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chrysalis

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Posts: 142
Reply with quote  #1 
I see so many posts on here about people having IC and being in terrible pain. I have been there and it's a lousy feeling, but to those who are in pain you have to fight and find a way forward for yourselves so that you can live as normal a life as possible.

Nearly 4 years ago I was in pain, my kidneys hurt, my bladder stung after everything I ate and I was really fed up, why me ? Why has this happened ? I wanted my life back as it was to be able to go out, to eat nice food, enjoy life as it had been before.

Just as other people have issues, like obesity, diabetes crones disease and have to make changes to their diet I decided I had to do the same. I was determined my bladder was going to get better, and I was determined to find out as much information about this disease as possible.

I did the research, had the cyscopy which was awful, and yes it did make me sore, but it resulted in me being able to have bladder instillations which I have been having now for 3 years and through having it was formally diagnosed with IC by my urologist.

My plan of recovery started from there, strict IC diet, probiotics, cod liver oil, gluscomine, buscopan, no carbonated drinks, tomatoes, citrus fruits, onions, chocolate, spicey food, food with preservatives in.
After 6 months I drank my first cup of decafinated coffee it tasted gorgeous, and gradually I started to introduce foods that I had deprived myself to see if my bladder tolerated them.

I found the miracle tablet Prelief, and took it with my evening meals to alkaline the foods I ate, I would take bicarbonate of soda if I had any pain, or drink milk, and now nearly 4 years later, I am eating just about anything again, curry, pasta, a glass of rose wine, small amounts of chocolate. I can eat most things again. I no longer like carbonated drinks because it's that long since I drank them, when trying a coke recently I thought it tasted sickly sweet.

I believe because I have looked after my bladder I have given it time to heal, the cells must have repaired inside, and I think bladder instillations have helped to recoat my bladder, my diet, and supplements have all helped too and I am living a normal life again.

Always try to find ways to help yourself and try things out, there is always hope, I wish you well, I am enjoying my life again. 😊👍

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Never Lose Hope, Things can get Better 
annalouise

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Posts: 16
Reply with quote  #2 
Thank you Chrysalis, I have read a few of your positive posts and it really does help to know people have success in healing.

I am in the early stages of treatment for IC, I try to remain positive as much as possible but still have really bad days when I feel totally hopeless and just cannot imagine getting better.

I, like you, am doing every thing I can to help my bladder to heal. I have completely changed my diet, removing all bladder irritants and inflammatory foods and replacing them with lots of things full of goodness to help my body. I use Prelief, lots of different herbal teas, along with medication my doctor has prescribed and cocktail instillations. I guess my problem is that I don't feel like anything has been particularly effective and I haven't noticed a huge change in my symptoms yet, and it is this that often makes me feel a bit hopeless.

Despite that I feel intuitively that these changes are the right thing to do and will persist. My assumption is that it can take a long time for the bladder to heal and I need to be patient. I am hoping that whilst I don't see a big improvement day-to-day I will look back one day and realise how much better I am. Your post helps me to believe that I will get better eventually so thank you for letting us all know how you are, it is so valuable!

Anna x
chrysalis

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Posts: 142
Reply with quote  #3 
Thanks Anna

I wish you well, and hope you see improvement soon. 😊👍xxx

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Never Lose Hope, Things can get Better 
chrisatkins00

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Posts: 1
Reply with quote  #4 
Quote:
Originally Posted by annalouise
Thank you Chrysalis, I have read a few of your positive posts and it really does help to know people have success in healing.

I am in the early stages of treatment for IC, I try to remain positive as much as possible but still have really bad days when I feel totally hopeless and just cannot imagine getting better.

I, like you, am doing every thing I can to help my bladder to heal. I have completely changed my diet, removing all bladder irritants and inflammatory foods and replacing them with lots of things full of goodness to help my body. I use Prelief, lots of different herbal teas, along with medication my doctor has prescribed and cocktail instillations. I guess my problem is that I don't feel like anything has been particularly effective and I haven't noticed a huge change in my symptoms yet, and it is this that often makes me feel a bit hopeless.

Despite that I feel intuitively that these changes are the right thing to do and will persist. My assumption is that it can take a long time for the bladder to heal and I need to be patient. I am hoping that whilst I don't see a big improvement day-to-day I will look back one day and realise how much better I am. Your post helps me to believe that I will get better eventually so thank you for letting us all know how you are, it is so valuable!

Anna x
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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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