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Saddo

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Reply with quote  #1 

Eventually my urologist has come back to me to confirm I have bladder nerve sensitivity.....its just sensitive nerve receptors. He says no rhyme or reason causes it to occur and there is no cure.

First question is there a name for this? What is a neurogenic bladder?

Second is there any other advice than what he has given......

His advice is:-
  • Simply try to work out what food and drinks aggravate it and avoid.
  • Avoid caffeine....I already am caffeine free, but would love a cup of coffee :-(
  • Avoid red wine.....Ive stopped drinking all alcohol :-(
  • and spice foods....Im cautious with spicy foods.
  • Try some bladder retraining and learn not to focus on the symptoms. Usually people get used to the symptoms and learn to ignore them???
  • I could try Amitryptaline.



Jude10

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Posts: 50
Reply with quote  #2 
Hi, my problem started as a uti and I am taking longer term antibiotics. However the specialist I am seeing also mentioned that some American research has shown that a uti can stimulate an overgrowth of nerves making your bladder more sensitive. He suggested taking ami , gabapentin or pregabelin. I,m over sensitive to drugs too and so haven,t been able to tolerate even 3mg of ami but it,s an interesting link to what you,ve been told.
The antibiotics have helped a lot but I do wonder what else is behind this condition!
ModeratorKate

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Posts: 1,902
Reply with quote  #3 
Hello both

Thank you for posting, there is so much that affects our bladders ,being the organ with the most nerve endings, is it any wonder,( and as we as individuals all react differently,) it does making diagnosis confusing,

 read through these links, they may/ maynot assist.Whatever do keep posting.

https://www.hopkinsmedicine.org/healthlibrary/conditions/kidney_and_urinary_system_disorders/neurogenic_bladder_85,P01487

http://www.chronicutiinfo.com/day-to-day-management/diet-and-drink/

http://www.chronicutiinfo.com/general-topics/histamine-and-the-bladder/

Kind regards
Kate

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Saddo

Verified BHUK Member
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Posts: 17
Reply with quote  #4 

Thank you Kate.
I find the histamine link interesting as I have had Allergic Rhinitis for many, many years and IBS. I have found that when I take anti histamines I do appear to be less bladder sensitive!!

Another question is how do you know what food or drink affects the bladder ..... how long after eating or drinking something seems to be an unknown. Ive read where some suggest a reaction 20 minutes after eating or drinking. Others 2 days later....so how would you know what it was that caused the reaction if you've eaten several meals in the mean time?!

ModeratorKate

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Posts: 1,902
Reply with quote  #5 
Hi Saddo
"Another question is how do you know what food or drink affects the bladder "

Ah!another conundrum, if only there was a staright answer..

Personally I notice a bloating within an half/hour or two,( Even household Bleach from cleaning, can set me off)

if you have a fairly regular diet, my own view would be, that not everything is going to set you off, so would start by, listening and noting any changes in your body by keeping a diary of everything you eat and drink, for a week or two, and try eliminating one item , (that maybe gives you a twinge or whatever,) at a time to see if any change.OR if you think you can identify the offeneder , then try that particular one again.

Maybe speaking with the nutritionist at BHUK would help.

Also found another link for you.

https://www.mayoclinic.org/diseases-conditions/urinary-incontinence/in-depth/bladder-control-problem/art-20046597





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