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Lavapool

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Posts: 1
Reply with quote  #1 
Hi I am a 21 year old male and I think I have OAB.

Since early October of this year I have been getting weird symptoms which seem like OAB. I first thought it could be a UTI, even though these are apparently more common in women, but after seeing a nurse and then a doctor and providing urine samples, I was told this was not the case.

I have since had a blood test done and my bladder and kidneys scanned via ultrasound and as expected there seems to be nothing wrong there, no infections and no damage and so my doctor has diagnosed me with OAB.

I have been attempting bladder training for almost 5 weeks now and there seems to be a small improvement but my days are still filled with worry.

My main concern is that this will not get better or that the improvements are just in my head and not real, but another major concern is that the doctor is wrong. My symptoms don’t seem to line up with the norm for OAB: no incontence and no major urgency to go. Despite being able to hold on for 6 hours on the first day of training I still don’t feel right and the feeling that something is wrong usually starts about 5-10 minutes after using the toilet.

Feelings range from feeling like there is a small amount of urine in my urethra to a sort of surging feeling (like the urine is about to exit my body despite this never actually occurring). I find when I go for walks the feeling is lesser but I still feel slightly as if I need to return home to use the loo. On top of it all I have suffered from mild bladder aching and sometimes strained urination (but usually only in the morning).

I know I’m only a month into the training and it’s supposed to take multiple months but every day is filled with worry and stress and frustration and it feels like my whole life is on hold and I just feel so helpless.

Is it possible I have a mild form of OAB and even if I don’t can the training still work? I really want to get back to how I was before, where I was quite good at holding on for long periods of time (unless I had consumed large amounts of liquid). I don’t like feeling like I can’t trust my doctor or that he’s wrong, but it’s always at the back of my mind.
Rowanj

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Posts: 47
Reply with quote  #2 
Lavapool,

  That sounds unpleasant. i am sorry.  Not really OAB symptoms like mine, i can understand you being suspicious of your diagnosis. On the other hand, perhaps everyone on this forum has a different expereince of OAB.
You can always go back to your GP,   and make sure you see a different one...

Hope you feel better soon.

Rowan.
Rowanj

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Posts: 47
Reply with quote  #3 
Also, call BHUK. They probably know a lot more than a GP.   ANd does diet influence urges, etc?
MsAnxious

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Posts: 5
Reply with quote  #4 
Hi Lavapool

I developed OAB after my hysterectomy last year. My symptoms are very similar to yours. I did try bladder training with moderate success. I have been on OAB medication for over 8 months now. My symptoms have slowly got better and now I have days where I feel quite ‘normal’. I too was very anxious when the symptoms started, worrying that my condition would never improve. I guess what I’m trying to say is don’t lose hope. Work with your doctor to find a solution that works for you. Good luck.

Regards
MsAnxious
foxglove

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Posts: 23
Reply with quote  #5 
Hi, would you be kind enough to tell me which med. you take for OAB.  I have been on oxybutamin - no use, Vesicare with moderate success but I think I stopped too soon.  Appt. this month as symptoms have been really bad this year and I want to get script for some sort of med!  Thanks
Rowanj

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Posts: 47
Reply with quote  #6 
Offered Oxybutynin. Choosing not to take it.
foxglove

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Posts: 23
Reply with quote  #7 
Very wise!  I tried this in increasing doses but a waste of time.  Oxybutynin is the usual first choice as is cheapest and works for some.  Vesicare (solifenacin) - not sure of spelling though think Vesicare correct!!!
and this did work with increased (small) dose.  I think I just got fed up taking but I'm in so much distress at the moment that I'm crawling back to g.p. prepared to eat humble pie!!  Good luck with whatever you decide.
MsAnxious

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Posts: 5
Reply with quote  #8 
Hi Foxglove

I am on Mirabegron (Betmiga). May not be suitable for everyone though. Best to speak to your doctor.

Regards
MsAnxious
Rowanj

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Posts: 47
Reply with quote  #9 
I just went to the cinema !  to see Knives Out. It was funny, worth seeing, but gee whiz, i need to learn not to drink liquid before hand.  Spoils everything, i mean, when to go to the loo, how long to try and wait ( knowing that buys another 20 mins of relaxed viewing ) etc etc...  arrg !
 Nice christmas film 😉
clive008

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Posts: 12
Reply with quote  #10 
I was referred to Addenbrookes and over a period of about 3 years, I went through various actions in an attempt to reduce my OAB. It was suggested I try changing my diet.  Basically no alcohol, no caffeine, no citrus fruit, no tomatoes and no carbonated soft drinks.  This improved it somewhat and  I was prescribed with Solefenacin and Mirabegron. but eventually, after many more tests, I was referred for sacral nerve treatment through UCLH. From three options, I was recently fitted with a SNS device which has helped significantly.  However patience is your friend.  It was about 4 years between my referral to Addenbrookes and getting my SNS device.  During this time, I adapted to life with my change of diet  and am now at the point where I have chosen to maintain it to give my SNS every opportunity to do its job.  PS. - chocolate contains caffeine.

foxglove

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Posts: 23
Reply with quote  #11 
Quote:
Originally Posted by Rowanj
I just went to the cinema !  to see Knives Out. It was funny, worth seeing, but gee whiz, i need to learn not to drink liquid before hand.  Spoils everything, i mean, when to go to the loo, how long to try and wait ( knowing that buys another 20 mins of relaxed viewing ) etc etc...  arrg !
 Nice christmas film 😉


Know the feeling ....To drink or not to drink" so to speak  Glad it was nice film
foxglove

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Posts: 23
Reply with quote  #12 
I am trying the diet route meantime ok with most of it but do love my coffee and find it hard to resist at least cutting down. Hope doc.
agrees to prescribe med. again. Patience not my middle name and I hear it takes a LONG time foe urology to (even to get appt). Just soldier on I suppose!
Rowanj

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Posts: 47
Reply with quote  #13 
Hi Foxglove, thanks for replying. And also it was instant coffee the other day that was probably the problemB. Also,. I think after relaxing and basically getting drunk with friends, I can have a surprisingly good bladder day. I know this is supposed to be the opposite way around, but my thinking is that a genuinely de- strssed relaxed evening is good for ones bladder... And deep down, I think I blame life's stresses for my oab.
A few months ago, i was despate to meet with other oab people, or at least anyone who had experienced the violence of urgency, and my plan was to start a support group which would consist of dinner parties, where people could drink prosecco and tea and share their experiences. I will hopefully get around to that eventually. There is such a need for contact in the first year or so ( I'm still in the first year) It should be built into the way the NHS deals with bladder issues. Perhaps not the prosecco and tea !!! :)
Rowanj

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Posts: 47
Reply with quote  #14 
In London, the GP gave me an option to book at a private hospital ( funded by NHS) ( ooooh politics!!). This was much quicker, but further away. They were quite polite, but not quite as sincere as the NHS, but the urologist was great. If I could choose again, I think I might go for a big NHS hospital. Although , I think consultants move around a bit anyway, so it basically Chinese down to the individual urologist. Good luck.
ModeratorKate

Moderator
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Posts: 1,974
Reply with quote  #15 
hello everyone

just a reminder that BHUK office have several links to groups and support,

do contact them and see if they have someone near to you,

they can also offer you much assistance if you want to set your own group.

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