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Kimberly

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Posts: 76
Reply with quote  #1 
Hi - I'm sorry if this has been covered elsewhere, but just a quick question!

I'm slightly confused about IC. I get the impression that a lot of women that may have a Biofilm infection may have been diagnosed with IC by doctors that aren't aware or don't believe in the Biofilm infection. Would you say that's right? 

But for some IC is a real diagnosis and the treatments for IC do help them?? Would you see evidence of IC on/in the bladder with a cystoscopy?

Many thanks!
heathwhit

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Posts: 340
Reply with quote  #2 
Inflammation was found in my bladder when i had a cystoscopy which they said could be the cause of my symptons but did 't say it was IC.
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H.M Whitworth
L8tti_x

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Posts: 38
Reply with quote  #3 
I would say that is right.

My personal opinion is that an IC diagnosis is often actually a missed chronic UTI. Especially when it starts out of the blue after an acute UTI as was my case.

My cystoscopy was completely normal. No inflammation etc. but extremely extremely painful because unbeknown to me at the time I was full of infection.

Good luck with everything

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Lotti
heathwhit

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Posts: 340
Reply with quote  #4 
How did you get the infection diagnosis i wish i could get one .Always negative.





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H.M Whitworth
L8tti_x

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Posts: 38
Reply with quote  #5 
My first acute uti was picked up and diagnosed by the gp through positive dipstick and msu culture.

However, my symptoms never ever totally cleared and after lots of tests... then being dumped in the bucket of ‘you have IC, it’s incurable, there is nothing we can do and don’t eat onions...’ I decided to see the prof and have never looked back. He uses a microscope to count pus cells and when I first visited him my pee was full full full of them, despite further cultures coming back as insignificant growth. My initial uti set up camp in bladder and decided to move in permanently!

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Lotti
Kimberly

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Posts: 76
Reply with quote  #6 
Thanks for your replies, useful to know. 

I had a positive E.coli culture this time (probably caused by an op. I had), but usually negative even I'm in a world of pain. At the re-test last week the infection was cleared (negative test), but symptoms continue. I had come off the Prof's AB regime in labour and had two months with no symptoms at all. It was amazing. But it's all back now so after considering some IC treatments I will probably be back on the Prof's ABs at some point. 
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