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FrankieB

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Posts: 14
Reply with quote  #1 
checked for!

Hey IC'ers. 

Last October I was struck down with the typical IC symptoms. A painful bladder and pelvis which could have me weeing sometimes every 30 minutes. My life has revolved around my bladder and what a bloody misery that is, as you all know. I had a cystoctopy but nothing showed up on it. Certain drugs made me constipated or get bladder retention so I stopped them. They offered me amitriptyline or I think as they call it in the states Elvail, which I refused as I was not happy to just cover the symptoms with no answers. One urologist said I just had a pain disease or nerve damage, and would have to find ways to manage it (I paid £280 privately for the privilege of this information)...

Completely fed up or trying to diet modification, cutting alcohol and caffeine, hot baths, hot water bottles, laying in bed in pain, having to drop out of studies and with no answers from any Dr's or useful treatment I opted to see an alternative Dr who a friend recommeneded to me (I've put the link below if you want to see how he works) who did a few tests and found.... parasites and..BILHARZIA in my system!!

He asked me a question no other Dr's thought to ask. Where have you travelled in the past few years? Well I returned a year ago from spending a year in SE Asia and India, I told him.

Bilharzia / schistosomes comes from parasite and is an epidemic in Africa, so Western Dr's don't really think about it... but also SE Asia, Spain and a few other places around the world. It can cause a few symptoms... ONE BEING IC

He told me has seen a fair few patients come in with my symptoms, and IC, and they've just had Bilharzia...So a few weeks into being on homeopathic medicine for it, my symptoms did relieve quite a bit and I was able to do some normal things ago...

Then I stumbled across this post on here!! But it is from 2012 so sadly I couldn't seem to get in touch with the girl in the post

He has been treating me, the same as it seems he treated the person in this post, for 2 months now with complex homeopathy and chinse herb meds. I am not completely healed yet, but I now drink coffee pretty much every day, alcohol again sometimes within moderation (although I did drink half a bottle of wine on the weekend!), my inflamation and overactive bladder symptoms have reduced LOADS I can do a lot more normal things now and I really don't notice my bladder as much at all any more. 

I have a follow up appointment in October and I am hoping it should be all cleared by then!!

I hope this is helpful information and if anyone wants to contact me regarding my experience please feel free [kiss][crazy][wave] IC sucks big time!!!! xxxxxxxxxxxxxxxxxxxxxx

BIG LOVE


Edited as medical professionals, hospitals and/or alternative medical professionals and clinics are not allowed to be named on open forums.
FrankieB

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Posts: 14
Reply with quote  #2 
Hmm I did add some links to my post, but they're not there?

Anyway, feel free to mail me anyone xx
Moderator_Jen

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Posts: 973
Reply with quote  #3 
Hi Frankie

I have edited your post and removed the links as naming or attaching links regarding medical/alternative practitioners/hospitals/clinics are not allowed on the forums.

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Special interest in supporting those with Interstital Cystitis, Fowlers Syndrome and those who have bladder issues in Kent.

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FrankieB

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Posts: 14
Reply with quote  #4 
Ok Sorry, I didn't know that.

I notice you removed all the links, including ones that didn't name any Dr's... are we not allowed to share any links? x
Gillian55

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Posts: 16
Reply with quote  #5 
Hello, I to went to same place,I'm guessing, told the same, spent loads on potions, and visits, had relief and joy for a bit, but hey ho, 3 years on, still suffering!!!! Please don't waste any more money. Go through proper people, not sure that stuff works, but I hope it does for you. I went through many visits, getting there, then chased it out with stronger stuffs, made me feel ill, but I thought it would have great end result, but no.
Good luck.
FrankieB

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Posts: 14
Reply with quote  #6 
Hey Gillian,

Sorry to hear you had a bad experience. [frown]

Not sure what you mean by proper people. All the "proper people" have let me down, not given me anything that works in the slightest. He did train at UCH and worked for the NHS as a Dr for years so not sure what you mean by proper people [smile] 

You're the first person I've spoken to who has had a bad experience here, so I am sorry to hear that!  [frown]

I did find a post on here from another lady saying he relieved her completely after several months and I've had really good results so far, like I said drinking alochol and coffee again and not peeing as much at all , pain reduced loads

This is the post where the other lady shares her experience  - http://cobf.websitetoolbox.com/post/parasite-detox-5810382

I also found a well known and also celebrity personal trainer, Ruben Tabares who quoted using him after having a debilitating illness for 2 years which left him in bed and said he cured him.... So just trying to let people know if they want to try another route, like I really did. I understand why you might feel this way though if it didn't work for you, it's frustrating too if you have spent a lot of time, energy and money

xx
Gillian55

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Posts: 16
Reply with quote  #7 
Well, I started my symptoms 16years ago, have been through everything, including, after 5 years of antibiotics a bladder lift, but 10years on, no relief. I went down same route as you, had relief for a while, but having had 4 visits to alternative in verwood, feeling up and down, it all came back!!! So I'm under urine specialist, and afraid I'm still taking antibiotics, now been constant for 4 years. I'd love to say there is something out there, but believe me, I've spent thousands, but find you just have to try and manage it, whatever works for you. As you can tell, I'm on a down period at moment, but I look forward to a few weeks when I do feel better. I can never plan anything, ad I just don't know how I will feel. Gone are the days of holidays!!!!
I just don't want anyone to waste money, unless they are 100 per cent sure it's right, for you.
I really wish you well, and you can get relief. I don't seem to be able to.
Xxxx
FrankieB

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Posts: 14
Reply with quote  #8 
i am really sorry to hear that Gillian [frown], I do understand having been a sufferer of it badly! xxx

Do you mind me asking what he said when you told him that none of it was working? If you don't want to speak about it though that is fine hun ... X
Gillian55

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Posts: 16
Reply with quote  #9 
Actually, just told me to stop taking, having been there, and each time adding more and more
FrankieB

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Posts: 14
Reply with quote  #10 
So he told you to stop the treatment all together? Did he say he didn't think it was going to work on you then or that maybe you didn't have what he thought? X
Vita

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Posts: 19
Reply with quote  #11 
I agree with you Frankie. I have private messaged you to find out who you are seeing as I've been looking into this.
FrankieB

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Posts: 14
Reply with quote  #12 
Hey I have messaged you Vita x
FrankieB

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Posts: 14
Reply with quote  #13 
Just for people who have mailed me about the Dr... here's the article where Ruben Tabares quotes him

He contracted Epstein Barr virus and spent two and a half years in bed until finally he discovered Dr ***** ******* – a Chinese herb, homeopathic practicing surgeon from Dorset, who got him well again.

This post has been edited by forum moderator due to the following reason:

The link was an advert for a private clinic so has been removed as it is against forum rules to post information or advertisements about any medical or alternative therapy professionals or/and associated clinics.

If a clinic wishes to advertise their services then please contact the COB Office for details on advertising.

Amypip

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Posts: 20
Reply with quote  #14 
Hi FrankieB I’m so interested in your post here on this doctor and this diagnosis as I have just seen this doctor and got the same diagnosis! Can I ask are you symptom free now and over this bladder thing now ?
I would love to hear from you but appreciate this was posted a few years ago now

Amy
FrankieB

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Posts: 14
Reply with quote  #15 

Hey Amy!!

Wow this was so long ago. I have been on quiet a journey since then...
Yes I am free of IC now!!! thank god. It feels like a bad nightmare now... 
This Dr and medication didn't help though. I found it a waste of money and time for me personally...
I was cured via acupuncture every week with Toni Please let me know if you have any questions... Xxxx

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