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sooty

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Posts: 845
Reply with quote  #31 
Hi Lauren
Just want to say welcome and try not to get too fearful.  When I didnt know I had ic and found this web site and thought thats what I have, I was terried.  I just couldnt imagine being like that for the rest of my life and thought I would rather die.  So please dont get frightened just take the good advice and support.  The board has certainly helped me.  It is nice to find out the different treatments and how they have helped people.  I always go to my docs with info from the weband say.' I want to try this' Im lucky cos I have a good one.  Anyway hope you ave a great holiday.
Nicky

enry222

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Posts: 22
Reply with quote  #32 

Hi, my name is enrika, I  have chatted on this site with some of you already and it  helped me through a difficult time. I Live with my daughter cheryl in southport and i have an amazing partner who Im setting up home together in stockport next year. My  bladder problem has kind of been around for a long time but recently my frequency problem got so bad I couldnt actually sleep and eventually I started to feel very down and desperate to get some comfort from it. Yesturday I finally got a diagnosis from a reputable urologist and Im now being treated for OAB. I have just started new treatment (detrusitol)and hope with the pelvic exercise I might have some control over my life.
Pauline

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Posts: 2
Reply with quote  #33 
Hello. I have found this forum today and would appreciate some support and advice. I had a bad attack of cystitis 15 years ago post hysterectomya caused I believe, by the catheter. Several weeks of antibiotics were needed and penicillin finally was the one that cleared it up but at the expense of thrush

I was getting on famously till last Friday when I underwent a rigid sigmoidoscopy to evaluate a bowel problem. The person who performed this wiped detritus back to front afterwards. I was annoyed but he had done it by then.
I have had frequent desire to urinate since then, no blood, pain or burning just bladder sensations which tell me I need to go.
Am drinking plenty, trying Trimethoprim (not working and only 2 days course left) and have sent MSU for analysis. Can procedures to rectal area cause bladder to object?
DawnCOB

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Posts: 4,496
Reply with quote  #34 
Hi Pauline,

Welcome to the boards, as your message is perhaps BC related I have posted it also in the BC forum http://www.websitetoolbox.com/tool/post/cobf/vpost?id=2187930&pid=20800852#post20800852

best wishes

Dawn
deneen

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Posts: 1
Reply with quote  #35 
Hi everyone,
I am so glad to find this websight. I have read your messages and so many of them sound like me.
I got sick when I was only two years old and it has gotten worse. I have IC and painful bladder diesease.  My kidneys do not functional completely.  I had a bad day. My good kidney is blocked.  The doctor wants to cystoscope me. I walked in the hospitial today and planned to have the surgery. I was doing great until I got the shot of VERSED. I am sure I have had it before but today I had terrible side affects.  My body was just completely out of control. I need to get up but I could not get out of bed.  My back hurt, my muscles hurt and I cried.  They canceled the procedure.  I hope my doctor understands. I just felt like I would not return if they had carried me in the or.  This sounds silly but here I am up at 2:00 and scared still.  Please help me understand why I feel this way about things that are good for me. 
DawnCOB

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Posts: 4,496
Reply with quote  #36 

Quote:
Originally Posted by deneen
Hi everyone,
I am so glad to find this websight. I have read your messages and so many of them sound like me.
I got sick when I was only two years old and it has gotten worse. I have IC and painful bladder diesease.  My kidneys do not functional completely.  I had a bad day. My good kidney is blocked.  The doctor wants to cystoscope me. I walked in the hospitial today and planned to have the surgery. I was doing great until I got the shot of VERSED. I am sure I have had it before but today I had terrible side affects.  My body was just completely out of control. I need to get up but I could not get out of bed.  My back hurt, my muscles hurt and I cried.  They canceled the procedure.  I hope my doctor understands. I just felt like I would not return if they had carried me in the or.  This sounds silly but here I am up at 2:00 and scared still.  Please help me understand why I feel this way about things that are good for me. 


Hi ,

Sorry to hear of the experience you have had today. Im sure your doctor has had patients who have been unable to go through procedures for different reasons and will discuss this with you at a later stage.

Lots of us here have had cystoscopes so we understand your concerns here on the IC Forum.  http://www.websitetoolbox.com/mb/cobf?forum=4039 

I hope you begin to feel better soon. best wishes Dawn

If you are in the USA , you can find further information and support here

Interstitial Cystitis Association ICA (National)
110 North Washington Street, Suite 340
Rockville, MD 20850, USA
tel: 1-301-610.5300
fax: 1-301-610.5308
http://www.ichelp.org
icamail@ichelp.org

Interstitial Cystitis Network ICN (National)
*Publishing Company dedicated to patient education & Support
4983 Sonoma Highway, Suite L
Santa Rosa, CA 95409, USA
tel: 1-707-538.9442
fax: 1-707-538.9444
http://www.ic-network.com
jill@ic-network.com

 

pen

Registered:
Posts: 1
Reply with quote  #37 
Hi ,
my name is Pen i suffer from OAB and bladder incontinence i have suffered for many years,for the past 4 years it has driven me mad my bladder has a minned of its own and will empty when ever it feels fit to do so the worst is wetting my bed.
I have two grown up children and two grandchildren, my daughter still lives with me and is very understanding she made an opiontment at my docters for me last year and i am so glad she did, they have helped more than i thought they would, i have gust come out of hospital after having aTVT procedure and a wait the results and hope i will be crossing my fingers and not my legs i so hope it works ,has any one had this procedure and does it work i do hope so as at the moment i feel as if iv been hit by a bus and can hardly walk but then if the op works it will all be worth it . i will now shut up .

best wishes to all Pen.


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nanapen
DawnCOB

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Posts: 4,496
Reply with quote  #38 

Quote:
Originally Posted by pen
Hi ,
my name is Pen i suffer from OAB and bladder incontinence i have suffered for many years,for the past 4 years it has driven me mad my bladder has a minned of its own and will empty when ever it feels fit to do so the worst is wetting my bed.
I have two grown up children and two grandchildren, my daughter still lives with me and is very understanding she made an opiontment at my docters for me last year and i am so glad she did, they have helped more than i thought they would, i have gust come out of hospital after having aTVT procedure and a wait the results and hope i will be crossing my fingers and not my legs i so hope it works ,has any one had this procedure and does it work i do hope so as at the moment i feel as if iv been hit by a bus and can hardly walk but then if the op works it will all be worth it . i will now shut up .

best wishes to all Pen.

Hi Pen,

Welcome tothe board.

Here is an older post on TVT. I hope you are feeling better soon.

http://www.websitetoolbox.com/tool/post/cobf/vpost?id=823757&highlight=tape

best wishes

Dawn
wru

Registered:
Posts: 7
Reply with quote  #39 
Hi
I am a 49 year old man. Not sure where to start I have had bladder problems for years and have been the brunt of everyone jokes for that long (billy's bladder). I seem to be going every 30 mintues especially in the mornings) and sometimes I get really desperate in the car when I am going to work and especially in traffic jams. When I have a couple of pints of beer (which I rarely do now) I can be going every 5 minutes. If anyone has any advise for us men then it would be most appreciated. I have been to the Drs a few years ago and I was told it was probably Irriatable Bladder Syndrom I had not heard of this.
Thanks Bill
maz451

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Posts: 696
Reply with quote  #40 
Hello there! As you have been suffering for years and it is obviously causing you distress, you need to get your gp to refer you to an urologist and, hopefully, you'll get a good one, so you can start having some tests to get a diagnosis and not just a clinical one such as you've had. Irritable bladder syndrome covers a multitude of conditions none of whom may be accurate in your case!
You'd  better lay off the alcohol too as that is a diuretic and will only irritate and make things much worse for you! Sorry! I know it's hard!
I don't suppose the initials stand for Welsh Rugby Union do they?? If you are in south Wales e-mail me and I can tell you a bit about urologists!!!! M.
wru

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Posts: 7
Reply with quote  #41 
Hi maz451
Thanks for the advice. Sorry I live in Yorkshire.
Cheers
Bill
maz451

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Posts: 696
Reply with quote  #42 

No probs Bill. Hope I was of some help! M.

missbar

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Posts: 1
Reply with quote  #43 
Hi All,

I am a 37 year old female, diagnosed with Urethral Stricture but have all the same symptoms of OAB. It is comforting to see that I am not the only one. I am ok during the night-just have the constant urge to go mainly when the anxiety kicks in and I know I am not near a bathroom or in a situation where I cannot excuse myself easily. I am wondering what everyone does with work? This has been extremely hard for me and my interactions with others as I do not want to explain my situation. My career and personal life is suffering and I would love to hear how others are handling it.

Thanks.
Pinar

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Posts: 42
Reply with quote  #44 

I am 32 years old female. After suffering from usual symptoms of IC over 10 years, numerous investigations and wrong treatments, I was finally diagnosed with IC last month following a cystoscopy and biopsy. I am currently receiving Cystistat instillations and on Pregabalin, of course I must not forget about plenty of painkillers! This web site is God send. Thanks for everyone for their support.

Pinar


__________________
IC diagnosed in 2008.
On Tramadol only as and when needed.
Cherryblossom

Registered:
Posts: 2
Reply with quote  #45 
Hey Everyone,

I'm so glad I found this site - thought I was the only one. Have suffered from what I think is OAB from about 11 - 12 years of age (now 23). Makes everything difficult, and other people don't really understand, I've had lots of people just say to me, "think of something else," or "try and hold it in."

I am going to see a doctor on wednesday to see if it is OAB I have....

Anyway, since it is monday, I hope you had a good weekend! x
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