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prescotmunn

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Reply with quote  #1 
Hello All,

originally had an issue 6 months back where I felt I couldn't pee at all I spent hours in toilet. I was given doxycycline which helped. Now ever since I feel like i always need to go for pee and feel constant pressure in my bladder and feel like I need pee all the time. I go toilet on average every hour. I had cystoscopy and they found raised bladder neck which I assume is tight bladder neck? They now give me flomax and betmiga (myrebetiq) and a urodynamics test. The betmiga reduced my bathroom trips slightly but I still feel I need to go 24/7. But at night I don't wake up for pee. What could it be and what do you recommend? 

Another uro-flow shown i still pee showing tightness in the neck of bladder. Urologist doesnt want give me BNI at 31

Maybe it will resolve itself over time with meds?

How long do people think till i see significant improvement?


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Benjamin
ModeratorKate

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Reply with quote  #2 
Hello Benjamin
Welcome to our Forum, 

I am so sorry to read of your ongoing problems, unfortunately our bladders do not conform to a one all fix, and this makes treatment so difficult.

Thank goodness you appear to have had some tests, and assume that they would have mentioned if your Prostate was causing a problem for the Bladder.It may be that BNI(Bladder Neck Incision),would help, as I was reading that this can and is done in young men like yourself, so maybe a second opinion,would be worth investigating.

If you become a Member of COB you would have much more help and advice, but also have access to our Male supporter.You can of course always telephone our Advice Line and see if the Office has any further information to help you.

Also on Monday 14th September, we have our Monthly 'Nurse advice line' that you may wish to participate.

So often it is a 'wait and watch' scenario, which isn't very helpful, when you are so uncomfortable.
Do please keep posting as this will really assist others, who maybe reading and searching.

I hope you will soon begin to feel more comfortable.

Kind regards
Kate




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prescotmunn

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Posts: 8
Reply with quote  #3 
Thanks Kate!

Yes its very difficult to live with and makes working life extremely hard as some days you just cant get energy or feel like going to work.

My Urologist seems to think now for 6months i should try and retrain my bladder to see if this helps. Up to now im still straining and having a split stream. Really hope i wake up one day and its gone.

Do you think it could resolve itself maybe? or will it likely be an issue till my next appointment in January?

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Benjamin
JillB

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Posts: 214
Reply with quote  #4 
Hi

Although I'm sure your urologist will have ruled out infection as a potential cause it is interesting that the Doxy helped you and it may be worth consulting one of the biofilm infection specialists. COB can give you their details. These specialists use more sensitive culturing techniques and if they find bacteria will use targetted abx at high strength for how ever long it takes to knock them out.   Infection may be only part of the picture but needs aggressively dealing with if found.

Jill



  
prescotmunn

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Posts: 8
Reply with quote  #5 
What is the monthly nurse thing? How do you use it? If i do have tight bladder neck as well as overactive bladder, are any of the following symptoms of overactive bladder or tight bladder neck or both?

  • Straining to urinate
  • Frequent Urination
  • Feel like need to go back to pee straight away and feeling need urinate all day
  • Sometimes can go for 2-3 hours if holding in, bladder feels sore.
  • Often urinate between 100-150mls only

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Benjamin
ModeratorKate

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Reply with quote  #6 
Hello Benjamin
You ask...

"What is the monthly nurse thing? How do you use it? "


The COB Foundation is working with Clinisupplies who are funding a nurse specialist, Karen Powell, she will be available on the COB advice line on Monday 14th September 10.30.a.m to 2.30p.m.

Karen Powell joined our team of advisers here at COB in 2013. She has been a registered nurse for over 30 years including Clinical Lead Nurse for the Continence Service in Birmingham.
The Office, be taking the calls and referring those who wish to speak to Karen about any medical issues, concerns or questions relating to bladder illness , on a set day each Month, which will be posted on the Web site and also here on the Forum.

If you would like to speak to Karen Powell our Continence Nurse Practitioner, please call our advice line on 0121-702-0820.on Monday 14th September 2015.

This is a wonderful opportunity to ask for the advice you need!
...............................................................

Do read through the COB Website, there is so much more you can read there, and of course you can always speak to the COB Office on the ADVICE line number. when one of our very friendly Office staff, will have understanding advice and support to assist you.

Kind regards
Kate






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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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