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claireg

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Posts: 2
Reply with quote  #16 

Hi everyone,

 

I've just discovered this site after reading an article in a free Boots magazine, to my joy, its so nice to not feel alone and to be able to talk to people who understand so please forgive the length of this in advance!

 

I'm 29 and have had OAB my whole life as far as I can tell, along within recurrent cystitis.. for so long I just thought I was useless at holding on for the loo and wondered why no-one else had to go as often as me, or as suddenly. I had (and still do have) very low self esteem and feel very inadequate, dirty and reluctant to form any sort of long-term relationship.

 

During my late teens and early twenties I spent many an awkward evening jigging about in an embarrassing manner in a queue in a pub/club toilet..more often than not I wouldn't make it in time.Yes I do realise alcohol is a bad idea but hey, I was 18! I wasn't going to let something like a hundred toilet trips a night and damp knickers spoil a night out with my mates...nasty. At that time it seemed more acceptable to explain an every-twenty-minutes peeing frequency as a drug problem rather than a bladder problem-how ridiculous is that?!

 

 Anyway, I digress.. it was only after I spent a year away travelling (which was something of a challenge - long bus journeys in South America with limited toilet breaks etc!!) when I was 25 that I finally decided that maybe there was something not quite right and plucked up the courage to see my GP (male-hugely embarrassing) who diagnosed OAB and referred me to a urologist who did an ultrasound scan and couldn't see any abnormalities.

 

I was prescribed some medication which I didn't take - I'm a bit of a hippy and not a big fan of conventional medicine but now, 4 years on it's getting worse if anything and I'm almost ready to put my priniciples to one side just so I can live my life in dry underwear and without needing to constantly be within spitting distance of a toilet day and night.

 

So, sorry for banging on for so long. Can I ask a question please? Has anyone tried any alternative therapies - Traditional Chinese Medicine for example? I tried acupuncture but regular sessions are a bit out of my price range.

 

Thanks to anyone who takes the time to respond...it's really very much appreciated and just nice to talk y'know.

 

Claire xx

MandyG

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Posts: 361
Reply with quote  #17 

hi there - I hope you can find a suitable alternative type of medication beacuse I have been on loads of different doctor-prescribed ones and they are all PANTS!!!!

 

I haven't had a scan of my bladder but have had an urodynamics test and a cystoscopy.  I don't think many others have had scans either - a urodynamics test is the best way of detecting and overactive bladder.  Are you still visiting your urologist?

wendyu

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Posts: 3
Reply with quote  #18 

Hi there,I just found this address in a magazine. My 3 year old daughter has been having problems with constant infections and cystitis since she was 2. She has  been on permanent antibiotics for almost a year and still has frequent cramps,infections,waking up during the night screaming that her 'bum' hurts,pees the bed occasionaly and constantly pees herself throughout the day because she cant feel herself peeing till its too late then cries in agony.  I have to work out our outings around where the toilets are or take nappy pants. I have discovered citrus fruit and orange juice can cause her agonising pain for days as can being constipated for anything longer than a  day. If i let any of the above happen then she always has another infection or cystitis which can last for 2-4 weeks at a time. I have currently been giving her aloe berry juice (yes berry) every morning and so far we have managed to abstain a serious attack for just over a month now-the longest time ever. She regularly drinks cranberry juice too. I am relieved to find a name for this problem. I dont feel like a neurotic mother so much now. Is there anyone else whom has a child with this problem?

DawnCOB

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Posts: 4,496
Reply with quote  #19 
Quote:
Originally Posted by wendyu

Hi there,I just found this address in a magazine. My 3 year old daughter has been having problems with constant infections and cystitis since she was 2. She has  been on permanent antibiotics for almost a year and still has frequent cramps,infections,waking up during the night screaming that her 'bum' hurts,pees the bed occasionaly and constantly pees herself throughout the day because she cant feel herself peeing till its too late then cries in agony.  I have to work out our outings around where the toilets are or take nappy pants. I have discovered citrus fruit and orange juice can cause her agonising pain for days as can being constipated for anything longer than a  day. If i let any of the above happen then she always has another infection or cystitis which can last for 2-4 weeks at a time. I have currently been giving her aloe berry juice (yes berry) every morning and so far we have managed to abstain a serious attack for just over a month now-the longest time ever. She regularly drinks cranberry juice too. I am relieved to find a name for this problem. I dont feel like a neurotic mother so much now. Is there anyone else whom has a child with this problem?

 

Hi Wendy,

 

Welcome to the board.

 

You may find it helpful to also post in the BC forum, http://www.websitetoolbox.com/tool/mb/cobf?forum=1989

 

Where some mothers have posted previously about their childrens symptoms. 

 

best wishes

Dawn

 

 

irbdwine

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Posts: 1
Reply with quote  #20 

My name is Posey and I am 55.  After some tests, I have been diagnosed with a slight overactive bladder.  I just started taking Detrol LA.  I need to talk to some people who are going through the same thing.  Anyone willing to talk to me....please.

 

Mand

Registered:
Posts: 1
Reply with quote  #21 
Hi
I have just found this site and am quite relieved to read that I am not the only one suffering!  I have been diagnosed (by various tests including urodynamics) that I have an overactive bladder.  I was given Detrositol and then Oxbuytonin - Detrusitol didnt work, nor did Oxy initially.  why though was I only given 1 month supply?  It just seemed to be working about a week or so before I ended up having no pills left.  Nobody suggested what I should be doing after the medical ran out.  I am very health conscious and dont want to be on drugs forever - I am also trying for a family - anyone suggest anything?  I've tried everything from changing my drinking habits (intaking more and less), not having caffine, ignoring it, etc etc but I just want some sort of long term "healthy" resolution.  my Gyne lady was really nice but I feel like ive been diagnosed, prescribed treatment and now sent away... its returned and I am left not knowing whether to ask for more pills (esp since I am trying to get pregnant) and knowing whether these Oxy pills are a long terms solution... arghhh. 

Mand

DawnCOB

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Posts: 4,496
Reply with quote  #22 

Quote:
Originally Posted by Mand
Hi
I have just found this site and am quite relieved to read that I am not the only one suffering!  I have been diagnosed (by various tests including urodynamics) that I have an overactive bladder.  I was given Detrositol and then Oxbuytonin - Detrusitol didnt work, nor did Oxy initially.  why though was I only given 1 month supply?  It just seemed to be working about a week or so before I ended up having no pills left.  Nobody suggested what I should be doing after the medical ran out.  I am very health conscious and dont want to be on drugs forever - I am also trying for a family - anyone suggest anything?  I've tried everything from changing my drinking habits (intaking more and less), not having caffine, ignoring it, etc etc but I just want some sort of long term "healthy" resolution.  my Gyne lady was really nice but I feel like ive been diagnosed, prescribed treatment and now sent away... its returned and I am left not knowing whether to ask for more pills (esp since I am trying to get pregnant) and knowing whether these Oxy pills are a long terms solution... arghhh. 

Mand

 

Hi Mand,

 

Welcome to the boards.

 

Its good the Oxy was having some effect I would go back to your GP and explain this, perhaps your consultant will have written your GP a letter and this is who will prescribe more medication.

 

best wishes

Dawn

 

peacaigh

Registered:
Posts: 1
Reply with quote  #23 
Hi I am 32 years old and find i need to go to toilet frequently although i may only urinate small amounts.  It is especially serious after i have had a few drinks to the point where am afraid to drink in case i lose bladder control.  I also suffer from serious stomach pains at times.  I am unsure why or what is causing this.  I would appreciate some help with this problem.
shazfos

Registered:
Posts: 10
Reply with quote  #24 

Hi

 

Although I didn't know it existed until now, I think I had IC since about the age of 18.

 

Since the birth of my first baby last year, I have had severe OAB and incontinence.

 

I have tried physio and a variety of drugs without much success. I actually feel things have gotten a whole lot worse in the last 8 weeks and I don't know why (Consultant blames progesterone levels linked to menstuation??).

 

My symptoms are so bad, I have recently had to resign from my job.

 

I am miserable and really want to hear from people who have had success with treating OAB.

 

sx

maryleonie

Registered:
Posts: 10
Reply with quote  #25 

Hi

 

I am Mary, age 59 and have had urinary problems for two years. Not yet really diagnosed, treated for cystitis and bacterialogical problems but last week a different G.P. said he thought it was OAB and on reading this website which I have just found I would say he is absolutely right. I have given frequent urine samples for analysis but nothing else has been done, have had frequent antibiotics and am on some at the moment sometimes they "appear " to work but not for long.

 

I am worn out and sick of the site of the loo, am like most of you up and down in the night like a yo - yo, husband is in the spare room because he starts early in the morning and works quite late so needs his sleep and my constant getting up wakes him. "Where are you going" he says - "where the hell do you think" is the usual reply!!!

 

I believe that I first got the symptoms around the time that I was on heavy painkillers for arthritic knees, I then had a total knee replacement and still had to take painkillers, in the end I could not take them anymore because they seem to cause me pain in the bladder region as does strong drinks i.e coffee, orange products, anything acidic or highly spiced, alcohol is a no,no. 

 

I still have painful knees and have to put up with it, my doctor says take the painkillers he does not realise the problems they cause......... I wonder if they are responsible for the OAB syndrome? 

 

I am keeping the Cymalon and Cranberry juice companies in business but some times this does not work, when pain bad hug an hotwater bottle, journeys anywhere are a real problem as is the chronic shortage of public loos

nowadays.  I am a mobile Chiropodist and my first words on entering a clients house is usually Hi where is the bathroom, embarrasing or what! 

 

Mary


__________________
Mary
CarolAnn

Registered:
Posts: 400
Reply with quote  #26 

Welcome to the boards Mary.

 

It sounds as if you may have IC, with your reaction to acidic foods, and the pain you experience, have a look on the IC boards I think you may find it helpful.

 

Best wishes,


__________________
Carol
badger

Registered:
Posts: 26
Reply with quote  #27 

Hi everyone,

I have recently discovered this site and what a relief to know there are others with OAB.

 

I am 36 and have twin boys. All my life I have been very fit and healthy but have also always had a very busy bladder!! In the past I have coped with my bladder by not drinking much and toilet mapping! In 2006 I realised things were really not normal. Frequency 30+ times a day and urgency to pee very small amounts (75ml). I went to see my GP who diagnosed OAB and perscribed Oxybutynin.This did help but I hated the side effects so in Jan 2007 I went to see a women's health physio. The physio was very positive and confident that I could cure OAB through bladder training, pelvic floor exercises and changes to drinking habits.

 I have had a mixed response from my bladder!!!

Much stronger pelvic floor

Taking in a good amount of water each day by sipping throughout day

Frequency can be as little as 7 times a day if I stay at home and do lots of strange things to stop myself peeing- sit on hard objects, hold myself, stand on one leg etc. Things I could not do when out!!

Can just about get my bladder to hold 300ml

Reduced medication to 2.5mg twice daily.

Urges are much stronger when they come!

Urges so strong and hard hitting they are too much for even my new improved pelvic floor to overcome and I leak and have lost complete control several times. This is new to me and has given my self confidence a real bashing.

At times I drip and leak with know real sigh of an urge!!

 

So a mixed and confusing response but also quite a lot of success ....I think?!

 

I know that compared to some people my OAB is mild and I am very lucky that I experience no pain. However, My bladder controls my life,is now having a huge affect on my relationship with my husband and  I hate the thought of medication forever.

 

I will continue with the bladder training etc but would be interested to hear from others with OAB. I would also like to receive any advice about what tests I should ask to have done as I have never had any.

 

Sorry to go on!!

 

Badger

 

 

Penguin

Registered:
Posts: 1
Reply with quote  #28 

Hi
I'm 26 and have had an overactive bladder throughout my life. I was a prolific bed wetter until I was about 11, and since then have had the occasional mishap. The main problem has been the urges - which at best have been uncomfortable and at worst have involved my bladder deciding to empty in public places. I shudder just thinking about it. My parents didn't handle it very well when I was growing up - I was punished and shamed about my bladder problems, and made to feel that it was all my fault.
 
Because of this, there is a major psychological aspect to my condition, and I find talking about it very painful and cannot do so without getting very upset. I have seen a counsellor, which helped me to get through these emotional issues, and now I am trying to focus on the physical side.

I am taking detrusitol - I still get urges but now I feel that I can control them. Today I think I've only been to the toilet 7 times - unthinkable until recently.
 
I am lucky to have a supportive partner, but I don't feel that I can talk to him about the day to day problems. I hope that I can use this board to share these day to day things, and get advice. I feel really positive right now about the way things are going but it only takes one 'incident' to throw me back to square 1.
 
I'll stop waffling now...  



Registered:
Posts: N/A
Reply with quote  #29 
Hi  my name is Jane i have had oab for probably about 5 years although it has only got unbarable in the last 3 years, but only sought help a year past february although i am just getting referred to a urologist now (12 months too late ) i have not talked about this to anyone apart from my daughter and my hubby, ( i feel really embarassed about this problem ) my symptoms mostly are the tightness round my abdo and the need to pee all the time the discomfort round my abdo means i am awake most of the night i cant stand any clothes round this area ( which means bridget jones pants lovely )
anyway tried loads of different tablets on oxybutynin at the moment the highest dose  but not doing to well,although it worked at first don't know why it is not working now i am awaiting appointment with urologist at the moment, but this is very damaging to my social life ( ie i don't have one) and when hubby mentions a holiday i could just cry ( done a lot of that the past year ) joined here to see if i can learn anything ( sorry this was so long winded
omgzzzlauren

Registered:
Posts: 6
Reply with quote  #30 
Hello all. My name is Lauren and I'm 19. I've been viewing these boards for about 9 months, around the time I first noticed bladder symptoms.
I was first diagnosed with Cystitis, and after two courses of antibiotics and little relief, my GP believed I just had after effects of the infection which may take time for my bladder to calm down. However after a month or so with no change in symptoms I decided to change GP and from there I was referred to a urologist for further testing.
So far I've had an x-ray and a scan to check for abnormalities in my Kidneys, non were found. It was about 3 months after my scan that the hospital finally got back to me and I recently had a chat with my urologist who is now arranging for me to have some tests to check the pressure around my bladder, which I'm not looking forward to!
My life has changed drastically since my bladder problems started. I'm a lot less social than I was, I often worry about leaving the house because it's such a fuss having to find and rush to a toilet every 20 minutes. I find it embarrassing as I'm only young and most people associate bladder problems with old age. I've been off work a lot and I'm not really sure they take my illness very seriously.  Some day's I feel fine and I manage to lead a normal life. I found that drinking alcohol relieves my symptoms, after the hour or so rush where the alcohol passes through so quickly. I'm not sure if it's because alcohol relaxes my muscles and my body but I tend to find that the day after a boozy night I'm fine all day.

Anyway, I didn't intend on rabbiting on so much, I just wanted to say Hello properly since I've posted a few threads but never really introduced myself. I've found these boards very helpful and it's nice to know that I'm not alone. However sometimes I get my self in quite a state when reading through the boards as I read stories of people who've lived with this problem for large chunks of their life, and I'm not really sure I can cope like this for much longer.

Right, I'll shut up for a bit now that I've got that off my chest!

Lauren x

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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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