Registered: 1253350543 Posts: 1
Reply with quote #1
My wife has had IC, or PBS, for some time, and has had a recent flare-up. She's got a good urologist, and is coping pretty well considering (she's had the instillation treatment, the bladder extension treatment and is taking imiprimine and pps). I'm concerned that she's been pretty bleak, with not much of a capacity for fun during this period. She enjoys wine from time to time, and I'd like it if she was able to have a bit of alcohol on a weekend evening to cheer her up, without putting the bladder at risk. Looking at the research, I can see that there are findings that tobacco is bad for the bladder and so are beer and wine, because they either contain histamine, or induce its production. As far as I can see, though, there is no particular danger from alcohol itself. I was wondering if any IC sufferers had found something that could be taken moderately as an occasional tipple that doesn't have a bad effect. Any suggestions?
Registered: 1184524426 Posts: 845
Reply with quote #2
dsadly no. I can at times drink a glass of white wine. I find the australian ones better. Less acidic. Swallowed down with a load of prelief, but not really worth doing often.
Registered: 1208620037 Posts: 562
Reply with quote #3
Sorry to hear your wife has suffered with IC for a long time. Fully sympathise - I have a son who is trying to cope at university with this appalling illness. Unfortunately alcohol is a definite "NO" really. All alcohol is highly acidic, as you say does encourage the release of histamines as well as having histamines in it from the fermenting process, but it also contains yeast and sugars which are a real problem for bladders. University life often revolves around bars unfortunately but my son goes to the bar to be sociable and drinks water! It is very tough! There is Prelief which is a tablet mentioned by the previous poster. It may help by reducing the acid in the drink. Its from the US and available online I think but also from the Nutri Centre stores online and shops around UK.
Registered: 1098279721 Posts: 914
Reply with quote #4
You will find that with drinks every IC patient is different. Wine tends to be the one drink most patients avoid though. I can drink Vodka and 9/10 it will not affect my bladder (I have IC), however if I having a bad day or flaring it will make it worse. Best Wishes Kerry __________________ Survivor of IC since November 2002, finally diagnosed in Summer 2004. Had 4 cystoscopy's, 4 hydro-distentions, 3 urethral stretchers, 1 laparoscopy, 4 urodynamics, numerous ultra-scans, Cystistat and DMSO instils of which I have lost count, perform ISC, suffer with retention, pain, bleeding, frequency and urgency and now have a urethral stricture. Had botox injections in Nov 2014. I'm on ibuprofen and tramadol daily along with my other six daily tablets.
Registered: 1242120187 Posts: 118
Reply with quote #5
I seem to be fine with alcohol free beer. Its been a godsend to me, makes going to the pub a lot less boring. I appreciate it stll contains the brewers yeast but less sugar than other alcoholic drinks. To be on the safe side I usually take a couple of prelief just in case.
Registered: 1182797462 Posts: 180
Reply with quote #6
Hello, I rarely drink, but once last year and earlier this year I felt rebellious and had quite a few rums. I did take prelief as well, but came out unscathed. Rum is on the 'maybe ok' list and for me, seems to be ok in moderation. Can't have the usual coke with it though, so made a cort of cocktail with coconut milk instead which is nice. I think the soothing coconut milk helps to counter-act the alcohols effect on the bladder as well. Good luck with finding something that she can have, its quite hard playing mindfield with drinks. With things like cider, I found out pretty quickly (within 30 mins) if things didn't suit me, but everyone's different so I would advise a small amount and then wait a while for any after effects! I think it's definitely worth getting prelief to take with things you are unsure of, it wll help minimise any bad effects.
Registered: 1284963142 Posts: 3
Reply with quote #7
Alcohol is a strict NO. acidicity is the problem
Registered: 1259702812 Posts: 308
Reply with quote #8
I too have the odd drink..
Rose weight watchers wine seems fine and I drink Baileys.. even had a glass of Champers 2 weeks ago and no bad effects..
Some people can drink certain alcoholic drinks.....From the Ic survey.. I think spirits are not too bad.... Rum , Vodka etc... Its the mixers that can cause problems.... How about mixing with Blueberry juice?
People saying a definite No about alcohol should NOT be saying it.... Everyone on here is different. Its trial and error x