and about and  Liquick X-treme for home use). These catheters are easier to use and should reduce the possibility of infection. The Bladder and Bowel nurses where helpful but had no personal experience of self-catheterisation so they just prescribed the cheapest ones available. I contacted most of the catheter manufactures that I could find on the internet and they sent me samples - some burnt, some were fairly large and clumsy. I tried them all. You an find out the costs of catheters from the NHS Drug tarrif on the net, although cost shouldn't be an issue, my B n B nurse thought it was!
(https://www.nhsbsa.nhs.uk/pharmacies-gp-practices-and-appliance-contractors/drug-tariff)

Of course my hygiene is carefully managed, I have even fitted a bidet to our bathroom!

I have just suffered my first UTI while self catheterise which I have been doing now for 6 months. A bit of disappointment as the self-cath was supposed to solve this issue. But hey ho! I have requested a copy of medical records from my GP so as to more lcearly see what is happening and which bugs I have encountered ( eColi and Proteus so far, as far as i can remember. 

I am now taking extra care of my bladder and a week ago, I stopped alcohol and coffee. And I have started Dmannose to see if that helps.

I have only been told, once by a nurse, that the bladder can shrink back but I have no idea how to rejuvenate the bladder muscles, and if that is even possible.

We seem to have a little researched condition.

H



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Ibby

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Posts: 21
Reply with quote  #9 
I was instructed by an arrogant Consultant to Catheterize 3 times a day. I only do it at night time otherwise it makes my urethra too sore.

I manage OK with this routine. If it wasn't for the fact that if I didn't do it once at night I'm kept up with urinating in the small hours, I wouldn't even bother.

This condition has been mentioned by the late Dr. Sarno in his video series on TMS and I buy into what he says - it's a Mind Body Syndrome symptom.

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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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