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DawnCOB

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OAB Success Stories

 

COB frequently receives stories from those that have found successful treatments for their bladder condition.

 

The following is a selection of success stories which are featured in either COB magazines or on COB forums. 

 

Where possible a direct 'story' link has been included under the title. If you have comments/questions about the success story please click on the link to take you to the relevant thread to post in.

 

If you have a success story that you would like to be included here please email this to info@cobfoundation.org

DawnCOB

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Bladder training

 

http://cobf.websitetoolbox.com/post?id=478865&highlight=success

 

I have had some success with bladder training.  I've increased my capacity from 400ml to 600ml.  It does take several months so don't expect any quick results.  Hope this is some help. Rex.

 

DawnCOB

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Botox

 
http://cobf.websitetoolbox.com/post?id=3876431&highlight=botox


I had botox on the 3rd of November and ive had no urgency or  frequency or urge to wee since having it was a bit  painful having it done but the best ever not having the symtoms and getting up only once to wee if that at night am so very pleased its worked.No more ( bladder infections great,best ever.). I was talking to one lady her 2nd time she said her first one lasted 18mnths. Dolphin.

DawnCOB

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Detrusitol
 
http://cobf.websitetoolbox.com/post?id=57847&highlight=detrusitol
 
I take this every morning as when my bladder gets irritated it becomes unstable resulting in me becoming incontinent. It takes about 6 weeks to work and I have been on it for about 2, but I think it is working already as my urgency and frequency have improved. I think I am going to the toilet normally now (i.e. 3-4 times/day) rather than 10-15. I know there are lots of side effects but I told myself b4 I took them it was worth it because of the distress I was going through, I also try not to read the side effects until I have to as your brain can often trick you into thinking you have something.  Wendy

DawnCOB

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Interstim (sacral nerve stimulation)
 
http://cobf.websitetoolbox.com/post?id=3642826&highlight=interstim

 

I had the Interstim fitted 3 years ago for IC and it has worked wonderfully for me. It has reduced my frequency from up to 40 times per day/night to 8 - 10 times and reduced my abdominal/pelvic pain by 60%. I still get flare ups from time to time, but they don't last long. Helen

DawnCOB

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Oxybutyin

http://cobf.websitetoolbox.com/post?id=1191025&highlight=oxybutynin

 

Things slowly got better for me as medication was upped and changed from instant release to the xl version. Still had good and bad days until I was on 20mg oxy xl. Then had 3 months of 100% effective. Have had a few minor set backs, believe these are caused by other medical problems. Wouldn't say it is now 100% effective, however it is massively better then it was! It is very difficult to get over the anxieties of being away from a toilet, even though things are better. Jasmine

 

"I use the oxybutin patch and it works with no side effects". Spuggy

 

"Oxybutynin in very high doses have helped, low doses haven't ". May

 

"I have been taking long acting oxybutynin for a year now. I have only had a couple of infections and the daily agony has gone". Mrs T

 

DawnCOB

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Several Medications 
 
 http://cobf.websitetoolbox.com/post?id=2685374&highlight=success

I spent many an hour googling what I think I might have, and have now resigned myself to the fact that it ain't going away fast, and I just need to control it as best as I can! I feel lucky to have finally found some medication that works for me (Amitriptyline, nitrofurantoin, Oxybutyin). I'm so glad that I didn't give up at the first hurdle, as at first, being on medication horrified me!!  But, they've truly given me my life back, so I couldn't be more grateful for them now. Chrissy

 

DawnCOB

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Toviaz 
 
 http://cobf.websitetoolbox.com/post?id=3238148&highlight=toviaz

 

I have been on Toviaz 4mg daily now for 2 months,and i have to save its made a huge difference,i had to ask for it when i saw my new uro/gynae(who was lovely! a real change from prev horrid experience)no dry mouth,no blurred vision,it did take a month to notice some difference,and it has made my life so much easier.Mentally you are not thinking about the next loo stop anymore,and i go out socially more.There is a higher strength of 8mg.So go ask ladies(and gents!) I had a gentleman e-mail some time ago about this drug but he didn't get back in contact.Please e-mail me if you have any questions.Good luck everyone,but please remember,like anything it doesn't work for everyone.It is available on NHS prescription.
Liz liz.walters@nhs.net

DawnCOB

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Trospium Chloride (Regurin)

 

http://cobf.websitetoolbox.com/post?id=2371539&highlight=success

 

Hi, whilst I do not claim to have survived OAB, my symptoms have improved significantly since I started taking Trospium.I got the tablets but didn't even start taking them for another 3 months but have been taking them for over 2 months now and I am really pleased with the improvement in my symptoms. I am not totally cured but they have made a big difference to my life. Cece

DawnCOB

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TVT (Tension Free Vaginal Tape)

 

 http://cobf.websitetoolbox.com/post?id=823757&highlight=success

 

I had my tvt a few years ago and was told to take things easy for 6 weeks not lifting anything heavy etc. To be honest I was completely ok the next day, I had my procedure as a day case so went in and came out the same day. Went out the next day as walking was ok, to be honest I personally felt fine. We are all different and so as long as you take things slowly you should be fine. Maggie

DawnCOB

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Vesicare(solifenacin succinate)  

 

http://cobf.websitetoolbox.com/post?id=2310221&highlight=success

 

I have been on vesicare for two years and it has helped me a lot with frequency and urgency, sometimes I thought it wasn't helping but if I miss a tablet then I notice the difference...hope it works for you, and if not then you can try the next medication, just as long as you give each one a chance to work there are so many to try so don't lose heart, Claire

 

Vesicare really helped me. It did take a few weeks to start seeing results but I used to wee 25-30 times a day very small amounts ie 75-100ml and now I wee approx 7-8 times a day larger volumes of approx 200-300ml. I still get urgency but the vesicare seems to control that too as the urgency is not as intense as before. My side effects are very minor, just a slight dry mouth nothing compared to other drugs i have tried.
Badger

 

Vesicare - I have been taking vesicare for the past 3.5 months. It has had a hugely positive impact on me. I've been lucky and have responded well to it. I haven't had any side affects whereas with Oxybutinin, I had a dry mouth and my urgency got worse for the first few months although did then settle down. It's not perfect and I have had two 'flare ups' which have lasted about 1 week each where it feels like I'm back to square one. But then it improves again. I do still have severe pain from time to time when I go to the loo and for a while after. These episodes are infrequent and last for about 2 weeks but disappear as quickly as they start. But overall, I am very happy with Vesicare....I just hope it lasts!

 

Vesicare I have been on vesicare for 4 and a half years. Before that I tried many meds, including oxybutynin, detrusitol, imipramine, herbal remedies, physio etc etc. About 5 years ago I had cystistat which helped and then vesicare, and it has made a big difference. I still have some bad days but they are not very often at all. I did try cutting the vesicare dosage a few months back but noticed more frequency so I'm just sticking with them - don't want to rock the boat when things are going well. When my IC was bad I went for weeks without leaving the house, I couldn't work or socialise. Now I have a job, I get the bus in the mornings, I go out. Still have problems with travelling in general but that is partly fear...if you're prescribed vesicare give it a chance, and if it doesn't work foryouyou're at least one step closer to finding what does.I also watch my diet, I haven't had a coffee or real tea in years,  I just sniff other peoples (coffee!) but it's worth it! Good luck. Claire  
 

http://cobf.websitetoolbox.com/post?id=4697636

 

I am on vesicare at the moment have been taking it for 4 months and I have had some good results, I can only take 5mg as it dries my eyes up too much also have dry hair but the skin is coping for the moment. I also joined the vesicare care program which you can find out about on the leaflet in the vesicare box, a nurse rings you up from the helpline and checks if you are ok on the medication and asks if they can help you in anyway, you can also get a dvd from them which gives you some info and leaflets as well. Helen

 
DawnCOB

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Yentreve

 

http://cobf.websitetoolbox.com/post?id=2685374&highlight=success

 

 I have had success recently with a medication called Yentreve. Many other medications have not worked for me. Amitriptyline is also excellent though you have to tolerate the side effects for a while till you settle with it. I would advise to stop searching for a reason when you have had all the usual tests because it takes up too much mental energy. You need to focus on getting quality of life back and that means finding a medication that suits you. Billi

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