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Racelema

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Posts: 1
Reply with quote  #46 
Hi everyone

I am 23 and have lived with an overactive bladder ever since i can remember. My earliest memories were having to tie my jumper around my waist at school to hide my incontinence. I was so scared of anyone finding out and bullying me. It affected me 24 hours a day when i was younger and i wore nappies in bed until the age of about 14. I have tried various treatments but i can't remember the names of them. There was a spray i had to put up my nose but that did nothing at all. I take Oxybutinin but it doesn't seem to do much. As i've got older I don't get problems in the day anymore (unless i've been drinking, then I have no chance of staying dry!) My biggest problem is at night. I constantly wet the bed and have to change the bedding 2-3 times a week. It comes in phases and sometimes i can go a month or so without any problems but it can start again without warning. I have tried to find a pattern to find out what's causing it and it seems to get worse when i am under stress. I have had tests but as yet have not been diagnosed. It runs in my family and my mum and both my aunties suffeed as well but they all grew out of it.
I am seeing a doctor on Monday and i'm going to ask to be referred to a specialist again. It's really getting me down.
JOHNSON

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Posts: 4
Reply with quote  #47 

Hi i also have an overactive bladder i feeling real bad just now with it not much fun is it


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HJJohnson
VickieLR

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Posts: 5
Reply with quote  #48 
Hello all,

I'm 18 and have had an OAB since I was about 16, still trying to work out when it started coming on though. This winter it got terrible, I went to stay at my boyfriend's parents in Scotland. The air is colder, and this seems to really affect my bladder. Does anyone else get this? I ended up panicking a lot as there was 7 of us in the house sharing one loo. This has knocked me, travelling also makes me panick a lot. I've never had an accident (since I was a kid) but yet I'm constantly paranoid I will without noticing.

I will have to go back to the doctors, do many of you have good experiences with medication?

mimi60

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Posts: 1
Reply with quote  #49 
hello there! i'm an eighteen year old student from scotland, i'm here on behalf of my gran who has OBS and wanted to find out what could help!

she's a bit of a technophobe so i said i'd have a look for her!



DawnCOB

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Posts: 4,496
Reply with quote  #50 

Quote:
Originally Posted by mimi60
hello there! i'm an eighteen year old student from scotland, i'm here on behalf of my gran who has OBS and wanted to find out what could help!

she's a bit of a technophobe so i said i'd have a look for her!



Hello,

Welcome to the forum.

If you would like us to send some information directly to your gran please send her name and address to info@cobfoundation.org 

If there are any questions we can help with please ask away.

best wishes

Dawn
Lainey25

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Posts: 3
Reply with quote  #51 
Hi everyone,

I'm Lainey, I'm 25 and have suffered from urge, stress incontinence and frequency since I was 12 or 13. I saw a spec when I was 15, who gave me cystrin and a TENS machine, and sent me to a physio to teach me pelvic floor exercises (I could never do these, even to this day I cannot feel any muscles down there to tighten). Something else worked tho, and I stopped using both cystrin and tens when I was about 20, and I was fine for two or three years. Then, about two-three years ago it all came back, worse than before. I am on detrusitol for the last year, which helps with the urge incontinence. It isn't as good as cystrin but less side effects. I leak loads when there is any sort of pressure on my bladder, when I need to pass a bowel movement/wind, using a tampon or sex. On the waiting list to see a urologist at the moment. It's really getting me down lately, more so than when I was younger, probably because I've since had those three symptom-free years to compare with! I've been reading messages on here for a while, and it's really great to find other people who are open about it. the only people who know are my mum and sister, so it really helps when I have an episode to think, 'it's ok, there are thousands of people who go through this and get through it somehow'. Thank you so much, this site in invaluable.
wru

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Posts: 7
Reply with quote  #52 
Hi All
Just to keep you in the loop. I now have a urology Appointment at the end of the month to do some (flush) tests. So thanks for the advise of seeing my GP it really has helped talking about my problems.
Bill 
suede

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Posts: 2
Reply with quote  #53 

Hi I'm Rachel and I've had OAB since I was 13. It hasn't been diagnosed, I saw my GP at 13 but she said it sounded like urge incontinence but that I was the wrong age for that. I don't think the term OAB had been "invented" then. I'm 21 now, my symptoms have improved over recent years but I still have difficulties with it every now and then. I've mainly improved with having more freedom as an adult (teachers are mean and don't let you go to the loo) and also changing what/how much/when I drink. Little caffeine or alcohol unless I'm at home for the night! The difficulties made me agoraphobic for quite a while and messed up my mental health a lot. Still haven't been diagnosed and am looking for ways to have a better life.

muse24

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Posts: 1
Reply with quote  #54 
Hello everyone. I am a 24 male suffering from OAB, I seem to buck the trend significantly being young and especially being male. Are there any others on here?
I developed OAB about a year ago and for a fair while though that it was just my problem and I could beat it if only I tried harder. After a time I realised there must be something medically wrong with me and I went to my GP and was referred.
After a couple of diagnostic tests (one painful and intrusive) I was prescribed Deutrositol. It didn't seem to help at all and was keeping me up and night for some reason so I stopped after a couple of weeks and just went back to managing myself and keeping up with the attempt at bladder training.
Symptoms fluctuated and possibly got gradually worse, anyway I decided to go back to seek help and found out that Deutrositol often takes a fair few weeks to work. So I'm having another stab at it and if not then I will get another medicine prescribed and keep trying to train my bladder (had virtually zero progress with this so far, anyone else?)
Anyway that's my story, think I will keep a record of my progress on a different thread. Would really like to talk to another bloke suffering from this, I've not told anyone apart from my mum who found out and I can't belive I'm considering buying special underwear at the age of 24

BlissC

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Posts: 125
Reply with quote  #55 
Ooops! Missed this thread when I first joined here!

Hi, I'm Bliss (aka offline as Rachel), and my (very) long intro is here. The very long version, with my assorted experiences of medical problems, the healthcare service, and other problems along the way, is currently being written, and I'm hoping to have it finished by the end of 2009. I'm 36 and live in Derbyshire, and I work part time as a local government officer, and part time as a web designer/developer, and when I'm not doing that I'm still usually glued to my computer as I run the UK online support forum for one of my other medical problems.

In short though, I started to have serious health problems due to being born with a form of spina bifida in my early teens. Aged 15 I was diagnosed with fibromyalgia, and then after various other problems along the way, in 2003 I was diagnosed with a rare neurological condition called idiopathic intracranial hypertension. Due to that I've had neurosurgery now 5 times in the last four years - brain surgery three times, and spinal surgery twice; my most recent 7 weeks ago.

Bladder problems can be a problem associated with many of my medical problems, and I've had problems on and off since my teens, but more seriously for 8-9 years now. After being treated by my GP for a couple of years with oxybutynin and antibiotics after various spells of bacterial cystitis, I eventually saw an urologist, who diagnosed 'hyperactive bladder' worsened by my back problems and fibromyalgia. For a number of years my symptoms were fairly constant - mainly frequency/urgency, but foruntately after a lengthy spell of prophylactic antibiotics, the bacterial cystitis settled down.

For getting on for a year now though my symptoms have been worsening, and abruptly worsened during the summer, when I was officially diagnosed with OAB with urge incontinence. I'm strongly suspecting IC though, as from everything I've read, pain isn't a feature of OAB and my most problematic symptoms are the urge incontinence (yep, another one wondering how I ended up with special underwear in my 30s :roll: ) and pain.

At the moment I'm keeping a detailed diary of all my symptoms etc. in preparation for seeing the urologist again, because although the specialist nurse practioner I see about my bladder problems is great, and I love her to bits, I think I need some input from the head man himself. Like they say, watch this space...


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aka offline as Rachel
~~ No matter how hard you try, you're still in prison if you're born with wings but you never fly ~~
DawnCOB

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Posts: 4,496
Reply with quote  #56 
Welcome to the forum....

Meet and Greet is an introduction thread to tell us more about you... if you would like a response to your message or have further questions please post on the main forum using the following link for a new post.

http://www.websitetoolbox.com/tool/post/cobf/printadd?forum=4039 

If you would like to receive further information on BC/bladder conditions and COB please send your name and address to info@cobfoundation.org

If you would like to speak to someone direct please call the COB Office on 0121 4761222

best wishes

Dawn
farishta

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Posts: 3
Reply with quote  #57 
Hi Everyone

As a child I suffered from bed wetting up to the age of about 10. I had what I can only describe as an attack of cystitus at the age of 10 and ever since I have suffered from urge incontinence. Throughout best part of my life I have suffered bladder accidents, at school, at work, out socialising, at home etc. It is only during the past 4 yrs thatmy GP decided to refer me to various specialist to try and recognise my condition but it is only now that I am having tests to determine my condition. I have been told by my consultant that it is highly likely to be OAB.

My employers have been theworst in understanding the condition that I have in fact they don't believe I have a condition and think I am being lazy or idle. I work for the emergency services and most of my work is outdoors with the public.

My condition has taken over my life and controls everything I do, as a result I have suffered depression and isolation. I hope one day my condition will improve or a cure will be found.
Eliza

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Posts: 1
Reply with quote  #58 

Hi.  Was prescribed Vesicare by my GP 3 months ago.  Found they did have a beneficial effect but suffered from dry mouth.  Have had 2 water infections in last 4 weeks.  As I am not prone to these, wondered if anyone else had reported this as a possible side effect of this medication?

Dark

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Posts: 5
Reply with quote  #59 
     Hey, I'm Ben, 15 years old, and have been suffering from OAB for about 10 months. It's been really hard for me and I'm glad I found a place where people are going through the almost or exactly the same thing as me, and understand it, unlike most people.
Jacqueline_09

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Posts: 2
Reply with quote  #60 
Hi everyone,
Im 23 and have been suffering with an overactive bladder since i was 20. I have no reason as to why i suddenly felt the way i do and my doctor cannot find any answers either, its all very frustrating. I have been in and out of hospital for various tests and procedures but nothing helps. I have been on 5 different types of meds and im now on Vesicare which at the moment is helping.

It is a relief to know that i am not the only person out there who suffers from this condition as you do start to believe that you are the only person out there with this. I had alot of people dismiss me and say all my problems were psychological as i was "too young" to have bladder problems.  The more people tell you this the more you begin to belive them. It really affected all aspects of my life socially and emotionally. I just hope one day i can come off my meds.  
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This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

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