photo ABENA ADVERT-banner_zps5mzyerjh.jpg  photo Dmannose_zpsvcaxj4ag.jpg

Register Latest Topics
 
 
 


Reply
  Author   Comment   Page 2 of 4      Prev   1   2   3   4   Next
merlin7777777

Registered:
Posts: 3
Reply with quote  #16 
Hi there, just joined.

I'm recovering from a neuro problem that has left me with urgency but I'm not sure if you'd call it overactive bladder so I wondered if someone would help me characterise it?

Originally I had urgency and frequency but the frequency has reduced to normal and now I just have the urgency i.e. very little notice and an inability to 'hang on to it'. As I have poor mobility at the moment I don't have time to get to the toilet and I have to use a bottle.

What name would you give to this?

thanks, all!
DanS

Registered:
Posts: 9
Reply with quote  #17 
Hi.

I have just joined this forum after recently discovering the COB Foundation. It is comforting to know I am not the only one with an OAB problem, and have found this website and forum very helpful.

I thought I would share my story. I am not sure if this is the right thing to do as the forum appears to be more for women, but a problem shared etc.

I am not sure when my OAB symptoms started exactly. For example, two years ago I could happily spend 3 hours in a car without out having to stop at the services - now I may have to stop 2 - 3 times for a similar length journey. However, it really came to my attention about one year ago when I was stuck in a traffic jam on the motorway - that is when I finally admitted I had a problem! [bawl] 

After the usual waiting game on the NHS I am now seeing a urologist who diagnosed me with OAB last September. It appears to be a period of trial and error with various medicines and appointments to check progress - I have since been prescribed with Tamsulosin [still taking], Oxybutynin [2 months], Vesicare [1 tablet per day for 2 months and 2 per day for 2 months]. I am currently taking Betmiga 50 and I am 4 weeks in of an 8 week period before I visit the urologist for my next appointment. At first I noticed a great improvement at night, however, during the day things have only improved slightly - appears be more overactive during the morning as opposed to afternoons and evenings. I have noted on one thread for women that Betmiga 50 would appear to be better taken in the evening, which I am going to try for the next 4 weeks.

I have also changed various aspects of my diet, and I no longer have carbonated drinks, citrus fruits, tea or coffee.

Anyway, that's my story. Thanks for having me here and I will keep you posted.

Dan
  
Sophia

Registered:
Posts: 516
Reply with quote  #18 
Hi Dan

Welcome!

This forum is mainly ladies but we do have some men as well!

Betmiga I think is better taken in the evening so do try that.  It seems like you are well covered in terms of medications and unfortunately it is trial and error to see what helps you best.

I wonder if you are more overactive in the morning due to having held the urine all night and your bladder being more irritated?  Just a thought...!

Take care
Sophia
merlin7777777

Registered:
Posts: 3
Reply with quote  #19 
Hi, Dan. I'm a man with an OAB as a result of a neurological problem. I use oxybutynin which works well for me.

I find what I eat and drink makes a huge difference. You've mentioned the obvious things but I'm still coming across new things which cause me a problem. So it might be worth looking for some other things. I've found that tomato (the fruits, puree, juice etc) and pineapple are no-go zones and black peppercorns... whoa! Won't be having those again...


ModeratorKate

Moderator
Registered:
Posts: 1,588
Reply with quote  #20 
Hello Dan and Merlin.

Welcome to the Forum I hope you will continue to find lots of support and good information to help you.

Do also take a look through The COB Website, and consider becoming a Member Of Cob see links below.

Also we have a specialist Nurse on the Advice line this coming Monday 2nd June, and you are more than welcome to give her a call.

However do keep posting.
Kind regards
Kate


__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Icy

Registered:
Posts: 428
Reply with quote  #21 
Hi Dan and Merlin,

Although your posts are on the COB overactive bladder area - there is also the IC men's thread which may be helpful to you.  Often OABladder and IC can be connected and many IC patients can begin with OAB.  So worth a look if you have not seen these posts.

Although more women seem to post up there are lots of men with bladder symptoms and some have prostate problems for which their is a prostate group I think.   

http://cobf.websitetoolbox.com/post/mens-ic-thread-5070887
expat

Registered:
Posts: 1
Reply with quote  #22 
Hi. Here is my success story with OAB, so far.

I'm male and have had overactive bladder for 10 years. Without drugs it's like a constant urge to urinate, a toothache in the bladder. Sleep is impossible, work is difficult. I started out on Urispas (flavoxate hydrochloride), and it worked well in conjunction with a strict diet - no alcohol, no coffee, no acidic drinks or fruits - and not drinking anything late in the evening. After about 3 years the condition suddenly got worse and I was given Detrusitol SR 4mg (tolterodine tartrate). That worked well, but the side-effects were dry mouth, throat, and eyes, plus constipation. Following the urologist's advice, I was able to stop taking the medication for periods, but these became shorter and less frequent instead of longer and more frequent as I'd been told. This year I was unable even to get on to the half dose of 2mg.

When I started taking NaturalBladder's Bladder-Control (2 capsules a day), there was no effect at all for 11 weeks and then it suddenly kicked in. After another 4 weeks I was able to cut down to 1 capsule a day, and sometimes half a capsule. The calming effect on the bladder was about as strong as Detrusitol 4mg, but without the drug's side-effects.

Unfortunately, Bladder-Control contains Siberian ginseng, which some people are sensitive to. From Day 1 I felt hyper-alert, had insomnia and raised blood pressure. I was able to control the insomnia by taking the capsules only in the morning, and with only one capsule or a half it wasn't a problem. But I wasn't able to get my blood pressure back to normal. The main ingredient of the product is L-Arginine, so I switched to taking 750mg per day of that and the effect is similar to Bladder-Control, although perhaps not as strong.

I've yet to experiment with different doses of L-Arginine, but it seems to do the job and is significantly cheaper than drugs or Bladder-Control. I get mine from Healthspan, but it seems to be easy enough to find. If you try it, just be sure to give it around 3 months to work.
ModeratorKate

Moderator
Registered:
Posts: 1,588
Reply with quote  #23 
Hello expat
Welcome to our our Forum and for telling us your journey.

Yes the COB website ells us that "L-Arginine - A naturally-occurring amino acid thought to increase the blood flow to the bladder. " and may assist some.

If you would like any more assistance/advice or help, do consider becoming a COB member, as the Office has so much more than we can hope to cover on this Forum.

Also I wonder if this might be nearer to you , and  if you do or have had contact with them,it is always interesting to read of treatments and assistance being offerred for this dreadful dis-ease.

Interstitial Cystitis Center 
Chairman: Nagendra Mishra
2nd floor  Shantam Complex,
Gurukul Road,
Memnagar,

Ahmedabad 380 052
Tel: 079-27497083
http://www.interstitialcystitiscenter.in

Do keep posting and reading what our members kindly post, and wish you continued success in your treatment.

Kind regards
Kate

__________________

 


http://bladderhealthuk.org/membership/membership-benefits
arararagi

Registered:
Posts: 3
Reply with quote  #24 
Hi everyone.

I'm not entirely sure what I have yet, but was hoping some people on here might have some insight or at least be experiencing something similar to me. I'm 26, male.

At the moment I don't really get overly strong or sudden urges to pee, which I'm glad about. The problem I do have is that I find it incredibly difficult to empty my bladder to a point where I feel like it is completely empty. At night time before I can get any sleep at all, I have to pee from 3-5 times in the first hour or two after going to bed. While trying to pee at this time I'll get out a small volume, but then I have to strain so very hard to try and get out small amounts of pee so that I can get rid of the feeling of needing to go. This straining is to the point where my muscles, head and sometimes genitals are aching, but I don't care at that point because I'm so desperate to get some sleep. The thing is that I will get out as much pee as I can, and then go to bed and instantly feel the need to pee again. So I wait for maybe 15 minutes and then start the whole process again.

Eventually after doing this a number of times, I'll get enough relief to finally fall asleep.

I've had this problem for getting on two years now. I remember about 3 months after I first got symptoms it was at it's absolute worst. I was peeing probably every 10 minutes up to 8 times before I could even try to sleep and during the day had to push and strain in front of the toillet for probably 10 minutes before I could feel empty enough to go and do something else. I put it down to the fact that I was drinking too much coffee at that time and cut down on that.

I've seen two urologists about this problem. The first one told me I had an overactive bladder and put me on tolterodine tartrate. This did help a bit, but only for around 6 months before losing it's effectiveness. I'm seeing another urologist now who hasn't really diagnosed me. I'll be seeing him again in September. I've had flow tests, prostate exams and a cyscopy. Every test has shown me to be fine.

Drinking less fluids does seem to help, but I worry about getting dehydrated in this hot weather, so the problem has gotten worse recently as I tend to drink more water. I don't drink coffee or soda, occasionally drink tea and semi-often eat spicy food (might be a problem). I also stopped drinking beer (because it would make me have to pee every 10 minutes which is kinda stupid if you're trying to socialise at the pub). NaturalBladder bladder-control looks interesting, but doesn't seem to be available here in the UK (without spending lots to import it).

So that is what's happening with me. After two years I still have no answer as to what is happening, and I'm getting used to the idea that I'm probably going to suffer from this for the rest of my life, possibly getting worse as I get older. I'd love some ideas on how I might begin to alleviate this, because my doctors and urologist are not being very helpful at all.
JillB

Registered:
Posts: 214
Reply with quote  #25 
Hi Arararagi

Sorry to hear that you are suffering with bladder problems.  

When this first started did you have any other health problems?  Have you ever had a urinary infection? 

Here's a link to a natural supplement that has good reports and may be something you could try.

 http://www.sagamedica.com/products/4/SagaPro/default.aspx

If your new urologist can't help you do keep posting.  I am seeing a chinese doctor for acupuncture and herbs and this has helped me enormously.

All the best

Jill








arararagi

Registered:
Posts: 3
Reply with quote  #26 
Hi Jill,

Thanks for your reply. I've never had a UTI or any infection in that area. One concern I had was that I was given cyclophosphamide in quite a high dose a few years ago - a chemotherapy that has been linked to causing bladder cancer a few years later. Since the cyscopy didn't show anything, I'm assuming for now that it isn't likely to be cancer.

SagaPro looks promising, but quite pricey, especially if I end up having to take two a day! (Since my symptoms aren't so bad at the moment, one might be enough). I wonder if it is something I can get on prescription from the GP.

Anyway, I'll keep reading posts around here and see what information I can take up.

Thank you.
ModeratorKate

Moderator
Registered:
Posts: 1,588
Reply with quote  #27 
Hello arararagi

Welcome to our Forums,am sorry you are searching your symptoms for our dreadful dis-ease,
I am sure you will find comfort and assistance here, and also the COB Website.

http://www.cobfoundation.org/

I would also suggest that you become a member of COB ( see link below), as not only will they send a very informative welcome pack, but you will then have access to so much more support and advice than we can hope to cover in this Forum.Including Male support you could maybe contact.

However do keep posting, we are always here to listen,and assist you when we can, and you understand that you are not alone in your search for treatment and  you will be aware that unfortunately there is no quick fix, with a one all treatment, as what may be good for one may be totally unsuitable for another.

Kind Regards
Kate




__________________

 


http://bladderhealthuk.org/membership/membership-benefits
Icy

Registered:
Posts: 428
Reply with quote  #28 
Hi Arararagi,

Sorry you have this bladder problem - all bladder problems are so miserable for the sufferer and even more difficult to bear when doctors and consultants are so unknowledgeable. There never seems to be a great deal of commitment to actually get to the root cause of these conditions, be it interstitial cystitis, overactive bladder, pain and bladder pressure. Sometimes it is not enough to just throw medications at the condition as this often does not resolve things and doctors need to take much more of a "whole approach" to how the body is functioning and primarily malfunctioning.

Have you had antibiotics in the past which may have caused an imbalance in gut and body good flora.  I note you have had some kind of chemotherapy treatment. Was that for the bladder?  Chemo itself causes considerable damage to the good flora in the digestive system and around the whole body.  It can lead to an overgrowth of candida/fungal overgrowth. Everyone has candida but in cases of high antibiotics or other interventions such as radiotherapy, chemotherapy it will become overgrowth causing all manner of immune system dysfunction, gut dybiosis and toxins to create inflammation in the body.

I see that you say beer particularly affected you and I am wondering as beer is very yeasty you could have an overgrowth and your body is hypersensitive to yeast. Some bladder problems can be down to intolerance or allergic reactions.

Have you tried a candida diet, cutting out sugars, yeasts, carbs and also gluten. Gluten is surprisingly responsible for a lot of chronic illness - this also could be irritating your bladder.  I had tolterodide tartrate at one time - it was awful and caused terrible bladder retention, I stopped it straight away as it was not addressing the issues and I found that gluten and candida were a major problem.

Sadly doctors refuse to recognise candidiasis or systemic candida !
arararagi

Registered:
Posts: 3
Reply with quote  #29 
Thanks Kate and Icy.

It does seem like the urologist is not very interested in helping me out. The first one I saw who said I had OAB actually seemed like he would be more helpful, but I moved from that area before I could see him again.

I have had a few courses of antibiotics here and there, probably not any more than most people on average. However about 3 years ago I suffered from septicemia (a result of the chemotherapy destroying my immune system) and was given continous antibiotics for about 3 days. Apparently they were giving me five different types along with replacement blood. The chemotherapy was for Lymphoma and quite high dosage. It made me very ill at times, but was just over 4 months or so (a relatively short time compared to most cancer patients). I had no radiation treatment thankfully.

I'm sure the chemotherapy and everything else did considerable damage to my body at the time. I couldn't say about the anti-biotics, but I'm sure it wasn't very good for me. I've thought about gluten before and it's possible effects. For a while I actually tried to go on a gluten free diet (or at least, significantly reduced) but struggled quite a lot to actually find replacement food for the stuff I ate. I'll probably just have to try harder. I have problems with my bowels sometimes too (which are from before I had cancer) that have some similarities with IBS, so it could all be interlinked.

As it happens at the moment my symptoms have improved quite significantly. It was suddenly after having a few days of really bad symptoms. I'm actually managing to sleep through the night without having to get up once, probably for the first time in at least a year. I really hope it stays like this. I can't think of anything that I'm doing differently though, so it's hard to pinpoint why.
Icy

Registered:
Posts: 428
Reply with quote  #30 
Hi Ararargi,

Doing a gluten free diet is hard but in many once you cut out all the substitutes for bread, cakes, biscuits, pasta, pizza - it is not to bad. A lot of the replacement "gluten free" substitutes for the aforementioned food are actually total rubbish so it is best to have a complete mind change on food and don't actually go for the "gluten free" shelves. Instead eat veg, meats and fish, eggs, lower sugar fruits, veg soups etc. Also watch gluten in hidden forms if you use any processed foods.  It is not easy but it gets easier the more you do it and is of course easier at home than travelling and on the go which is far worse.

Trying to build up the immune system is a major task for you now. Vit D and C in as large a dose as you can take may help. Also try and get on a probiotics programme to help the digestive system.


Previous Topic | Next Topic
Print
Reply

Quick Navigation:

 Teva UK Ltd Abena.co.uk
This Forum is provided by Bladder Health UK and is intended as a place for Sufferers of Interstitial Cystitis, Bacterial Cystitis and Over Active Bladder, together with their family & friends to gather, online in a positive exchange.

BHUK is not a medical body & do not claim to have medical knowledge. It is not the intention of BHUK to provide specific medical advice, but to provide users with information to better understand their health & to manage their suffering.

Specific medical advice will not be provided & BHUK strongly advises that you consult your GP/Consultant/Urologist for professional advice.

We would hope that users of these forums will conduct themselves in a courteous and respectful manner. Any conduct not consistent with this standard will be deleted immediately and the poster may be restricted and/or terminated without warning.