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Sophs50522

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Posts: 124
Reply with quote  #1 
Hey guys. Sorry me again! I'm having my second bout of a Uti since March that has made me pee pure blood. I've just done a sample ready for my doctor but its brown ?!! But theres a lot of pure blood in the toilet and on the tissue. Why would.my sample.be brown?
Panicking I've got bladder cancer now [frown]
Would a cystoscopy make me prone to infections now? Although I had symptoms for 1 year and 6 months of frequency/ uretha pain. I never once had a confirmed uti until my cystoscopy. And the last uti before that was over 8 years ago but never ever had blood.
What is going on [frown]
Moderatorsusan

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Reply with quote  #2 
So very sorry you are struggling again, it must be deeply frightening that your sample is full of blood.

I wouldn’t wait for your GP but go to A&E this evening with the sample and explain that you are passing blood - you clearly need emergency room treatment for this rather than waiting to see your GP on Monday. The colour of blood should guide treatment. One thing, however to be wary of, is where are you in your cycle? Menstrual blood mid month can sometimes be brown so make sure it is definitely due to the infection rather than say coming from the vagina. You may be asked at the hospital as part of the treatment procedure.

Infections unfortunately can cause blood in the sample particularly if they are acute. However at the moment it is highly unlikely that it is cancer. If you can’t get to A&E then your GP should send the sample off for immediate analysis and then prescribe a long course of high dose antibiotics based on the results. Not 3 days which is standard, there is a reason the infection that occurred in March has come back - sounds like it never cleared in the first place. If this doesn’t clear up then you need to see a specialist - BHUK office can help with specialists if you would prefer to look at different methods of treatment to those you have experienced previously.

And I’m afraid to say that yes a cystoscopy can cause infections. Think about it - the introduction of foreign instruments into an already infected bladder is cause to introduce new bacteria and/or stir up the existing infection. Not sure when you had your cystoscopy but you clearly need longer treatment to deal with what has occurred. The rates aren’t known but it is extremely common for infections to occur post surgery and yet the doctors don’t give patients antibiotics to deal with post op infections.

I’m sure you know how to manage things at home - you probably have your own rescue remedy but make sure you seek immediate treatment for this and if you experience a high temperature, vomiting, dizzyness, lack of awareness etc. get to hospital immediately.

Hope you feel better soon.





Sophs50522

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Posts: 124
Reply with quote  #3 
Thank you Susan.
I'm sorry if I am coming across as very dramatic but prior to my March uti I have never seen blood literally pour out of my urethra[frown]
I went to out of hours and she dipstick tested my urine..
Very shockingly it didn't have any nitrates so it's not classified and an infection however I had high level of leukocytes which showed dark purple.
She prescribed 7 day treatment of nitrofurantoin ( I was only prescribed 3 day course last time but it made me symptom free for 3 weeks!! )
Anyhow I took my first tablet and bam!! Within an hour the bleeding had stopped ( so definitely an infection) .I feel nitrofurantoin is the only antibiotic that can treat my infection. I had 5 months of cephalexin and it did nothing. Nitrofurantoin made me symptom free for 3 weeks after last bout of uti
The doctor told.me to contact my gp and ask for a long term 6 month treatment of nitro. One tablet a day
Is this worth trying do anyone think? Xx
Sophs50522

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Posts: 124
Reply with quote  #4 
And can anyone tell me how come a chronic uti doesn't seem to lead to sepsis after having it for so long ?
I am feeling much better today not just physically but also emotionally. I can't help but think that a chronic uti also makes you feel disoriented.
I'm so clear headed and have loads of energy whilst taking these antibiotics
Sophie X
Moderatorsusan

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Reply with quote  #5 
If you haven’t looked at this before then it will explain how a UTI can become embedded into the bladder wall and the infection does not turn into sepsis because it doesn’t spread through the urinary system. The infected cells often lie dormant in the bladder wall only dividing and emerging when circumstances are right.

http://www.cutic.co.uk/what-is-chronic-uti/a-chronic-uti-explained/

Sepsis can occur if an untreated infection spreads beyond the bladder, it can reach the higher parts of the urinary system, such as the kidneys and ureters. When the infection reaches these areas, urosepsis is one possible complication. Those at risk include:

Those with diabetes
being over 65 years old
a compromised immune system from autoimmune disorders such as HIV or AIDS
immunosuppression from certain drugs, organ transplant, or chemotherapy
corticosteroid treatment
history of urinary conditions
catheter use

Glad you are feeling better.
Sophs50522

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Posts: 124
Reply with quote  #6 
Thank you!
Yes I had an inkling I had a chronic uti after visiting pf JML but had to stop treatment due to it causing me awful thrush.
Sorry for tmi. The doctor I have seen told me that nitrofurantoin doesn't really cause it that much and for me to either ask my gp for 6 months of low dose nitrofurantoin or for me to go back to pr JML as ask if he can prescribe that instead as it has made me so much better compared to the cefalexin I was on. I'm sure I'm immune to it.

I was going to start D mannose but after reading that it only helps e coli infections it's pretty useless as my isn't e coli going from my dipstick test as it's showing as no nitrites.
I'm glad I've got closure a little bit now knowing it is an infection after seeing the improvement taking nitrofurantoin on a inconclusive dipstick result and clear lab culture.
Loobyloo

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Posts: 33
Reply with quote  #7 
For the record, I have had 3 cystoscopies, and have never had a urine infection or pain after.  Sometimes it is necessary and it s not always a good idea to be put off this procedure.  I think it is perfectly in order to ask for an intravenous antibiotic 'cover' just prior to the op.  I am obliged to have this anyway, due to a heart condition.
Loobyloo

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Posts: 33
Reply with quote  #8 
Also for the record, it is not the person that becomes immune.  It is the pathogen which can be intrinsically immune or develop.  However, it depends on the strain.  One bug may respond to nitro or cephalexin, but be useless against another.   Therefore it can be hit and miss.  Meanwhile, helpful advice from the moderator.  Macroscopic blood should be investigated and a trip to A&E, always a pain I know, should be considered.  
Sophs50522

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Posts: 124
Reply with quote  #9 
Hey loobyloo.
I had my cystoscopy and it was pain free and I felt fine afterwards too. I didn't have a UTI until 2 months after the procedure so I'm unsure what has gone on.

That's interesting to know. I've not had microscopic blood. I've had loads of blood. Where it was literally dripping out of me! it definitely wasn't my period either. The pain was horrific.
I seem to respond to nitrofurantoin really well so I'm wondering if this could actually rid my chronic uti if I take it long term.

What an awful condition this is though!
I'm hoping more research is done over the coming years to help everyone.
Loobyloo

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Posts: 33
Reply with quote  #10 
No one really can know why you had an infection 2 months after the procedure.  Any surgery introduces bacteria into the body, thats why antibiotic cover is usually given. Macroscopic blood is visible, like yours.  Microscopic is not.  No one can say on the forum if Nitro can help you long term.  The only thing to do is call Bladder Health to discuss the options in terms of specialists who can culture your urine more specifically.  An unconfirmed UTI in the past is not to be relied upon as NHS testing is inaccurate in many cases.  
Christina__21

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Posts: 10
Reply with quote  #11 
Hi Sophie. Do you know what bacteria caused your latest severe uti? Ì'm interested because my experience with antibiotics is opposite to yours - nitrofurantoin is useless but cephalexin works OK at present. I get utis every few weeks, caused by Ecoli, so hope the cephalexin keeps working for me!
Sophs50522

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Posts: 124
Reply with quote  #12 
Hey Christina, I have absolutely no idea what bacteria it is but I do know it's likely not to be E coli.
Apparently that bacteria releases something in the urine that then turns to Nitrites and I haven't had Nitrites in my urine with the last two confirmed uti's. Just high level of white blood cells.

That must be awful to have UTI's that often. I thought 2 months was bad enough.
I'm glad to hear cephalexin is working for you. They gave me horrific thrush being on them. I'm not sure if that was probably why I felt like they wasn't working due to my thrush symptoms I don't know but nitrofurantoin seems to be doing the job.
Loobyloo

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Posts: 33
Reply with quote  #13 
Nitrates do not always show in tests.  The wee has to have been in the bladder c. 4 hours.  If you feel like you have a UTI then you probably have one. If you have e coli infection D-Mannose is known to be helpful.

Christina__21

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Posts: 10
Reply with quote  #14 
Thanks Sophie and Loobylou, you've both taught me more about my utis. When I get the familiar pain I do a strip test, and nitrites are always high, with the leucocytes and, alarmingĺy, the time before this one, blood and protein. I had no nitrires this time, and indeed it was fresh urine as I'd been just a few minutes before producing the sample. I took d-mannose for a month or two but gave up when I got another Ecoli uti while I was taking it. It is so expensive, but I have wondered whether to give it another chance. BTW the last lot I bought, trying to save a bit on the cost, are still in a cupboard as they're too big and rough for me to swallow - even when broken in half, so if I go back on them it will have to be the most expensive again.
ModeratorKate

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Posts: 1,912
Reply with quote  #15 
Morning all
Here are a few comments re D Mannose that may assist, many of us find that the powder is more effective than Tabs, but as we know we all react differently.
This was a comment from Moderator Susan replied to another Member

"D Mannose
For those suffering with Gram Negative bugs (E coli, Proteus, Klebsiella and Pseudamonas), D Mannose has proved to be helpful in controlling a flare or preventing an attack from worsening or for post coital UTIs.
It works by clinging to the fingers of gram negative bugs, preventing them from attaching to the walls of the bladder and urethra. When you urinate, it helps to flush out the bugs from your system. Although it is a sugar, very little gets into the body and most is excreted through the kidneys and urine.

For more information, see the attached link.
http://articles.mercola.com/sites/articles/archive/2014/04/28/d-mannose-uti-prevention.aspx

Take a heaped teaspoon in water 4 times a day. Build up to 8 time a day when your bladder flares or every 2 hours including at night during an acute flare for 48 hours. The key is to make sure you have d-mannose in the bladder during the course of the day and night so that the e-coli is continually being flushed through.
You need to take the DM away from any acidic food or drink as it will counteract its effects and you need to keep your urine alkaline. Stools may be loose for a few days when first taking it."

and these may help

http://www.cutic.co.uk/
http://www.cutic.co.uk/patients/

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