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Ladybeck75

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Posts: 7
Reply with quote  #1 
Hi, I am 42 and one Monday morning, I woke up for work with symptoms I thought were a UTI- I have not had a UTI for 20 years and I have not had any vaginal issues but that morning, I had urgency, pressure, and continuous trips to the restroom feeling as though I had to go but little urine came out. Over the past month, my GYN and PCP have ruled out UTI, Vaginal Infection, All cultures are clean, urines clean and sonogram on kidneys and bladder came back fine. So, my guess, this is OAB? My pcp has me on oxybuynin 5mg 1x per day. This does nothing... my mornings are worse so I am taking two 5mg tabs when I get up in the morning. The urgency calms but never completely goes away. I find it very bizarre that there are moments where I feel no symptoms, but the moment I notice they are gone, it’s like my anxiety kicks in... then symptoms are back. I take a muscle relaxer (normally for back pain) and ibuprofen during the day for the achy, throbbing feeling down there that I get from sitting all day. Who knows where all of this is coming from, I feel as though I literally broke my vagina in one weekend from possible normal intercourse & then boom, Monday, broken. I do have an apt set with Urologist on 2/6 - I am just curious as to what more they can possibly do. This is horrible, I can’t sit still at work and I am always thinking about it. I may try the Tagamet idea that I read above - I am already taking Prilosec 20mg for GERD. So if I take that 2x a day, maybe that will help? Tagamet and Prilosec are very similar. I am at a loss here - i do not have many trips to the bathroom during the night, I can sleep well taking my normal (back pain) muscle relaxer - Cyclobenzaprine. But again, mornings are horrific. Any thoughts or suggestions? Btw, Citrus intensifies the urge, so I am staying away from citrus, caffeine, alcohol, sugars, spicy foods and sauce. Maybe I will lose some weight... lol Although, I am 5’2” and only weigh 128 lbs. I did carry my three kids very low so my pelvic wall is probably very weak. Thank you. Becky
GeorgieGirl

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Posts: 42
Reply with quote  #2 
Hi Becky,
I have a few comments to make that may help answer some of the questions that you have.
When my OAB started I was treated for a UTI, but I only had some of the symptoms of a UTI. I had the feeling that I needed to go all the time but no burning associated with an infection.
I too was started on Oxybutynin 2.5 mg twice a day. It has worked for me quite well, but it did take a good couple of months to work. I say this as I am not sure of the timescales that you write.
A change in diet helped me too and it's good that you are already doing this. I found pelvic floor exercises also effective.
Others here will be able to advise you further on tests you should have and your urologist I hope will be better placed to pull together all your symptoms.
Best wishes to you.
Sue
Ladybeck75

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Posts: 7
Reply with quote  #3 
Hello Sue- thanks for responding. I had my annual apt with gyn on Thurs. 1/18. I day explained that symptoms were still there but I could ease pain with ibuprofen & muscle relaxer 3x per day. When she examined my bladder and belly, there was no pain or discomfort. I told her that I honestly did not think it was a bladder issue. I directed her to my urethra, like something was in there? She then swabbed my urethra for culture, the pain was so severe when she did it. So, the location of pain was found. That area ached all night but in the am on Friday, all symptoms were better. Yesterday was my best day since 12/4/17. Minimal trips to the restroom and pressure was tolerable. I still took my ibuprofen and muscle relaxer, but i was much more calm and able to get thru my day with ease. It’s almost like she dislodged something, a spec of stone maybe? As I get up today, I am feeling much more relief! I am still going to my Urologist apt on 2/6 but i am praying this may be over, i have not had any stones since my early 20’s, and even then my symptoms were much more intense while passing one. The past two months have been a nightmare.... there maybe a light at the end of the tunnel! Becky
Ladybeck75

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Posts: 7
Reply with quote  #4 
I was even able to enjoy a large coffee yesterday without any pain or spasm - will be interesting to see what the results say on culture of urethra- my urine has been crystal clear for two months. B
Jenn22

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Posts: 4
Reply with quote  #5 
Please let us know the results of your swab test.. I just signed on tonight to reply to this because Im experiencing exactly the same. It's been two months now. I also felt I had a Uti but no burning. I went to the doc, he gave antibiotics for 3 day but the test was negative for a Uti. I also had a lot of pain in my urethra like pressure and the feeling of constantly having to urinate with very little output. It's been a nightmare. The urethra pain as subsided but I'm still feeling the urge maybe not as much now. Wish I know what was going on. Thanks in advance.
Ladybeck75

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Posts: 7
Reply with quote  #6 
Hello! My urethra swab came back negative. I did have my first visit with a female urologist and I have been diagnosed with spastic bladder - my bladder and urethra get stuck in spasm mode and it is causing urge, not emptying and stress incontinance ... i have been able to control some of it with 800mg of ibuprofen - but definitely had to completely cut caffeine, sugars, spicy, and citrus foods. No alcohol either. Herbal teas only. She is also setting me up with PT - physical therapy for pelvic floor. Similar to a Tens unit- to zap my spasm back to relaxed mode - that should be interesting. So i had two rough days this week, I am feeling a little better today. It’s odd, sometimes I have great days- thinking it’s gone, then it returns.... just a horrible few months so Far. Becky
Ladybeck75

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Posts: 7
Reply with quote  #7 
The alcohol makes very good sense as she said it was the number one trigger, i was feeling great and then the super bowl came this past Sunday, had a few cocktails, and now Tuesday and Wednesday were brutal for me- I am going to listen to her and stay away from the cocktails for a few months - Becky- one more thing, consitipation is a huge contributor too - if your bowels are full, they pinch the bladder. I have been using Benefiber to help staying regular. So much to remember!
Jenn22

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Posts: 4
Reply with quote  #8 
Hello Becky , did she prescribe OAB meds as well? Or anything to help you empty the bladder?
Ladybeck75

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Posts: 7
Reply with quote  #9 
My pcp prescribed me Oxybutynin 10mg - but it did nothing for me. The ibuprofen is a anti inflammatory so it helps with the inflammation of the urethra- changing diet and adding fiber has given me the most relief so far. On my own- i also take a muscle relaxer at night - cyclobenzaprine, it actually helps a lot! Especially during flare ups
Jenn22

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Posts: 4
Reply with quote  #10 
Thx Becky. I'M going to see a urologist next month. I'm a bit worried about the low urine output. I hope PT goes well and resolves this terrible issue. Good luck with everything.
Ladybeck75

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Posts: 7
Reply with quote  #11 
I work in the medical field so I have been doing my homework. I was spot on while in the md’s office - i knew it was a spasm, and not OAB bk i am not getting up during the night. And the symptoms come and go. I am only 43 so I was surprised to have all of this going on. I have never been regular so the Benefiber and stool softness have been a huge help. Diet is key- fingers crossed for the both of us!! Becky
Jenn22

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Posts: 4
Reply with quote  #12 
Hi Becky, I assume they did some testing to know your not voiding completely? The urologist didnt give you meds for a spastic bladder? I'm thinking it would be the same type of meds for OAB. Then again I dont know. Thanks and glad you're feeling better.
Rj

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Posts: 9
Reply with quote  #13 
Quote:
Originally Posted by GeorgieGirl
Hi Becky,
I have a few comments to make that may help answer some of the questions that you have.
When my OAB started I was treated for a UTI, but I only had some of the symptoms of a UTI. I had the feeling that I needed to go all the time but no burning associated with an infection.
I too was started on Oxybutynin 2.5 mg twice a day. It has worked for me quite well, but it did take a good couple of months to work. I say this as I am not sure of the timescales that you write.
A change in diet helped me too and it's good that you are already doing this. I found pelvic floor exercises also effective.
Others here will be able to advise you further on tests you should have and your urologist I hope will be better placed to pull together all your symptoms.
Best wishes to you.
Sue

Hi

I feel like I'm experiencing Something similar, it started in august this year where I just felt the urge to urinate however not much would come out all the time. At the time it started I was on holiday and just assumed it might be a UTI. When I got back to the UK I went to the doctors and they said there's no sign of infection. I also had a blood test done which came back Normal and an ultra sound which also came back normal. My symptom are literally just pressure down below which makes me feel like I need the toilet all the time when I don't. I don't experience and pain of burning but it's so uncomfortable to have to deal with, especially trying to fall asleep at night! I'm currently waiting to be referred to a urogynocologist not sure how long that's going to take but the weird thing about my symptoms is that they're on and off. It probably lasts for about a week and a half or two weeks and then goes for a week maybe and comes back. So I basically get it every month and I'm not sure if it's related to my period.
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