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Annabel1979

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Posts: 38
Reply with quote  #1 
I had terrible, what i thought were, IC symptoms for 4 months. And after seeing many specialists was due to habe a laparoscopy. I then, after much googling, came across PVD and went to a fantastic women's physio in barnes london , clinic. I found out that tight high pelvic floor was sqaushing my bladder and causing the symptoms. It seems that IC is actually very rare and traditional doctors do not understand that tight pelvic floor muscles can cause painful bladder, cramps, burning vagina, constant need to urinate etc, and just plaster the IC label on. After a month of physio, relaxation and muscle relaxants, when i need them, im on the mend. Just wanted to share in case i can help people go through unnecesaary and painful treatments and scary medications. Much love.
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Annabel fox
mgharvey66

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Reply with quote  #2 
Thank you. I too am seeing a physiotherapist for pelvic floor dysfunction. It helps a great deal. What muscle relaxant are you taking?
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Annabel1979

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Posts: 38
Reply with quote  #3 
I got some great ones in Singapore that arent available here [frown] called Librax. Otherwise valium next best thing! And weirdly red wine so thats why im sure its not IC!
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Gerry

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Posts: 17
Reply with quote  #4 
I'm very glad you are getting positive results from pelvic floor PT.  PFD is often overlooked as a cause of pelvic pain.  There is a wonderful book that explain the role of pelvic floor muscles inc causing urinary/bladder symptoms.  "The Interstitial Cystitis Solution: A Holistic Plan for Healing Painful Symptoms, Resolving Bladder and Pelvic Floor Dysfunction, and Taking Back Your Life " This was published in October 2016 so it is up-to-date regarding treatments etc. It has been described as the best book on IC and pelvic pain in the past 20 years. Over the past 10 years it has become increasingly recognised that for many people with non-Hunner's IC, there is actually noting wrong with their bladders walls, the bladder is an innocent bystander, and that most of their pain and urianry tract symptoms are coming from pelvic floor dysfunction. For example, if the urethral sphincter muscles are tight they can cause urinary frequency and urgency, , burning pain in the bladder or urethra, or a stinging sensation that occur during urination. Three specific muscles can directly cause bladder and urethral symptoms while other muscles cause the pain that people experience while driving, sitting or during intercourse.  You can find it on Amazon.   51nCSRt6wxL._AC_US436_QL65_.jpg   https://www.amazon.co.uk/Interstitial-Cystitis-Solution-Resolving-Dysfunction-ebook/dp/B01M3PP8SA/ref=sr_1_1?ie=UTF8&qid=1516128372&sr=8-1&keywords=The+Interstitial+Cystitis+Solution%3A+A+Holistic+Plan+for+Healing+Painful+Symptoms%2C+Resolving+Bladder+and+Pelvic+Floor+Dysfunction%2C+and+Taking+Back+Your+Life
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